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701, 2016

How and when to take dexamethasone

By |January 7th, 2016|Side effects, Supplements/Drugs, Tips|

Fellow multiple myeloma surivor, Nebraskan Jim Omel, is one of the smartest guys I know. A retired physician, Jim works tirelessly to help his fellow patients. Readers often ask me if it matters when they take their dexamethasone. Scheduled to start consolidation therapy this week, I’ve been wondering about it, too.

2312, 2015

Canadian patients need help getting daratumumab

By |December 23rd, 2015|Supplements/Drugs, Support|

My good friend from north of the border, Nancy Shamanna, asked me to share this link to a survey for patients that have taken daratumumab (Darzalex). She’s hoping a positive response might move Canadian officials to adopt the new immunotherapy sooner rather than later:

2511, 2015

Financial aid: Takeda wants to help. Lets work together

By |November 25th, 2015|News, Research, Supplements/Drugs, Therapy|

I had an opportunity to interview several Takeda Pharmaceutical team members about the company’s new oral, proteasome inhibitor, Ninlaro (ixazomib), yesterday afternoon.

2411, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part Four)

By |November 24th, 2015|Nutrition, Research, Supplements/Drugs, Therapy|

Following the news that not one but two new myeloma therapies are newly FDA approved, is it possible that the diabetes drug, meformin, could be a third? Before I post the fourth installment of Danny Parker’s series, I wanted to update everyone about how I’m holding up.

2111, 2015

Ninlaro should be a great drug, but storm clouds on the horizon

By |November 21st, 2015|News, Research, Side effects, Supplements/Drugs, Support, Therapy, Tips|

By most accounts, ixazomib (trade name, Ninlaro) should work as well or even better than Velcade. Preliminary reports are hopeful that adverse side effects may be fewer and more tolerable, too. “But storm clouds on the horizon?”

2011, 2015

BREAKING NEWS: An historic week for multiple myeloma therapy

By |November 20th, 2015|News, Research, Supplements/Drugs, Therapy|

The FDA approved Takeda’s oral proteasome inhibitor, ixazomib, late this morning. First daratumumab on on Monday and now ixazomib today.

1711, 2015

Daratumumab (Darzalex) FDA approved for relapsed myeloma patients

By |November 17th, 2015|News, Research, Supplements/Drugs, Therapy|

According to officials at the FDA, yesterday “the U.S. Food and Drug Administration granted accelerated approval for Darzalex (daratumumab) to treat patients with multiple myeloma who have received at least three prior treatments.”

1611, 2015

BREAKING NEWS: FDA approves daratumumab

By |November 16th, 2015|News, Supplements/Drugs, Therapy|

I expected daratumumab to garner FDA approval sometime after ASH. So when I saw a news alert earlier today announcing that Darzalex had been approved, I didn’t pay any attention. But it didn’t take long for me to figure out that Darzalex is the new trade name for daratumumab. By any name, this is wonderful […]

311, 2015

More good news: Daratumumab follow-up

By |November 3rd, 2015|About Pat, Inspirational, Supplements/Drugs, Transplants|

Remember the good news that Mike from North Carolina shared with us last month?
Reader celebrating great response to daratumumab

1910, 2015

Waiting for the next shoe to drop

By |October 19th, 2015|About Pat, Supplements/Drugs|

Here’s an update about how I’m doing.

1410, 2015

Reader celebrating great response to daratumumab

By |October 14th, 2015|News, Side effects, Supplements/Drugs, Therapy, Transplants|

I’m often said our readers are my best resource. Early reports about the new immunotherapy, daratumumab, have been good. Mike, from North Carolina, recently enrolled in a dara trial. He emailed me about how great it’s working for him and agreed to share an email he sent his friends, trumpeting the early results. Here’s a […]

1809, 2015

Updated version of my New Therapies book available NOW!

By |September 18th, 2015|About Pat, Books, Research, Supplements/Drugs, Tips|

What did I do while I was stuck in Iowa waiting for test results and harvesting my stem cells? I updated two of my books, New Myeloma Therapies from a Patient’s Perspective, and Financial Aid for Myeloma Patients and Caregivers. The New Therapies book has shipped and is ready for sale.

1609, 2015

Alarming news from UK: No panobinostat, pomalidomide or Revlimid

By |September 16th, 2015|News, Supplements/Drugs|

Say it ain’t so! Don’t get diagnosed with multiple myeloma in England, Northern Ireland, Scotland or Wales. New austerity measures could result in an early death sentence for our brothers and sisters with myeloma in the UK. I wasn’t planning to write about this today, but I became so upset after reading an article on […]

3108, 2015

Help with peripheral neuropathy A to Z

By |August 31st, 2015|Caregivers, Side effects, Supplements/Drugs, Tips|

As promised, here’s a comprehensive list of drugs and supplements that readers use to help battle peripheral neuropathy (PN) symptoms:

2708, 2015

BREAKING NEWS: Daratumumab pushes forward toward FDA approval

By |August 27th, 2015|News, Research, Side effects, Supplements/Drugs, Tips|

Important news as the promising new immunotherapy, daratumumab, continues to move swiftly toward FDA approval.

2508, 2015

Tips to help control peripheral neuropathy (Part Three)

By |August 25th, 2015|Nutrition, Side effects, Supplements/Drugs, Tips|

Common peripheral neuropathy (PN) remedies not working for you? Or maybe you’d like to try something new in addition to steps you’ve already taken to control symptoms. Here are additional suggestions made by fellow patients:

2408, 2015

Tips to help control peripheral neuropathy (Part Two)

By |August 24th, 2015|Side effects, Supplements/Drugs, Tips|

As promised, here are more ways to help minimize side effects of peripheral neuropathy (PN).

1906, 2015

Truth about bisphosphonates from a patient’s perspective

By |June 19th, 2015|About Pat, Research, Side effects, Supplements/Drugs, Tips|

I field a lot of questions about bisphosphonates.  The two most commonly used for myeloma patients: Aredia and Zometa.

2804, 2015

It’s the dex!

By |April 28th, 2015|About Pat, Side effects, Supplements/Drugs|

Dr. Tricot chose to administer CcD every other week, so my bone marrow would have time to recover between cycles.  I started round two of my Cytoxan/Kyprolis/dexamethasone (CcD) yesterday afternoon.  If you recall, the combination really wiped me out two weeks ago.

1304, 2015

Cytoxan works surprisingly well for some patients

By |April 13th, 2015|Research, Supplements/Drugs|

Such a simple abstract, with so many lessons to learn.  Example of how Cytoxan and dex–at low doses–helped a relapsed patient in kidney failure stay stable for almost two years:
Long-term Control in a Patient with Refractory Multiple Myeloma by Oral Cyclophosphamide and Dexamethasone