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204, 2015

Leading myeloma specialist speaks out against high cost of chemo

By |April 2nd, 2015|News, Supplements/Drugs|

While I feverishly work to contact my transplant coordinator at Cigna, exchange faxes and emails with Iowa, Mayo and my local 21st Century Oncology office, life goes on.  I’ve always respected Dr. Rajkumar at Mayo Clinic in Minnesota.  He takes care of his patients and tries to keep an eye on costs:
Health beat: Cancer drug […]

2503, 2015

Bad news from my Mayo Clinic specialist

By |March 25th, 2015|About Pat, Diagnostics, Inspirational, Supplements/Drugs|

At the end of Saturday’s presentations I shared something very personal with our group.

1803, 2015

More evidence curcumin works; but be careful

By |March 18th, 2015|News, Research, Supplements/Drugs, Tips|

More evidence that curcumin may help slow multiple myeloma.  Did you know that the spice derivative acts as a blood thinner?  I didn’t.  For those of us taking blood thinners like warfarin and Xarelto, I’m wondering if high doses of curcumin alone might be enough to help prevent blood clots caused by IMiDs?

803, 2015

Experts discuss new drugs likely to be approved by FDA

By |March 8th, 2015|News, Supplements/Drugs, Therapy| posted a six member panel discussion about the two experimental drugs most likely to be approved next by the FDA: elotuzumab and ixazomib (MLN9708).

2702, 2015

Supplement helps control my PM leg cramps

By |February 27th, 2015|About Pat, Supplements/Drugs, Tips|

Leg cramps.  I’ve been trying to figure out how to stop them for years.

2402, 2015

Approve panobinostat despite risk of serious side effects? Why not?

By |February 24th, 2015|News, Side effects, Supplements/Drugs, Therapy|

I promised an update on yesterday’s surprise FDA approval of panobinostat.  I hope the controversial drug works better than it’s new trade name: Farydak.  Who the heck came up with that?

2302, 2015

Myeloma therapy advances big and small

By |February 23rd, 2015|Inspirational, Research, Supplements/Drugs|

Speaking of new treatment options, here’s an excerpt from an excellent summary of what I consider to be “stopgap” myeloma therapy measures until new immunotherapy technology moves front and center:
Treatment Triplets Offer New Strategies in Relapsed Multiple Myeloma
Anita T. Shaffer –
Published Online: Friday, February 20, 2015
The treatment options for patients with relapsed/refractory multiple myeloma […]

402, 2015

New Therapies: M.D Anderson’s myeloma expert: Dr. Robert Orlowski

By |February 4th, 2015|News, Side effects, Supplements/Drugs, Therapy|

I feel like I know Dr. Robert Orlowski well.  We have spoken several times, in person, via email and on the radio during Cure Talk interviews.  Always eager to help patients learn more, Dr. Orlowski recently did an interview with Crowd Care Foundation founder, Jenny Ahlstrom, on Myeloma Crowd Radio.

1901, 2015

Update: ARRY-520

By |January 19th, 2015|Research, Side effects, Supplements/Drugs, Therapy|

At the American Society of Hematology (ASH) meetings in San Francisco last December, I had a chance to sit down with Selena Rush, Director of Clinical Operations at Array Biopharma.  Array manufactures the promising new myeloma therapy, ARRY-520 (filanesib).

1012, 2014

Brave, wounded soldiers: myeloma therapy can really beat us up!

By |December 10th, 2014|About Pat, Inspirational, Side effects, Supplements/Drugs|

I’m going to be continuing my series with tips to help deal with chemotherapy side effects when the dust clears after ASH.  But speaking with a number of myeloma survivors in San Francisco got me thinking.  What is the cumulative effect of myeloma therapy on our bodies?

1811, 2014

Early myeloma related ASH announcements

By |November 18th, 2014|Diagnostics, News, Research, Supplements/Drugs, Therapy|

I’ve very excited!  Yesterday my registration materials arrived for next month’s American Society of Hematology (ASH) annual meetings in San Francisco.  And like clockwork, researchers and pharmaceutical companies have started issuing press releases promoting presentations featuring clinical trial results to be presented there.

3110, 2014

Pat’s myeloma therapy plan

By |October 31st, 2014|About Pat, Supplements/Drugs, Therapy, Transplants|

Thank God pomalidomide is working for me!  But what do we do once it’s not?  Dr. Roy and I had a chance to discuss that on Monday.

2210, 2014

Curcumin, communication and computers

By |October 22nd, 2014|About Pat, Supplements/Drugs, Tips, Transplants|

Sometimes I suffer from techno paralysis.

610, 2014

60 Minutes broadcast investigates high cost of blood cancer drugs

By |October 6th, 2014|News, Research, Supplements/Drugs|

I have expressed concern about the high cost of chemotherapy meds for me and my fellow multiple myeloma patients a number of times.  So last night’s 60 Minutes report about it really hit home.

2809, 2014

Which new myeloma drug will the FDA approve next?

By |September 28th, 2014|Research, Supplements/Drugs|

There are a half dozen experimental anti-myeloma drugs nearing the end of the research pipeline.  Which is most likely to be approved and when?

2009, 2014

Tired of taking tablets and capsules? Chew supplement gum!

By |September 20th, 2014|Nutrition, Supplements/Drugs, Tips|

Chewing gum: the newest way to take daily supplements?  I wrote a pair of posts about it recently on

409, 2014

How do outsiders view multiple myeloma?

By |September 4th, 2014|Research, Supplements/Drugs, Therapy, Transplants|

Those of us in the online myeloma community live in an information bubble of sorts.  We learn, understand and use myeloma related vocabulary.  After a while it becomes second nature.  But how does the outside world view our cancer?  How can they begin to understand what it’s like living this way?

109, 2014

Medical marijuana up close and personal

By |September 1st, 2014|News, Side effects, Supplements/Drugs|

The group leader from my former support group on Florida’s Nature Coast, forwarded me this article about medical marijuana and some of the Floridians that use it.  Like a lot of states, pot isn’t legal here yet.

1508, 2014

IP6 follow-up

By |August 15th, 2014|Research, Supplements/Drugs, Tips|

A few days ago I wrote a skeptical post about a supplement called IP6.  I have received a number of comments and emails supporting the use of IP6 since then.  I’m good with that.  It may or may not help slow the advance of multiple myeloma.

1308, 2014

Is immunosupplement, IP6, the real deal?

By |August 13th, 2014|Research, Supplements/Drugs|

Anyone familiar with a supplement called IP6?  A reader, Richard, swears it has stopped his myeloma in its tracks when other more conventional meds weren’t helping at all.