Please Subscribe to get a daily link to Pat's blog via email

Subscribe!

Your privacy is important to us. We will never spam you and keep your personal data secure.

Archive | Therapy

Tags: ,

I’m not dead yet!

Posted on February 08 2016 by Pat Killingsworth

The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.

Comments (111)

0206161422

Tags: , ,

Tough day for me and my blood

Posted on February 06 2016 by Pat Killingsworth

Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.

Comments (16)

Tags: ,

My world turned upside down

Posted on February 06 2016 by Pat Killingsworth

As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.

Comments (35)

Dr. Guerrero

Tags: , ,

Medical mystery worthy of reality TV

Posted on February 05 2016 by Pat Killingsworth

I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!

Comments (3)

0129161046

Tags: ,

I’m celebrating 100 days post tandem today

Posted on February 01 2016 by Pat Killingsworth

It’s been 100 days since I received an infusion of over 8 million of my own stem cells in October. Even though it was my second stem cell transplant in less than six months, this is uncharted territory for me.

Comments (3)

0129160904a

Tags: ,

No pants? A comical look back at my trip to Iowa City

Posted on January 30 2016 by Pat Killingsworth

Back in December I experienced an unpleasant ordeal after I was blindsided by C. diff while traveling to the University of Iowa for follow up tests ten weeks after the second of my two stem cell transplants. But as those close to me know, there was a comical edge to my experience. Yesterday I discovered the transcript of a post I’d started, highlighting my crazy experience in Iowa City. Here’s an inside look at my “out of my clothes” experience.

Comments (14)

MEDS

Tags: , ,

Can they pump me full of any more meds?

Posted on January 25 2016 by Pat Killingsworth

Not to say that there weren’t hiccups, but I was administered my Kyprolis IV late this morning. I took 40 mg dex, and 3 mg pomalidomide, after I learned my platelets had recovered enough to proceed. I tried to get a few things done this afternoon, but basically passed out.

Comments (6)

yawn

Tags: , ,

FDA expands access to Kyprolis. Big news?

Posted on January 24 2016 by Pat Killingsworth

Friday the FDA expanded it’s approval of how and when carfilzomib (Kyprolis) can be used. Trumpets sounded. I counted eleven industry news outlets that led with the story. My reaction? Big yawn.

Comments (12)

It shouldn’t be so hard to get excellent care

Tags: , , ,

It shouldn’t be so hard to get excellent care

Posted on January 20 2016 by Pat Killingsworth

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!

Comments (7)

PLATELETS

Tags: , , , , ,

Didn’t see that coming…

Posted on January 19 2016 by Pat Killingsworth

No fever. Resting heart rate down to 80 beats a minute. Oral supplementation at home brought my potassium and magnesium levels up to normal levels. My oncology nurse, Deb, started the IV in my left hand on the first stick Monday. What could go wrong?

Comments (18)

Tags: ,

Medical Update: Stinky news

Posted on January 18 2016 by Pat Killingsworth

Rough weekend. As I explained in a post last week, I’m not used to backsliding–post transplant–once I start improving.

Comments (14)

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Posted on January 16 2016 by Pat Killingsworth

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:

Comments (1)

Maintenance therapy side effects nothing to brush off

Tags: , , , , ,

Maintenance therapy side effects nothing to brush off

Posted on January 15 2016 by Pat Killingsworth

I’m part of the club: experiencing side effects caused–in part–by ongoing maintenance therapy.

Comments (16)

How and when to take dexamethasone

Tags: , , , ,

How and when to take dexamethasone

Posted on January 07 2016 by Pat Killingsworth

Fellow multiple myeloma surivor, Nebraskan Jim Omel, is one of the smartest guys I know. A retired physician, Jim works tirelessly to help his fellow patients. Readers often ask me if it matters when they take their dexamethasone. Scheduled to start consolidation therapy this week, I’ve been wondering about it, too.

Comments (12)

1213151142a

Tags: , , , , ,

Stem cell transplant fallout front and center in 2016 (Part Two)

Posted on January 05 2016 by Pat Killingsworth

I kicked off my 2016 posts yesterday this way: “Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects… Still plenty of drama to kick off 2016.”

Comments (10)

The power of combination therapies

Tags: , , ,

The power of combination therapies

Posted on January 02 2016 by Pat Killingsworth

New checkpoint inhibitor studies combining the experimental drug, Keytruda, with Revlimid, are working in patients who have become refractory to Revlimid.

Comments (4)

Key research breakthroughs at ASH

Tags: ,

Key research breakthroughs at ASH

Posted on December 29 2015 by Pat Killingsworth

Did you see the MMRF’s outline of important myeloma related news at ASH this year? Short and to the point.

Comments (0)

Carol Preston

Tags: , ,

My Patient Power interview at ASH

Posted on December 28 2015 by Pat Killingsworth

Saturday I shared a link to an interview Jenny Ahlstrom did with me the second day at ASH. Can’t get enough of me unabashedly sharing my opinions about myeloma therapy options on video? Then fasten your seatbelts! CLL survivor and dear friend, Carol Preston, interviewed me at ASH for Patient Power.

Comments (2)

Video highlights of my first few days at ASH

Tags: , ,

Video highlights of my first few days at ASH

Posted on December 26 2015 by Pat Killingsworth

Good friend and fellow myeloma survivor, Jenny Ahlstrom, is a lot better at the technical side of blogging than I am. She uses a lot of video on her site. Jenny interviewed me on Sunday at ASH. You can listen to it here:

Comments (4)

Happy Holidays! Catching up with our myeloma friends

Tags: , , ,

Happy Holidays! Catching up with our myeloma friends

Posted on December 24 2015 by Pat Killingsworth

I understand that all of my reader’s don’t celebrate Christmas. After all, myeloma doesn’t respect religious or political boundries; it’s an equal opportunity dose of misery. Even so, I thought that Christmas Eve might be the perfect time to catch up on how some of our friends we’ve been following this past year are doing.

Comments (0)


Follow On Twitter!

Follow HelpWithMyeloma on Twitter

Archives