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808, 2014

Let’s have some fun: Rate your favorite pain killers

By |August 8th, 2014|About Pat, Side effects, Supplements/Drugs, Tips|

Helping a good friend try and balance her pain meds after surgery last week, and writing Monday’s post got me thinking.  What are my favorite pain killers?  My drugs of choice?

707, 2014

Weighing pros and cons of L-glutamine

By |July 7th, 2014|Nutrition, Research, Supplements/Drugs, Tips|

Talk about conflicting data!   According to a number of researchers, the amino acid, L-glutamine, may be bad for multiple myeloma patients.  Yet taken in large enough doses it clearly helps many control their peripheral neuropathy.

1906, 2014

Why it’s so important to be an informed patient

By |June 19th, 2014|About Pat, Caregivers, News, Supplements/Drugs, Tips|

I’m constantly harping on how important it is to be an informed patient.  I referred to it several times this weekend: “Some patients can’t even name the chemotherapy that they’re on!  That’s fine, as long as nothing goes wrong.”

2605, 2014

New Phase 3 daratumumab clinical trial to start recruiting soon

By |May 26th, 2014|Supplements/Drugs|

Following Friday’s post about the release of important clinical trial data at the American Society of Clinical Oncology (ASCO) and European Hematology Association (EHA) meetings in June, Joe asked this:

1505, 2014

Myeloma survivors: be prepared for bacterial infections

By |May 15th, 2014|About Pat, Supplements/Drugs|

Danny Parker wrote a cautionary series of posts about why and how to avoid shingles last week.  He touched on other infection risks, but I would like to share some specifics about it.

305, 2014

Dealing with–and preventing–infections with myeloma (Part Two)

By |May 3rd, 2014|Supplements/Drugs, Tips|

Here’s Part Two of Danny Parker’s expose’ about ways to avoid the shingles virus and other infections:

105, 2014

Dealing with–and preventing–infections with myeloma (Part One)

By |May 1st, 2014|Side effects, Supplements/Drugs, Tips|

We haven’t heard from  lifestyle columnist and myeloma survivor, Danny Parker, since last year.  He’s been busy; Danny works as an engineer and spends much of his time in Europe.  But that isn’t the only reason.

2704, 2014

Proof clarithromycin can help overcome myeloma drug resistance

By |April 27th, 2014|News, Research, Supplements/Drugs, Therapy|

From what may be possible in the future to an easy way to temporarily overcome myeloma drug resistance now.

2504, 2014

Inability to focus and peripheral neuropathy–just another day!

By |April 25th, 2014|About Pat, News, Side effects, Supplements/Drugs, Tips|

I’m a mess.  Despite being my week off therapy, I’m having a heck of a time focusing.  And a more painful form of peripheral neuropathy recently emerged from a long, medicated nap.

1804, 2014

More about dexamethasone

By |April 18th, 2014|News, Side effects, Supplements/Drugs, Therapy|

I’ve recently received a lot of constructive criticism from readers that feel my doctors should reduce my weekly dexamethasone dose–or eliminate it altogether.

1604, 2014

Dr. Donald Abrams: “Cannabis does not cure cancer.”

By |April 16th, 2014|News, Research, Side effects, Supplements/Drugs, Tips|

What a fascinating, enlightening conversation!  An hour long broadcast wasn’t enough time to cover Cannabis for Cancer.

2802, 2014

BREAKING NEWS: Marizomib granted FDA orphan drug status

By |February 28th, 2014|News, Research, Supplements/Drugs|

Triphase Accelerator Corp. announced today that it’s new proteasome inhibitor, marizomib, has been granted orphan drug designation by the FDA’s Office of Orphan Products Development for the treatment of multiple myeloma.

2901, 2014

Demon dex: the indispensable drug myeloma patients love to hate (Part Two)

By |January 29th, 2014|Side effects, Supplements/Drugs, Tips|

Dexamethasone helps other myeloma therapies work better.  And it’s cheap.  Anyone ever have anything else good to say about dex?  Surprisingly, YES!

2801, 2014

Demon dex: the indispensable drug myeloma patients love to hate (Part One)

By |January 28th, 2014|About Pat, Books, Side effects, Supplements/Drugs, Tips|

Dexamethasone.  When compared to novel therapy agents like Revlimid and Velcade, it’s almost an afterthought.  But using it with most any myeloma therapy enhances effectiveness by 30 – 40%.

2601, 2014

Advice from cancer nutrition expert Dr. Donald Abrams

By |January 26th, 2014|Nutrition, Supplements/Drugs|

Last week I shared a number of useful suggestions made on-air by my special guest, Dr. Donald Abrahms, on our monthly Cure Talk broadcast.  Here are some more:

2101, 2014

Taking curcumin? Don’t forget the piperine!

By |January 21st, 2014|Research, Supplements/Drugs, Tips|

This news isn’t new, it’s just news to me: taking 20 mg of piperine enhances curcumin’s bio availability by up to 2000%.  2000%!

2001, 2014

Broadcast features expert nutritional advice for cancer patients

By |January 20th, 2014|Nutrition, Supplements/Drugs, Tips|

I was honored to be selected to host an on-air Cure Talk interview with oncologist and integrative medicine specialist, Dr. Donald Abrams Friday evening.  It’s a must listen for anyone concerned about nutrition and it’s impact on cancer.

2312, 2013

Can Marijuana and Cialis really kill myeloma cells?

By |December 23rd, 2013|Research, Supplements/Drugs|

Marijuana an anti-myeloma drug?  Researchers have been fiddling with using cannabidiol to help destroy myeloma cells for years.  Just having some fun with this.  Here’s a report from the British Isles with an update:

1112, 2013

Using Velcade one year may help patients live an extra 20 months!

By |December 11th, 2013|News, Supplements/Drugs, Therapy|

Sometimes important findings at ASH are lost in the rush to cover the hot, new therapies.  This data about the optimum amount of Velcade to take over time is significant.

912, 2013

Welcome to the wild wild west of myeloma therapy!

By |December 9th, 2013|News, Research, Supplements/Drugs|

Covering technical, four hour events like Friday’s pre-ASH symposium can be challenging; even grueling.  My peripheral neuropathy and back pain makes it hard to sit still and type on the fly.  And this year I’m trying to tweet simultaneously while blogging.