Please Subscribe to get a daily link to Pat's blog via email


Your privacy is important to us. We will never spam you and keep your personal data secure.


1909, 2015

New research partnership and more about Kyprolis

By |September 19th, 2015|News, Research, Side effects|

This is complicated stuff. Apparently Amgen, (now own Onyx who makes Kyprolis) is partnering up with others to try and move into the immunotherapy and T cell therapy space. I’m not sure I understand why they need a partner to do this, but money is BIG!
Amgen, Xencor to Partner on Cancer Immunotherapy, Inflammation Drugs
September 16 […]

1809, 2015

Updated version of my New Therapies book available NOW!

By |September 18th, 2015|About Pat, Books, Research, Supplements/Drugs, Tips|

What did I do while I was stuck in Iowa waiting for test results and harvesting my stem cells? I updated two of my books, New Myeloma Therapies from a Patient’s Perspective, and Financial Aid for Myeloma Patients and Caregivers. The New Therapies book has shipped and is ready for sale.

1509, 2015

New Selinexor Phase 2 clinical trial enrolling patients now

By |September 15th, 2015|Research|

At last count, the number of myeloma drugs–and drug combinations–in clinical trials is well over 30. While all of these therapies aren’t new, it has become challenging to try and project winners and losers.

1209, 2015

Research Update: CTL019 T cell therapy

By |September 12th, 2015|Research, Transplants|

Researchers at the University of Pennsylvania continue to make progress modifying a patient’s own T cells to attack their myeloma.

509, 2015

Promising results from another fledgling T cell therapy trial

By |September 5th, 2015|News, Research, Therapy, Transplants|

I’ve been openly excited about the prospects of various T cell therapies recently. Early T cell therapy may not be a cure, but it has the potential to be in time. Here’s a rundown of positive early results I found online Thursday, published in the Nature Medicine Journal and reviewed by Womens Fitness:
T-cell receptor therapy […]

209, 2015

Two promising new myeloma therapies: ABT-199 and daratumumab

By |September 2nd, 2015|News, Research|

I just heard from a patient’s daughter. Her mother is joining a clinical trial for ABT-199 at Mayo Clinic in Minnesota. Apparently the myeloma team there is openly enthusiastic about the drug’s potential.

2908, 2015

Greg Brozeit: History of Patient Advocacy in U.S.

By |August 29th, 2015|Research, Support|

Guest columnist, Greg Brozeit, is at it again. Put your thinking caps on. Greg shares more of his outside-the-box, global perspective with us today, this time focusing on patient advocacy:

2708, 2015

BREAKING NEWS: Daratumumab pushes forward toward FDA approval

By |August 27th, 2015|News, Research, Side effects, Supplements/Drugs, Tips|

Important news as the promising new immunotherapy, daratumumab, continues to move swiftly toward FDA approval.

2608, 2015

Patients helping patients: Readers making a difference

By |August 26th, 2015|News, Research|

Efra, a reader from Israel, forwarded me an interesting article about cancer research–done at Mayo Clinic here in Jacksonvile. I got such a kick out of that. Love it or hate it, the internet helps keep us connected. What a small world!

2308, 2015

Dr. Ola Landgren to answer questions about treating high risk myeloma

By |August 23rd, 2015|News, Research, Therapy|

I’m part of an important broadcast Monday evening. Myeloma specialist, Dr. Ola Landgren, has been too busy to do interviews since moving his practice to Memorial Sloan-Kettering Cancer Center in New York. He’s making an exception of us. The topic: Can focusing on high risk myeloma help us find a cure? Remember, anyone who’s relapsed […]

2108, 2015

CrowdCare Foundation betting on T cell therapy

By |August 21st, 2015|Inspirational, News, Research|

After hearing from dozens of you about your peripheral neuropathy–and what you do to help minimize the symptoms–I’m working on a two part series about it, sharing tips from more than 20 patients; I’ll run the posts this weekend. In the meantime, here is CrowdCare Foundation’s official press release, announcing our support for two important, […]

1808, 2015

Cutting edge T cell research could help save our lives

By |August 18th, 2015|Inspirational, Research|

I’ve got some exciting news. My good friend and founder of the CrowdCare Foundation, Jenny Ahlstrom, announced the two groundbreaking clinical trials we plan to help fund today.

1508, 2015

New friend shares important research insight

By |August 15th, 2015|Inspirational, Research|

This is exciting! In June I wrote about a myeloma research breakthrough made at my Alma Matter, the University of Wisconsin. Since then one of the lead investigators, Chorom Pak, has been kind enough to email me updates and insightful explanations about their work.

1408, 2015

Understanding our future: immunotherapies

By |August 14th, 2015|News, Research|

I just listened to one of the best and easiest to understand videos I’ve found, explaining how the new monoclonal antibodies (elotuzumab and daratumumab) work.

1308, 2015

More about daratumumab, followed by Pat’s medical update

By |August 13th, 2015|About Pat, Inspirational, Research, Support, Transplants|

Before I write about how I’m been doing the past day or two, here’s the mainstream Florida’s media’s perception of yesterday’s feature, daratumumab:
Multiple myeloma sufferers given new hope with ‘wonder drug’
August 12, 2015 – 693 NewsTalk, Melbourne, Australia     

1208, 2015

BREAKING NEWS: MMRF helps push expanded access for dararumumab

By |August 12th, 2015|News, Research, Therapy|

Today is your last chance to participate in a focus group study using your smart phones. Amazon gift cards will be given to all who participate.

708, 2015

Is myeloma therapy best in U.S.?

By |August 7th, 2015|Research, Therapy|

Following yesterday’s introduction, as promised, here is Greg Brozeit’s second column:

608, 2015

Make some money and learn about patient advocacy

By |August 6th, 2015|Research, Support|

Despite starting chemotherapy this week at Day 26, I feel surprisingly good. Good enough to post about a pair of topics I thinks should interest you.

2707, 2015

FDA expands Kyprolis guidelines to include more patients

By |July 27th, 2015|About Pat, News, Research, Side effects, Transplants|

Long day today. I met with Dr. Tricot and formally got the green light to fly home tomorrow. Then I had my catheters (in my left upper arm) cleaned and dressing changed. Next, I received some IV fluids and my hand sized bag of antibiotic. I ended the day saying goodbye to my new friends on […]

2407, 2015

Multiple myeloma research races forward…

By |July 24th, 2015|News, Research, Transplants|

I’m feeling good enough to catch up on some of my myeloma related reading. The pace of research amazes me.