Please Subscribe to get a daily link to Pat's blog via email


Your privacy is important to us. We will never spam you and keep your personal data secure.


25 03, 2015

Bad news from my Mayo Clinic specialist

Tags: , , , |24 Comments

At the end of Saturday's presentations I shared something very personal with our group. I wrote a five part series of posts after I returned from seeing Dr. Tricot in Iowa.  To review, Dr. Tricot recommended that I immediately switch my current treatment regimen from pomalidomide and dex to Kyprolis, Cytoxan and dex.  Assuming it

8 03, 2015

Experts discuss new drugs likely to be approved by FDA

Tags: , , |0 Comments posted a six member panel discussion about the two experimental drugs most likely to be approved next by the FDA: elotuzumab and ixazomib (MLN9708). The impressive group of panelists included doctors James R. Berenson, Sundar Jagannath, Shaji Kumar, Sagar Lonial, Keith K. Stewart and Jeffrey A. Zonder.  Here's a write-up about the exchange, along

23 02, 2015

Myeloma therapy advances big and small

Tags: , , , |12 Comments

Speaking of new treatment options, here's an excerpt from an excellent summary of what I consider to be "stopgap" myeloma therapy measures until new immunotherapy technology moves front and center: Treatment Triplets Offer New Strategies in Relapsed Multiple Myeloma Anita T. Shaffer - Published Online: Friday, February 20, 2015 The treatment options for patients

19 01, 2015

Update: ARRY-520

Tags: , , , |3 Comments

At the American Society of Hematology (ASH) meetings in San Francisco last December, I had a chance to sit down with Selena Rush, Director of Clinical Operations at Array Biopharma.  Array manufactures the promising new myeloma therapy, ARRY-520 (filanesib). I had two reasons to meet with Selena.  First, to get an update on ARRY-520; there

18 11, 2014

Early myeloma related ASH announcements

Tags: , , , , , |5 Comments

I've very excited!  Yesterday my registration materials arrived for next month's American Society of Hematology (ASH) annual meetings in San Francisco.  And like clockwork, researchers and pharmaceutical companies have started issuing press releases promoting presentations featuring clinical trial results to be presented there. Here are two early examples.  Keep in mind that a lot new

31 10, 2014

Pat’s myeloma therapy plan

Tags: , , , , |10 Comments

Thank God pomalidomide is working for me!  But what do we do once it's not?  Dr. Roy and I had a chance to discuss that on Monday. First the good news.  Dr. Roy's gut feeling is that POM should work well for quite some time.  And statistics back him up.  Patients that respond like I

22 10, 2014

Curcumin, communication and computers

Tags: , |11 Comments

Sometimes I suffer from techno paralysis. I want to apologize to anyone that has tried to reach me via email the last two days. When using an email that's attached to a registered domain name, an organization or business needs to pay a company to host the email. I had planned to switch companies and

6 10, 2014

60 Minutes broadcast investigates high cost of blood cancer drugs

Tags: , , , , , |26 Comments

I have expressed concern about the high cost of chemotherapy meds for me and my fellow multiple myeloma patients a number of times.  So last night's 60 Minutes report about it really hit home. Here is an excerpt of the transcript that hits closest to home, featuring M.D. Anderson oncologist, Dr. Hagop Kantarjian discussing Gleevec,

28 09, 2014

Which new myeloma drug will the FDA approve next?

Tags: , , , , |7 Comments

There are a half dozen experimental anti-myeloma drugs nearing the end of the research pipeline.  Which is most likely to be approved and when? A biologic immunotherapy drug like elotuzumab or daratumumab?  Millennium's new oral proteasome inhibitor, MLN9708? Although it only works well when combined with another drug like Revlimid, elotuzumab is the farthest along. 

1 09, 2014

Medical marijuana up close and personal

1 Comment

The group leader from my former support group on Florida's Nature Coast, forwarded me this article about medical marijuana and some of the Floridians that use it.  Like a lot of states, pot isn't legal here yet. Here's an excerpt from yesterday's Tampa Bay Times, featuring another member of the group: LECANTO — Pot-smoking cancer

15 08, 2014

IP6 follow-up

Tags: , , |0 Comments

A few days ago I wrote a skeptical post about a supplement called IP6.  I have received a number of comments and emails supporting the use of IP6 since then.  I'm good with that.  It may or may not help slow the advance of multiple myeloma. Susierose kindly forwarded me this research article about IP6

13 08, 2014

Is immunosupplement, IP6, the real deal?

Tags: , , |9 Comments

Anyone familiar with a supplement called IP6?  A reader, Richard, swears it has stopped his myeloma in its tracks when other more conventional meds weren't helping at all. Myeloma Cinderella's suzierose must be in contact with Richard, too.  I see she wrote a post about it back in January: Dr. Shamsuddin Cancer Researcher and IP6