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602, 2016

Tough day for me and my blood

By |February 6th, 2016|About Pat, Side effects, Support, Transplants|

Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.

2201, 2016

We need more open and honest conversations about multiple myeloma

By |January 22nd, 2016|Caregivers, News, RIP, Support, Tips|

One of my pet peeves: when celebrities don’t disclose the type of cancer that they’re battling. They could at least devulge it in their obituary. Most of the rest of us disclose it. Obviously I’ve done so much more. I’m not implying everyone needs to be as open as I am. But come on: inquiring […]

2101, 2016

MMRF 2015 myeloma year in review

By |January 21st, 2016|News, Research, Support|

I’m part of a Cure Talk Radio broadcast in a few hours featuring Multiple Myeloma Research Foundation co-founder, Anne Quinn Young. If you can’t listen live, I’ll pass along a link so you an listen later.

1801, 2016

Medical Update: Stinky news

By |January 18th, 2016|About Pat, Caregivers, Side effects, Support, Tips|

Rough weekend. As I explained in a post last week, I’m not used to backsliding–post transplant–once I start improving.

1601, 2016

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

By |January 16th, 2016|About Pat, Caregivers, Inspirational, Nutrition, Research, Side effects, Support, Tips, Transplants|

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:
Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)

1401, 2016

Fast recovery thanks to support from so many amazing friends

By |January 14th, 2016|About Pat, Caregivers, Support, Transplants|

It’s official. We didn’t win the Powerball jackpot. One of our tickets did match three numbers, so I should get most of my $20 back. Turns out there were three winners, so there “only” would have been 300 million available to donate for myeloma research. It would have been fun to see what kind of […]

901, 2016

Is it time to split my blog in two?

By |January 9th, 2016|About Pat, Inspirational, Support|

Speaking of dex (see Wednesday’s post), the much maligned steroid and a GI tract recovering from a pair of stem cell transplants and a three week long bout with C. diff don’t mix. My gut is in knots!

801, 2016

Rest in peace dearest Sara

By |January 8th, 2016|Caregivers, Inspirational, RIP, Support, Tips|

These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week.

601, 2016

Wall Street Journal article about myeloma hits a home run

By |January 6th, 2016|About Pat, Caregivers, Inspirational, News, Research, Support|

Monday morning my email inbox lit up. A Wall Street Journal article–both online and in the hard copy edition–about the FDA’s unprecedented approval of three anti-myeloma drugs in less than a month was featured front and center.

101, 2016

Hope springs eternal in 2016

By |January 1st, 2016|About Pat, Inspirational, Support|

Never a dull moment. Our end of Amelia Island lost power over the holiday. It happens a lot. Even when it isn’t windy, a heavy rain can leave us without power. The unusual part this time: our electricity was off for so long. It usually sputters back on after an hour or two.

3012, 2015

Hotel options for April Beach Party event

By |December 30th, 2015|About Pat, News, Support|

It’s hard to believe that we’re only three months away from the 3rd Annual Pat’s Myeloma Beach Party. The event is a “party” in name only; there will be 15 myeloma experts on hand to address topics that last year’s attendees and readers feel are most important to them.

2612, 2015

An amazing day that exceeded unrealistic expectations

By |December 26th, 2015|About Pat, Inspirational, Support|

Sometimes Christmas day can be a letdown. Let’s face it; the media and retailers build it up so much it’s hard to live the idealized version. Am I right? That said, the time I spent today with Pattie, our Island Dog and Calypso Kitties was amazing. I didn’t even think about checking email or posting […]

2312, 2015

Canadian patients need help getting daratumumab

By |December 23rd, 2015|Supplements/Drugs, Support|

My good friend from north of the border, Nancy Shamanna, asked me to share this link to a survey for patients that have taken daratumumab (Darzalex). She’s hoping a positive response might move Canadian officials to adopt the new immunotherapy sooner rather than later:

1912, 2015

More financial aid is on the way!

By |December 19th, 2015|News, Support|

This is awesome news; another source of financial assistance for myeloma patients in need.

1512, 2015

This is why I do what I do

By |December 15th, 2015|About Pat, Caregivers, Inspirational, Support|

I experience countless emotional moments as I hear from myeloma patients and caregivers from around the country and sometimes, around the world. I wanted to share an exceptionally personal one with you here today.

2111, 2015

Ninlaro should be a great drug, but storm clouds on the horizon

By |November 21st, 2015|News, Research, Side effects, Supplements/Drugs, Support, Therapy, Tips|

By most accounts, ixazomib (trade name, Ninlaro) should work as well or even better than Velcade. Preliminary reports are hopeful that adverse side effects may be fewer and more tolerable, too. “But storm clouds on the horizon?”

2011, 2015

Day 30: Diarrhea and dexamethasone

By |November 20th, 2015|About Pat, Nutrition, Side effects, Support, Tips, Transplants|

Day 30. 30 days since the first half of my 8 million+ stem cells were infused back into me up in Iowa City. I was suspicious of a conspiracy; that my cells would be altered and I’d emerge an Iowa Hawkeye. No way! I still bleed Badger Red.

1811, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part One)

By |November 18th, 2015|Nutrition, Support, Tips|

Last month our old friend and guest columnist, Danny Parker, approached me about writing a multi-part series about his passion: helping to control multiple myeloma using a combination of lifestyle, diet and possibly complimentary drugs not normally used to treat myeloma.

1211, 2015

My old friend keeps on biking

By |November 12th, 2015|Inspirational, Support|

I’ve met some amazing people on my myeloma journey. One of the most memorable is my good friend, Andy Sninsky.

1710, 2015

Thank you rant

By |October 17th, 2015|About Pat, Caregivers, Research, Support|

A number of you have already contributed to help CrowdCare Foundation fund a pair of cutting edge T cell trials in Germany and John Hopkins in Baltimore. THANK YOU! For those of you on-the-fence, I wanted to share some good news.