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24 01, 2016

FDA expands access to Kyprolis. Big news?

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Friday the FDA expanded it's approval of how and when carfilzomib (Kyprolis) can be used. Trumpets sounded. I counted eleven industry news outlets that led with the story. My reaction? Big yawn. I wasn't even going to post about it. But Saturday a half dozen more publications ran stories about it, so I felt we

21 01, 2016

MMRF 2015 myeloma year in review

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I'm part of a Cure Talk Radio broadcast in a few hours featuring Multiple Myeloma Research Foundation co-founder, Anne Quinn Young. If you can't listen live, I'll pass along a link so you an listen later. Here's a short rundown about the show: 2015 saw a lot of action in the Myeloma world. Four new

2 01, 2016

The power of combination therapies

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New checkpoint inhibitor studies combining the experimental drug, Keytruda, with Revlimid, are working in patients who have become refractory to Revlimid. I found this great article on Linkedin.com on Saturday. I didn't even know there was such a thing. I thought that Linkedin was a professional job networking site. Apparently, professionals in healthcare can post

30 12, 2015

Hotel options for April Beach Party event

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It's hard to believe that we're only three months away from the 3rd Annual Pat's Myeloma Beach Party. The event is a "party" in name only; there will be 15 myeloma experts on hand to address topics that last year's attendees and readers feel are most important to them. The three day event is scheduled

29 12, 2015

Key research breakthroughs at ASH

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Did you see the MMRF's outline of important myeloma related news at ASH this year? Short and to the point. American Society of Hematology (ASH) Key Takeaways Earlier this month the MMRF attended the 57th Annual Meeting of the American Society of Hematology (ASH) in Orlando, Florida. In last month’s newsletter, Blake Morrison, PharmD MMRF

26 12, 2015

Video highlights of my first few days at ASH

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Good friend and fellow myeloma survivor, Jenny Ahlstrom, is a lot better at the technical side of blogging than I am. She uses a lot of video on her site. Jenny interviewed me on Sunday at ASH. You can listen to it here: http://www.myelomacrowd.org/live-from-ash/ Now that we're past the holiday, I'm going to be going

22 12, 2015

Hopeful news about first PD-1 inhibitor

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Another exciting, new immunotherapy may be on the horizon: Keytruda In meetings of well informed patient activists and experts after ASH, several in the group were excited about a new class of drug called PD-1 inhibitors. Jenny Ahlstrom was practically doing back flips over it. Here's info on the first of let's hope are several

19 12, 2015

More financial aid is on the way!

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This is awesome news; another source of financial assistance for myeloma patients in need. HealthWell Foundation Launches Fund to Provide Financial Assistance to Multiple Myeloma Patients New Fund Offers Relief to Patients Struggling with Out-of-Pocket Costs for Treatment GAITHERSBURG, Md., Dec. 16, 2015 /PRNewswire/ -- The HealthWell Foundation®, an independent non-profit that provides a financial

18 12, 2015

An amazing emotional roller coaster ride

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I promised to follow up on yesterday's amazing news. Dr. Tricot reassures me that my tests confirm there isn't any active myeloma left. Yet I didn't go into our meeting expecting such good news. Late Wednesday night I was able to take a sneak peek at my PET scan results Tuesday. I’m usually pretty good

17 12, 2015

I’M MYELOMA FREE!

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Looks like our highly toxic gamble to try a pair of salvage autologous stem cell transplants worked! I'm at the airport getting ready to board a plane to Atlanta on the way home, so no time to post details... Still, I quickly wanted to share the good news with so many that have been sympathetic

14 12, 2015

Back to ASH: Ninlaro and Pomalyst combo promising

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Before I pass along important information about Takeda's new oral proteasome inhibitor, Ninlaro (ixazomib), I wanted to share an update about how I'm doing. Much better, thank you very much!  Squirting a shot of vancomycin liquid into the back of my mouth (yuck) every six hours seems to be doing the trick. Another antibiotic, Flagyl,

8 12, 2015

More drugs are good, but aren’t enough

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Data for more than a dozen "new" myeloma drugs was presented at this week's American Society of Hematology (ASH) meetings here in Orlando. As I described yesterday, several are hopeful crossover drugs; compounds that are already FDA approved for use against other cancers. Keytruda, known chemically as pembrolizumab, and ricolinostat (ACY-1215), another possible cross over