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12 09, 2015

Research Update: CTL019 T cell therapy

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Researchers at the University of Pennsylvania continue to make progress modifying a patient's own T cells to attack their myeloma. News of early success broke at ASCO this summer: CTL019 Trial results at ASCO beyond impressive! Posted on June 18 2015 by Pat Killingsworth | 1,279 views Medical Xpress ran an article about it Wednesday.

2 09, 2015

Two promising new myeloma therapies: ABT-199 and daratumumab

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I just heard from a patient's daughter. Her mother is joining a clinical trial for ABT-199 at Mayo Clinic in Minnesota. Apparently the myeloma team there is openly enthusiastic about the drug's potential. ABT-199 is a Bcl-2 inhibitor, targeting the BCL-2 protein. The experimental drug has produced remarkable success against several other types of blood

29 08, 2015

Greg Brozeit: History of Patient Advocacy in U.S.

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Guest columnist, Greg Brozeit, is at it again. Put your thinking caps on. Greg shares more of his outside-the-box, global perspective with us today, this time focusing on patient advocacy: A Short Political History of Patient Advocacy Modern patient advocacy was born in the United States. In the beginning it was mostly political. Although a

27 08, 2015

BREAKING NEWS: Daratumumab pushes forward toward FDA approval

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Important news as the promising new immunotherapy, daratumumab, continues to move swiftly toward FDA approval. My friends at Genmab and Jannsen in the Netherlands emailed me details last evening, along with some helpful background information to review: Daratumumab is an investigational human anti-CD38 monoclonal antibody that received Breakthrough Therapy Designation from the FDA in May,

21 08, 2015

CrowdCare Foundation betting on T cell therapy

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After hearing from dozens of you about your peripheral neuropathy--and what you do to help minimize the symptoms--I'm working on a two part series about it, sharing tips from more than 20 patients; I'll run the posts this weekend. In the meantime, here is CrowdCare Foundation's official press release, announcing our support for two important,

18 08, 2015

Cutting edge T cell research could help save our lives

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I've got some exciting news. My good friend and founder of the CrowdCare Foundation, Jenny Ahlstrom, announced the two groundbreaking clinical trials we plan to help fund today. Regular readers will remember that I'm a member of CrowdCare Foundation's Patient Advisory Board. We've spent the last eight months searching for underfunded research most likely to

14 08, 2015

Understanding our future: immunotherapies

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I just listened to one of the best and easiest to understand videos I've found, explaining how the new monoclonal antibodies (elotuzumab and daratumumab) work. My good friend and long lived myeloma survivor, Jack Aiello, is interviewing Dana-Farber's Dr. Paul Richardson on a Patient Power broadcast. It's short and to the point. Give it a

13 08, 2015

More about daratumumab, followed by Pat’s medical update

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Before I write about how I'm been doing the past day or two, here's the mainstream Florida's media's perception of yesterday's feature, daratumumab: Multiple myeloma sufferers given new hope with 'wonder drug' August 12, 2015 – 693 NewsTalk, Melbourne, Australia      A breakthrough drug is providing "unprecedented results" and giving new hope for patients with a rare

12 08, 2015

BREAKING NEWS: MMRF helps push expanded access for dararumumab

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Today is your last chance to participate in a focus group study using your smart phones. Amazon gift cards will be given to all who participate. Contact Kristin Mraz,Community Recruitment Manager - WEGO Health, 177 Tremont Street, 3rd Floor,Boston, MA,02111 - cell:  518.774.6114 - office:  617.863.7745 - fax:  617.426.5027 - I've worked with these

7 08, 2015

Is myeloma therapy best in U.S.?

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Following yesterday's introduction, as promised, here is Greg Brozeit's second column: Random Thoughts on Health Care American health care is often cited, mostly by American politicians, as being the best in the world. It’s not that simple. Perhaps it is the best if you can access and afford it. But if you can’t, it doesn’t