Please Subscribe to get a daily link to Pat's blog via email

Subscribe!

Your privacy is important to us. We will never spam you and keep your personal data secure.

Diagnostics

Home/Therapy/Diagnostics
8 02, 2016

I’m not dead yet!

Tags: , |111 Comments

The commonly used name here for plasmapheresis is plasma exchange. I"m being hooked up for my third, three hour round of plasma exchange. Honestly, I'm in pretty bad shape. I'm not eating. I could give you a lot of technical information about my situation, but the bottom line is this: Five doctors and none can

6 02, 2016

My world turned upside down

Tags: , |35 Comments

As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed. I was devastated to get the news; with both Pattie and her sister working for Davita Dialysis, I've heard horror

5 02, 2016

Medical mystery worthy of reality TV

Tags: , , |3 Comments

I'm a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I've never had more blood drawn in my life! Let me pause here to apologize to a number of readers that commented following yesterday's post. Our WordPress blogging

20 01, 2016

It shouldn’t be so hard to get excellent care

Tags: , , , |7 Comments

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire! It's disheartening for me to admit it, but without a dedicated caregiver advocate--or patients like us that work tirelessly to stay up-to-date--it's likely that the care received by someone who isn't paying attention

18 12, 2015

An amazing emotional roller coaster ride

Tags: , , , |33 Comments

I promised to follow up on yesterday's amazing news. Dr. Tricot reassures me that my tests confirm there isn't any active myeloma left. Yet I didn't go into our meeting expecting such good news. Late Wednesday night I was able to take a sneak peek at my PET scan results Tuesday. I’m usually pretty good

16 10, 2015

Great news!

Tags: , , |18 Comments

I met with Dr. Tricot this morning for my pre-transplant check. As expected, I'm good to go. I wasn't expecting such encouraging, eye-opening test results. The report from yesterday's PET scan still aren't available online. But Dr. Tricot had them. After he carefully examined me and double checked my numbers, Dr. Tricot flashed a big

15 10, 2015

My tandem transplant schedule

Tags: , |6 Comments

Ready or not, I'm back in Iowa City, preparing to undergo my second modified stem cell transplant in less than four months. I was at the University of Iowa Cancer Center all day for tests. It was more grueling than I expected. Except for almost an hour wait, my second PET scan in two months

5 08, 2015

New myeloma staging system long overdue

Tags: , |8 Comments

I think most myeloma experts would agree: its time for a myeloma staging system that incorporates genetic risk assessment. Italian specialist, Dr. Palumbo, and his team are proposing docs worldwide use their new system. Health Day gave Dr. Palumbo a shout out yesterday: Revised staging system prognostic for multiple myeloma August 4th, 2015 (HealthDay)—The International