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Archive | Supplements/Drugs

How and when to take dexamethasone

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How and when to take dexamethasone

Posted on January 07 2016 by Pat Killingsworth

Fellow multiple myeloma surivor, Nebraskan Jim Omel, is one of the smartest guys I know. A retired physician, Jim works tirelessly to help his fellow patients. Readers often ask me if it matters when they take their dexamethasone. Scheduled to start consolidation therapy this week, I’ve been wondering about it, too.

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Canadian patients need help getting daratumumab

Posted on December 23 2015 by Pat Killingsworth

My good friend from north of the border, Nancy Shamanna, asked me to share this link to a survey for patients that have taken daratumumab (Darzalex). She’s hoping a positive response might move Canadian officials to adopt the new immunotherapy sooner rather than later:

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Financial aid: Takeda wants to help. Lets work together

Posted on November 25 2015 by Pat Killingsworth

I had an opportunity to interview several Takeda Pharmaceutical team members about the company’s new oral, proteasome inhibitor, Ninlaro (ixazomib), yesterday afternoon.

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Dr Orlowski

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Blood Glucose, MGUS, Myeloma & Metformin (Part Four)

Posted on November 24 2015 by Pat Killingsworth

Following the news that not one but two new myeloma therapies are newly FDA approved, is it possible that the diabetes drug, meformin, could be a third? Before I post the fourth installment of Danny Parker’s series, I wanted to update everyone about how I’m holding up.

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Ninlaro should be a great drug, but storm clouds on the horizon

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Ninlaro should be a great drug, but storm clouds on the horizon

Posted on November 21 2015 by Pat Killingsworth

By most accounts, ixazomib (trade name, Ninlaro) should work as well or even better than Velcade. Preliminary reports are hopeful that adverse side effects may be fewer and more tolerable, too. “But storm clouds on the horizon?”

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BREAKING NEWS: An historic week for multiple myeloma therapy

Posted on November 20 2015 by Pat Killingsworth

The FDA approved Takeda’s oral proteasome inhibitor, ixazomib, late this morning. First daratumumab on on Monday and now ixazomib today.

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Daratumumab (Darzalex) FDA approved for relapsed myeloma patients

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Daratumumab (Darzalex) FDA approved for relapsed myeloma patients

Posted on November 17 2015 by Pat Killingsworth

According to officials at the FDA, yesterday “the U.S. Food and Drug Administration granted accelerated approval for Darzalex (daratumumab) to treat patients with multiple myeloma who have received at least three prior treatments.”

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BREAKING NEWS: FDA approves daratumumab

Posted on November 16 2015 by Pat Killingsworth

I expected daratumumab to garner FDA approval sometime after ASH. So when I saw a news alert earlier today announcing that Darzalex had been approved, I didn’t pay any attention. But it didn’t take long for me to figure out that Darzalex is the new trade name for daratumumab. By any name, this is wonderful news.

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MIKE and PUP

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More good news: Daratumumab follow-up

Posted on November 03 2015 by Pat Killingsworth

Remember the good news that Mike from North Carolina shared with us last month?

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IMG_4048

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Waiting for the next shoe to drop

Posted on October 19 2015 by Pat Killingsworth

Here’s an update about how I’m doing.

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MIKE

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Reader celebrating great response to daratumumab

Posted on October 14 2015 by Pat Killingsworth

I’m often said our readers are my best resource. Early reports about the new immunotherapy, daratumumab, have been good. Mike, from North Carolina, recently enrolled in a dara trial. He emailed me about how great it’s working for him and agreed to share an email he sent his friends, trumpeting the early results. Here’s a modified excerpt, along with a congratulatory note from his myeloma specialist:

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Updated version of my New Therapies book available NOW!

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Updated version of my New Therapies book available NOW!

Posted on September 18 2015 by Pat Killingsworth

What did I do while I was stuck in Iowa waiting for test results and harvesting my stem cells? I updated two of my books, New Myeloma Therapies from a Patient’s Perspective, and Financial Aid for Myeloma Patients and Caregivers. The New Therapies book has shipped and is ready for sale.

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Alarming news from UK: No panobinostat, pomalidomide or Revlimid

Posted on September 16 2015 by Pat Killingsworth

Say it ain’t so! Don’t get diagnosed with multiple myeloma in England, Northern Ireland, Scotland or Wales. New austerity measures could result in an early death sentence for our brothers and sisters with myeloma in the UK. I wasn’t planning to write about this today, but I became so upset after reading an article on PharmaTimes.com last night, I felt I needed to alert our readers.

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Help with peripheral neuropathy A to Z

Posted on August 31 2015 by Pat Killingsworth

As promised, here’s a comprehensive list of drugs and supplements that readers use to help battle peripheral neuropathy (PN) symptoms:

Comments (7)

DR Richardson

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BREAKING NEWS: Daratumumab pushes forward toward FDA approval

Posted on August 27 2015 by Pat Killingsworth

Important news as the promising new immunotherapy, daratumumab, continues to move swiftly toward FDA approval.

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Tips to help control peripheral neuropathy (Part Three)

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Tips to help control peripheral neuropathy (Part Three)

Posted on August 25 2015 by Pat Killingsworth

Common peripheral neuropathy (PN) remedies not working for you? Or maybe you’d like to try something new in addition to steps you’ve already taken to control symptoms. Here are additional suggestions made by fellow patients:

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Tips to help control peripheral neuropathy (Part Two)

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Tips to help control peripheral neuropathy (Part Two)

Posted on August 24 2015 by Pat Killingsworth

As promised, here are more ways to help minimize side effects of peripheral neuropathy (PN).

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Zometa

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Truth about bisphosphonates from a patient’s perspective

Posted on June 19 2015 by Pat Killingsworth

I field a lot of questions about bisphosphonates.  The two most commonly used for myeloma patients: Aredia and Zometa.

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DSCN0054_01

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It’s the dex!

Posted on April 28 2015 by Pat Killingsworth

Dr. Tricot chose to administer CcD every other week, so my bone marrow would have time to recover between cycles.  I started round two of my Cytoxan/Kyprolis/dexamethasone (CcD) yesterday afternoon.  If you recall, the combination really wiped me out two weeks ago.

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Cytoxan works surprisingly well for some patients

Posted on April 13 2015 by Pat Killingsworth

Such a simple abstract, with so many lessons to learn.  Example of how Cytoxan and dex–at low doses–helped a relapsed patient in kidney failure stay stable for almost two years:

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