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David Bowie

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We need more open and honest conversations about multiple myeloma

Posted on January 22 2016 by Pat Killingsworth

One of my pet peeves: when celebrities don’t disclose the type of cancer that they’re battling. They could at least devulge it in their obituary. Most of the rest of us disclose it. Obviously I’ve done so much more. I’m not implying everyone needs to be as open as I am. But come on: inquiring minds want to know!

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Ellen Stovall

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Cancer patients lost a hero this week

Posted on January 12 2016 by Pat Killingsworth

Ellen Stovall should be in the cancer activist hall of fame. I never met her; never even heard of her. But lengthy obits in the New York Times and USA Today was my first hint how special she was.

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SARA

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Rest in peace dearest Sara

Posted on January 08 2016 by Pat Killingsworth

These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week.

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Statistics meaningless when we’re a clinical trial of one

Posted on November 29 2015 by Pat Killingsworth

As often happens after I memorialize someone, I got several emails from others that recently lost their loved ones. One graciously thanked me for sharing my journey Friday, revealing that she had lost her husband after a short, six month struggle with multiple myeloma.

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Jeanie Nebraska – Copy

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I’m thankful for my myeloma friends, alive and past

Posted on November 26 2015 by Pat Killingsworth

Thanksgiving is all about family and friendships. I have made some amazing friends during my myeloma journey. Some I’ve never met. We’ve simply emailed regularly for years.

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Mike Katz head shot

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Living to Make a Difference: Mike Katz (Part Two)

Posted on May 01 2015 by Pat Killingsworth

Writer Greg Brozeit reminds us that any myeloma patient that has ever taken dexamethasone owes Mike Katz a heartfelt “Thank you!”

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Living to Make a Difference: Mike Katz (Part One)

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Living to Make a Difference: Mike Katz (Part One)

Posted on April 30 2015 by Pat Killingsworth

I wrote briefly about 25 year multiple myeloma survivor, Mike Katz, earlier this week.  But I didn’t really know him; we only spoke briefly when our paths would cross at receptions, or when he was working in the IMF’s exhibition booth at ASH or ASCO.

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Mike Katz

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Myeloma legend Mike Katz has died

Posted on April 27 2015 by Pat Killingsworth

Mike Katz was the longest living myeloma patient I’ve ever met; I believe it has been 25 years since he was first diagnosed.

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Ivan Diog

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Well known novelist dies of multiple myeloma

Posted on April 20 2015 by Pat Killingsworth

A number of readers from the Western U.S. emailed me about author Ivan Doig’s passing.  The popular and well published novelist from Idaho died last week from complications related to his ongoing battle with multiple myeloma.

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In tough times, myeloma patients surrounded by heroes

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In tough times, myeloma patients surrounded by heroes

Posted on January 23 2015 by Pat Killingsworth

I’m disillusioned this morning.  Waking up to our favorite am news show, CBS This Morning, I was bombarded by stories about corrupt politicians and others that only seem to care about themselves.  I know all too well that none of us are perfect.  But here’s a radical thought: Why can’t people just be nice?

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Jim Byrd

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We’ve lost another myeloma hero

Posted on September 24 2014 by Pat Killingsworth

I was devastated to learn that another close friend, Jim Byrd, died this week.

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Don Hamilton

Donald J. Hamilton 1932-2014

Posted on September 08 2014 by Pat Killingsworth

In July I ran a pair of Patient Snapshot posts about multiple myeloma patient, Don Hamilton, and his wife and caregiver, Joan:

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Lessons learned from one of my first myeloma heroes

Posted on August 31 2014 by Pat Killingsworth

What a nice surprise!  Last night I received an email from an old friend, Joan Liedl.  Joan was wife and caregiver to a good friend of mine, Loren, who passed away back in January of 2010.

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Arnie

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I’ll miss you, Arnie–we all will

Posted on July 30 2014 by Pat Killingsworth

I learned yesterday that Arnie Goodman had died.

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KARL

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I can’t believe that Karl’s gone…

Posted on July 16 2014 by Pat Killingsworth

Major League Baseball’s annual All Star Game was played last night at Target Field in Minneapolis.  My dear friend, Karl Vollstedt, was a huge Minnesota Twins fan.  As I leaned over to pick up the phone to congratulate him and chat during the game, I was jolted back to reality: Karl died in April.

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Sandy

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Rest in peace, Myeloma Angel

Posted on May 25 2014 by Pat Killingsworth

The joy I felt from yesterday’s fun, frivolous post quickly gave was to an overwhelming wave of sadness.  My dear friend, Millennium Patient Ambassador and broadcast myeloma support group member, Sandy Hirsch, died earlier this weekend from complications associated with her high risk multiple myeloma.

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Mourning the loss of a true myeloma hero

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Mourning the loss of a true myeloma hero

Posted on April 19 2014 by Pat Killingsworth

One of my closest friends died Thursday night.  Karl Vollstedt was the most generous and positive person that I’ve ever known.

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Neil

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A cautionary tale: Neil’s allo transplant gone wrong (Part Three)

Posted on March 12 2014 by Pat Killingsworth

For the past two days I’ve shared details about Neil’s allo transplant recovery from hell.  Pulling his story together has caused me pause; I can’t imagine putting Pattie through something like this.  But things were looking up.  Hopefully the worst was behind them.

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4 x 6 in. (2)

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Remembering Laurie Arnn from Texas

Posted on January 04 2014 by Pat Killingsworth

The myeloma community has lost a dear friend, Laurie Arnn.  I first met Laurie online a year or so ago.  Despite enduring an unfair number of serious myeloma related side effects, she was always upbeat and positive.

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Jundy

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Rest in peace, daughter of the West

Posted on September 28 2013 by Pat Killingsworth

I want to thank everyone who has kindly commented, called or emailed me after reading yesterday’s post.  Your compassion and empathy have lifted my spirits and helped me cope.  So far, so good!

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