Please Subscribe to get a daily link to Pat's blog via email

Subscribe!

Your privacy is important to us. We will never spam you and keep your personal data secure.

Archive | Support

0206161422

Tags: , ,

Tough day for me and my blood

Posted on February 06 2016 by Pat Killingsworth

Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.

Comments (16)

David Bowie

Tags:

We need more open and honest conversations about multiple myeloma

Posted on January 22 2016 by Pat Killingsworth

One of my pet peeves: when celebrities don’t disclose the type of cancer that they’re battling. They could at least devulge it in their obituary. Most of the rest of us disclose it. Obviously I’ve done so much more. I’m not implying everyone needs to be as open as I am. But come on: inquiring minds want to know!

Comments (8)

MMRF 2015 myeloma year in review

Tags: , ,

MMRF 2015 myeloma year in review

Posted on January 21 2016 by Pat Killingsworth

I’m part of a Cure Talk Radio broadcast in a few hours featuring Multiple Myeloma Research Foundation co-founder, Anne Quinn Young. If you can’t listen live, I’ll pass along a link so you an listen later.

Comments (1)

Tags: ,

Medical Update: Stinky news

Posted on January 18 2016 by Pat Killingsworth

Rough weekend. As I explained in a post last week, I’m not used to backsliding–post transplant–once I start improving.

Comments (14)

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Posted on January 16 2016 by Pat Killingsworth

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:

Comments (1)

Anne Pacowta

Tags: , , , ,

Fast recovery thanks to support from so many amazing friends

Posted on January 14 2016 by Pat Killingsworth

It’s official. We didn’t win the Powerball jackpot. One of our tickets did match three numbers, so I should get most of my $20 back. Turns out there were three winners, so there “only” would have been 300 million available to donate for myeloma research. It would have been fun to see what kind of difference 300 million could have made, wouldn’t it?

Comments (2)

Tags: , , , , ,

Is it time to split my blog in two?

Posted on January 09 2016 by Pat Killingsworth

Speaking of dex (see Wednesday’s post), the much maligned steroid and a GI tract recovering from a pair of stem cell transplants and a three week long bout with C. diff don’t mix. My gut is in knots!

Comments (39)

SARA

Tags:

Rest in peace dearest Sara

Posted on January 08 2016 by Pat Killingsworth

These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week.

Comments (6)

Jenny’s family

Tags: , , , ,

Wall Street Journal article about myeloma hits a home run

Posted on January 06 2016 by Pat Killingsworth

Monday morning my email inbox lit up. A Wall Street Journal article–both online and in the hard copy edition–about the FDA’s unprecedented approval of three anti-myeloma drugs in less than a month was featured front and center.

Comments (2)

USC logo

Tags:

Hope springs eternal in 2016

Posted on January 01 2016 by Pat Killingsworth

Never a dull moment. Our end of Amelia Island lost power over the holiday. It happens a lot. Even when it isn’t windy, a heavy rain can leave us without power. The unusual part this time: our electricity was off for so long. It usually sputters back on after an hour or two.

Comments (6)

Hotel options for April Beach Party event

Tags:

Hotel options for April Beach Party event

Posted on December 30 2015 by Pat Killingsworth

It’s hard to believe that we’re only three months away from the 3rd Annual Pat’s Myeloma Beach Party. The event is a “party” in name only; there will be 15 myeloma experts on hand to address topics that last year’s attendees and readers feel are most important to them.

Comments (8)

An amazing day that exceeded unrealistic expectations

Tags:

An amazing day that exceeded unrealistic expectations

Posted on December 26 2015 by Pat Killingsworth

Sometimes Christmas day can be a letdown. Let’s face it; the media and retailers build it up so much it’s hard to live the idealized version. Am I right? That said, the time I spent today with Pattie, our Island Dog and Calypso Kitties was amazing. I didn’t even think about checking email or posting something until we got home from checking out Xmas lights and taking a walk on the beach under a full moon.

Comments (9)

Tags: , ,

Canadian patients need help getting daratumumab

Posted on December 23 2015 by Pat Killingsworth

My good friend from north of the border, Nancy Shamanna, asked me to share this link to a survey for patients that have taken daratumumab (Darzalex). She’s hoping a positive response might move Canadian officials to adopt the new immunotherapy sooner rather than later:

Comments (0)

Tags: , ,

More financial aid is on the way!

Posted on December 19 2015 by Pat Killingsworth

This is awesome news; another source of financial assistance for myeloma patients in need.

Comments (0)

LightTheNight-2

Tags: ,

This is why I do what I do

Posted on December 15 2015 by Pat Killingsworth

I experience countless emotional moments as I hear from myeloma patients and caregivers from around the country and sometimes, around the world. I wanted to share an exceptionally personal one with you here today.

Comments (8)

Ninlaro should be a great drug, but storm clouds on the horizon

Tags: , , , , ,

Ninlaro should be a great drug, but storm clouds on the horizon

Posted on November 21 2015 by Pat Killingsworth

By most accounts, ixazomib (trade name, Ninlaro) should work as well or even better than Velcade. Preliminary reports are hopeful that adverse side effects may be fewer and more tolerable, too. “But storm clouds on the horizon?”

Comments (26)

UW slippers

Tags: , , ,

Day 30: Diarrhea and dexamethasone

Posted on November 20 2015 by Pat Killingsworth

Day 30. 30 days since the first half of my 8 million+ stem cells were infused back into me up in Iowa City. I was suspicious of a conspiracy; that my cells would be altered and I’d emerge an Iowa Hawkeye. No way! I still bleed Badger Red.

Comments (12)

IMG_1124

Tags: ,

Blood Glucose, MGUS, Myeloma & Metformin (Part One)

Posted on November 18 2015 by Pat Killingsworth

Last month our old friend and guest columnist, Danny Parker, approached me about writing a multi-part series about his passion: helping to control multiple myeloma using a combination of lifestyle, diet and possibly complimentary drugs not normally used to treat myeloma.

Comments (2)

My old friend keeps on biking

Tags: , ,

My old friend keeps on biking

Posted on November 12 2015 by Pat Killingsworth

I’ve met some amazing people on my myeloma journey. One of the most memorable is my good friend, Andy Sninsky.

Comments (6)

PAT and PATTIE

Tags: , , , ,

Thank you rant

Posted on October 17 2015 by Pat Killingsworth

A number of you have already contributed to help CrowdCare Foundation fund a pair of cutting edge T cell trials in Germany and John Hopkins in Baltimore. THANK YOU! For those of you on-the-fence, I wanted to share some good news.

Comments (3)


Follow On Twitter!

Follow HelpWithMyeloma on Twitter

Archives