Please Subscribe to get a daily link to Pat's blog via email

Subscribe!

Your privacy is important to us. We will never spam you and keep your personal data secure.

Supplements/Drugs

Home/Supplements/Drugs
23 12, 2015

Canadian patients need help getting daratumumab

Tags: , , |0 Comments

My good friend from north of the border, Nancy Shamanna, asked me to share this link to a survey for patients that have taken daratumumab (Darzalex). She's hoping a positive response might move Canadian officials to adopt the new immunotherapy sooner rather than later: Myeloma Canada seeks patient and caregiver treatment input Dear patient/caregiver, Myeloma

25 11, 2015

Financial aid: Takeda wants to help. Lets work together

Tags: , , , , , , , |6 Comments

I had an opportunity to interview several Takeda Pharmaceutical team members about the company's new oral, proteasome inhibitor, Ninlaro (ixazomib), yesterday afternoon. I have heard from dozens of patients who find themselves stuck paying thousands of dollars out-of-pocket for two established oral chemotherapy drugs, Revlimid and Pomalyst. I'm concerned that the same obstacles might face

24 11, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part Four)

Tags: , |9 Comments

Following the news that not one but two new myeloma therapies are newly FDA approved, is it possible that the diabetes drug, meformin, could be a third? Before I post the fourth installment of Danny Parker's series, I wanted to update everyone about how I'm holding up. Following my first auto stem cell transplant this

16 11, 2015

BREAKING NEWS: FDA approves daratumumab

Tags: , , |0 Comments

I expected daratumumab to garner FDA approval sometime after ASH. So when I saw a news alert earlier today announcing that Darzalex had been approved, I didn't pay any attention. But it didn't take long for me to figure out that Darzalex is the new trade name for daratumumab. By any name, this is wonderful

14 10, 2015

Reader celebrating great response to daratumumab

Tags: , |10 Comments

I'm often said our readers are my best resource. Early reports about the new immunotherapy, daratumumab, have been good. Mike, from North Carolina, recently enrolled in a dara trial. He emailed me about how great it's working for him and agreed to share an email he sent his friends, trumpeting the early results. Here's a

31 08, 2015

Help with peripheral neuropathy A to Z

Tags: , , |7 Comments

As promised, here's a comprehensive list of drugs and supplements that readers use to help battle peripheral neuropathy (PN) symptoms: Acetyl L-carnitine - Important amino acid that might help. It has the added benefit of being credited with helping improve memory in Alzheimer’s patients–those of us with chemo brain can use all the help we

27 08, 2015

BREAKING NEWS: Daratumumab pushes forward toward FDA approval

Tags: , , , , |1 Comment

Important news as the promising new immunotherapy, daratumumab, continues to move swiftly toward FDA approval. My friends at Genmab and Jannsen in the Netherlands emailed me details last evening, along with some helpful background information to review: Daratumumab is an investigational human anti-CD38 monoclonal antibody that received Breakthrough Therapy Designation from the FDA in May,

25 08, 2015

Tips to help control peripheral neuropathy (Part Three)

Tags: , |9 Comments

Common peripheral neuropathy (PN) remedies not working for you? Or maybe you'd like to try something new in addition to steps you've already taken to control symptoms. Here are additional suggestions made by fellow patients: Suzanne suggests, if the neuropathy get too annoying, ask your Doctor to put you on a small dose of nortriptline;

28 04, 2015

It’s the dex!

Tags: , , , |6 Comments

Dr. Tricot chose to administer CcD every other week, so my bone marrow would have time to recover between cycles.  I started round two of my Cytoxan/Kyprolis/dexamethasone (CcD) yesterday afternoon.  If you recall, the combination really wiped me out two weeks ago. So I get Kyprolis infusions (common name, carfilzomib; hence the small "c") on

13 04, 2015

Cytoxan works surprisingly well for some patients

Tags: , |10 Comments

Such a simple abstract, with so many lessons to learn.  Example of how Cytoxan and dex--at low doses--helped a relapsed patient in kidney failure stay stable for almost two years: Long-term Control in a Patient with Refractory Multiple Myeloma by Oral Cyclophosphamide and Dexamethasone Abstract Background: Prognosis of patients with multiple myeloma (MM) has substantially