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8 01, 2016

Rest in peace dearest Sara

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These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week. I first met Sara after speaking to an awesome support group in Charlotte. Was it three years ago? Four years? They all seem to run together

26 11, 2015

I’m thankful for my myeloma friends, alive and past

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Thanksgiving is all about family and friendships. I have made some amazing friends during my myeloma journey. Some I've never met. We've simply emailed regularly for years. Gary Shankland and I have been exchanging emails for three or four years. His wife, Jeanie, has battled an aggressive type of myeloma all this time. The couple

1 05, 2015

Living to Make a Difference: Mike Katz (Part Two)

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Writer Greg Brozeit reminds us that any myeloma patient that has ever taken dexamethasone owes Mike Katz a heartfelt "Thank you!" Living to Make a Difference: Mike Katz (Part Two) By Greg Brozeit I was a witness to the second great clinical achievement for which Mike was largely responsible. Every year at the IMF’s annual

27 04, 2015

Myeloma legend Mike Katz has died

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Mike Katz was the longest living myeloma patient I've ever met; I believe it has been 25 years since he was first diagnosed. I met Mike at my first ASH six years ago.  A mainstay at International Myeloma Foundation (IMF) events, Mike worked tirelessly for the group, pressing on even when he wasn't feeling good.

20 04, 2015

Well known novelist dies of multiple myeloma

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A number of readers from the Western U.S. emailed me about author Ivan Doig's passing.  The popular and well published novelist from Idaho died last week from complications related to his ongoing battle with multiple myeloma. Ivan Doig dies at 75; writer captured the American West April 13, 2015 - Associated Press and the L.A.

24 09, 2014

We’ve lost another myeloma hero

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I was devastated to learn that another close friend, Jim Byrd, died this week. I met Jim while speaking to a support group in Columbia, SC.  He was interested in helping others by speaking to groups, too, so I helped him get started in Millinnium's Patient Ambassador program. Our paths crossed a number of times. 

8 09, 2014

Donald J. Hamilton 1932-2014


In July I ran a pair of Patient Snapshot posts about multiple myeloma patient, Don Hamilton, and his wife and caregiver, Joan: Patient Snapshot: Don and Joan Hamilton from Ohio (Part One)   Patient Snapshot: Don and Joan Hamilton from Ohio (Part Two)   If you recall, Joan was having trouble caring for Don as

30 07, 2014

I’ll miss you, Arnie–we all will

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I learned yesterday that Arnie Goodman had died. We were exchanging emails until a few days ago.  He let me know he was hospitalized at Moffitt Cancer Center in Tampa and wrote, "I'm sicker than I've been in a long time." I just flew home and haven't had a chance to speak with Arnie's wife,

16 07, 2014

I can’t believe that Karl’s gone…

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Major League Baseball's annual All Star Game was played last night at Target Field in Minneapolis.  My dear friend, Karl Vollstedt, was a huge Minnesota Twins fan.  As I leaned over to pick up the phone to congratulate him and chat during the game, I was jolted back to reality: Karl died in April. For

25 05, 2014

Rest in peace, Myeloma Angel

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The joy I felt from yesterday's fun, frivolous post quickly gave was to an overwhelming wave of sadness.  My dear friend, Millennium Patient Ambassador and broadcast myeloma support group member, Sandy Hirsch, died earlier this weekend from complications associated with her high risk multiple myeloma. Sandy was kind enough to travel down to Florida from

19 04, 2014

Mourning the loss of a true myeloma hero

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One of my closest friends died Thursday night.  Karl Vollstedt was the most generous and positive person that I've ever known. I met Karl--and his lovely wife, Lorraine--at the first multiple myeloma support group meeting I ever attended in the summer of 2007.  Karl had founded the Stillwater, Minnesota group three years before.  Don Wright,

4 01, 2014

Remembering Laurie Arnn from Texas

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The myeloma community has lost a dear friend, Laurie Arnn.  I first met Laurie online a year or so ago.  Despite enduring an unfair number of serious myeloma related side effects, she was always upbeat and positive. I have mentioned Laurie and Phillip on MMB several times.  She was still in rehab, hoping to go

28 09, 2013

Rest in peace, daughter of the West

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I want to thank everyone who has kindly commented, called or emailed me after reading yesterday's post.  Your compassion and empathy have lifted my spirits and helped me cope.  So far, so good! One of the reasons the news of my relapse hit me so hard: I learned that a friend with multiple myeloma had