Archive | Support

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We all can’t be expected to become bicycling champions… Just keep moving!

Posted on April 24 2012 by Pat Killingsworth

I have been writing a lot about biking lately.

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Andy and Richard

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“Crazy Guy on a Bike” full of unexpected surprises

Posted on April 21 2012 by Pat Killingsworth

Wednesday evening I attended my local multiple myeloma support group’s monthly meeting.

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Dr. Rachid Baz

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News and views from “New Treatment Options” seminar last night at Moffitt

Posted on March 13 2012 by Pat Killingsworth

I attended a Florida Educational Advocacy Group event last evening at Moffitt Cancer Center in Tampa.  The topic:  New Treatment Options for Multiple Myeloma.

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Every community large enough to support a stand-alone cancer clinic should also feature a multiple myeloma support group

Posted on March 10 2012 by Pat Killingsworth

That’s right.  Every cancer clinic of any size should help promote and sponsor a multiple myeloma support group.  Every one.

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Watson Clinic Lakeland Florida

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Second opinions are important. So are attending support groups and joining clinical trials…

Posted on March 09 2012 by Pat Killingsworth

Wednesday I participated in a March is Myeloma Awareness Month even at the Watson Clinics in Lakeland, Florida.

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ASH 2009 037

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Am I becoming a myeloma “snob?” More about second opinions

Posted on March 08 2012 by Pat Killingsworth

I have been pushing the point about how important it is to get a second opinion prior to making any major therapy decision pretty hard lately.

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March is Multiple Myeloma Awareness Month

Posted on March 07 2012 by Pat Killingsworth

March is multiple myeloma awareness month.  Today I am making an appearance in Lakeland, Florida to help promote myeloma awareness.

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Hilton Head

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I will be speaking in South Carolina Tuesday

Posted on March 04 2012 by Pat Killingsworth

I wanted to let everyone know that I will be speaking to a myeloma support group in Hilton Head, South Carolina, Tuesday, March 6th at 11:30 am.

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Building a beach_168

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Sneak peak into drug company exhibits at ASH

Posted on February 18 2012 by Pat Killingsworth

Earlier in the week I promised to write a bit about the exhibit areas you find at ASH and ASCO events.

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ASH Patients large version

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Meet the IMF’s patient representatives from last year’s ASH

Posted on February 14 2012 by Pat Killingsworth

I’m home from the hospital, feeling better and settling-in for what I hope turns-out to be a great 2012.

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LLS Logo

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Wednesday’s support group melt-down

Posted on January 27 2012 by Pat Killingsworth

In addition to the myeloma support groups I speak to across the country, I attend two local groups here in Florida.

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I’m soooo sick!

Posted on January 26 2012 by Pat Killingsworth

I want to apologize.  I try to publish my posts each day by 10 am Eastern time.

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Medical Update: I want my old immune system back!

Posted on January 18 2012 by Pat Killingsworth

I have been traveling/flying every ten days or so lately–and it’s taking a toll on my day to day health.

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Dr. Don Benson in Ohio

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States continue to push equitable coverage for oral chemotherapy

Posted on January 17 2012 by Pat Killingsworth

While I was in San Diego at ASH, I covered an IMF activist training meeting.

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Reflections from my life-changing visit to Charlotte Saturday

Posted on January 12 2012 by Pat Killingsworth

Saturday I had the opportunity to speak to a wonderful support group in Charlotte, NC.

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News and views that you might have missed over the holiday…

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News and views that you might have missed over the holiday…

Posted on December 28 2011 by Pat Killingsworth

Last Wednesday, Californian Lori Puente stopped-in to visit our Nature Coast (Florida) Multiple Myeloma Support Group meeting and Christmas party.

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LLS support group event reminds me not to neglect the emotional side of living with cancer

Posted on December 15 2011 by Pat Killingsworth

Fresh off the plane from ASH in San Diego, last night I attended a special support group dinner meeting/seminar, hosted by Lourdes Arvelo with the Tampa area Leukemia & Lymphoma Society.

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AIRPLANE

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Flying the “friendly skies” isn’t so friendly, anymore. Thank God for my fellow myeloma patients!

Posted on November 09 2011 by Pat Killingsworth

Meeting multiple myeloma patients from other parts of the country always pumps me up!

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Mary Doyle With Davita Dialysis Featured Speaker At Nature Coast Multiple Myeloma Support Group Meeting Wednesday Evening

Posted on September 20 2011 by Pat Killingsworth

I have been sharing my experiences from last week’s support group tour the past few days… Speaking of support groups, one year ago, a fellow patient named Richard and I founded a new support group here near my new home north of Tampa.

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Over 50 Patients And Caregivers Attend Stillwater, Minnesota Multiple Myeloma Support Group Meeting

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Over 50 Patients And Caregivers Attend Stillwater, Minnesota Multiple Myeloma Support Group Meeting

Posted on September 19 2011 by Pat Killingsworth

Like many newly diagnosed multiple myeloma patients, I was lost, confused and angry for the first few months.

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