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26 04, 2015

Musical tribute to myeloma patients

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Myeloma survivor and CrowdCare Foundation co-founder, Jenny Ahlstrom, is also an aspiring song writer.  Jenny's shy; she reluctantly performed for us last month at Pat's Myeloma Beach Party.  Great voice! Jenny has written a song about her battle with cancer; all proceeds of her new CD to be donated to CrowdCare.  Here's the link to

23 04, 2015

Update: Allo transplant recipient, David from Florida (Part Two)

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So we've heard from both of our most recent Patient Snapshot allogeneic (donor) stem cell transplant recipients.  As multiple myeloma goes, both are young, with kids and lovely, caring wives.  Tom from Ohio has had a more difficult time than expected from day one.  Things have gone a lot easier for David from Tampa.  Complications

21 04, 2015

Reader stories can help us make difficult therapy decisions

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As most of you know, I've been facing the toughest therapy decision of my eight year multiple myeloma journey.  But this week's series of posts aren't about me.  They are a culmination of what I've been working on for years: collecting patient testimonials and feedback that can help all of us make life extending, uber-informed

10 04, 2015

Next year’s Beach Party planning off to an early start

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One of the amazing things about the final day of this year's Beach Party: no one wanted to leave!  Instead, the 70 or so remaining patients and caregivers stayed, shared suggestions and started to help us plan next year's event.   Volunteers stepped forward, committees were formed.  Michele and Stephanie even started a Pat's Myeloma Beach

6 04, 2015


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It was difficult to get anything done today; our Wisconsin Badgers are playing Duke tonight for the National Championship. As regular readers know, Pattie and I are University of Wisconsin grads.  After knocking off undefeated Kentucky Saturday night, we almost booked plane tickets to Indianapolis to see the game.  But we're heading up to Boston

16 02, 2015

Another creative way to get the word out

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There are lots of different ways to get the word out about multiple myeloma.  Here's a fun, silly one, courtesy my newly adopted, North Florida support group doing the mambo for myeloma: There wasn't much room, so I volunteered to move up-front and mambo on my knees.  We're "dancing" to a modified version of

7 02, 2015

LLS announces travel assistance for myeloma patients

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My old friend, myeloma survivor Richard Blustein, shared some great financial aid news with me earlier this week: Another benefit for blood cancer patients. No other organization helps cancer patients like the LLS. This program will benefit those who must travel for specialized treatment. The Leukemia & Lymphoma Society's (LLS) Patient Travel Assistance Program is

21 01, 2015

Reader emails always enlightening


I receive a half dozen emails about a topic for every one comment you see after I publish a blog post.  I enjoy getting emails from readers.  Often they're uplifting, helping me power through another day.  And I get some of my best post ideas from them. Here are several examples: Earlier this week, Paul,

30 11, 2014

Managing chemotherapy side effects (Part Four)

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Yesterday I promised to address the two most powerful weapons a myeloma patient have in his or her cognitive arsenals: counseling and psycho-therapeutic drugs. Listen.  Good nutrition and supplements like curcumin may help slow myeloma down up front.  But on the back end?  It takes the most powerful therapeutic combinations to stop it.  I feel

4 11, 2014

Vote for candidates that will increase NCI funding

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Pollsters are constantly asking voters which issues are most important to them; jobs, national defense or various social issues.  I'm basically a one issue voter.  I want to see the National Institutes of Health (NIH) and National Cancer Institute's (NCI) decimated budgets restored--and then increased. Unfortunately, details like this are rarely discussed in today's world