Please Subscribe to get a daily link to Pat's blog via email


Your privacy is important to us. We will never spam you and keep your personal data secure.

Archive | Diagnostics

Tags: ,

I’m not dead yet!

Posted on February 08 2016 by Pat Killingsworth

The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.

Comments (111)

Tags: ,

My world turned upside down

Posted on February 06 2016 by Pat Killingsworth

As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.

Comments (35)

Dr. Guerrero

Tags: , ,

Medical mystery worthy of reality TV

Posted on February 05 2016 by Pat Killingsworth

I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!

Comments (3)


Tags: ,

No pants? A comical look back at my trip to Iowa City

Posted on January 30 2016 by Pat Killingsworth

Back in December I experienced an unpleasant ordeal after I was blindsided by C. diff while traveling to the University of Iowa for follow up tests ten weeks after the second of my two stem cell transplants. But as those close to me know, there was a comical edge to my experience. Yesterday I discovered the transcript of a post I’d started, highlighting my crazy experience in Iowa City. Here’s an inside look at my “out of my clothes” experience.

Comments (14)

It shouldn’t be so hard to get excellent care

Tags: , , ,

It shouldn’t be so hard to get excellent care

Posted on January 20 2016 by Pat Killingsworth

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!

Comments (7)


Tags: , , , , ,

Didn’t see that coming…

Posted on January 19 2016 by Pat Killingsworth

No fever. Resting heart rate down to 80 beats a minute. Oral supplementation at home brought my potassium and magnesium levels up to normal levels. My oncology nurse, Deb, started the IV in my left hand on the first stick Monday. What could go wrong?

Comments (18)

More about Thursday’s great news

Tags: , , ,

More about Thursday’s great news

Posted on December 21 2015 by Pat Killingsworth

Thursday I ran an emotional post about being “myeloma free.” Everyone understands that’s only an expression, right? Few myeloma patients/survivors are ever truly cancer free.

Comments (28)

An amazing emotional roller coaster ride

Tags: , , ,

An amazing emotional roller coaster ride

Posted on December 18 2015 by Pat Killingsworth

I promised to follow up on yesterday’s amazing news. Dr. Tricot reassures me that my tests confirm there isn’t any active myeloma left.

Comments (33)

Blood sugar graph

Tags: , , ,

Blood Glucose, MGUS, Myeloma & Metformin (Part Three)

Posted on November 23 2015 by Pat Killingsworth

I don’t think I’ve ever slept as much as I did this weekend. Coming off my first pomalidomide/dex maintenance cycle, I hit the wall. If I didn’t know better I’d say my GI issues are improving. Time will tell. It’s been two steps forward, one back.

Comments (2)


Tags: , , ,

Blood Glucose, MGUS, Myeloma & Metformin (Part Two)

Posted on November 19 2015 by Pat Killingsworth

Could it be that newly diagnosed myeloma patients might benefit and live longer if prescribed the diabetes drug, metformin? Possibly relapsed patients, too? Here is the second installment of Danny Parker’s series:

Comments (4)


Tags: ,

There’s a light at the end of the tunnel–thank God it isn’t the big one!

Posted on October 27 2015 by Pat Killingsworth

Yesterday may well have been the worst day of my life. I’m guessing anyone that has undergone an auto or allo has had one or more of these. How the heck did we make it to the other side?

Comments (21)

Iowa stadium and hospital

Tags: , ,

Great news!

Posted on October 16 2015 by Pat Killingsworth

I met with Dr. Tricot this morning for my pre-transplant check. As expected, I’m good to go. I wasn’t expecting such encouraging, eye-opening test results.

Comments (18)

Tags: ,

My tandem transplant schedule

Posted on October 15 2015 by Pat Killingsworth

Ready or not, I’m back in Iowa City, preparing to undergo my second modified stem cell transplant in less than four months. I was at the University of Iowa Cancer Center all day for tests.

Comments (6)


Tags: ,

Dealing with pre-transplant jitters…

Posted on October 13 2015 by Pat Killingsworth

I saw my radiation oncologist today. Dr. Perkins is confident he can mop up any active lesions the second transplant doesn’t get.

Comments (23)

Dr. Tricot: “I’m pleased…”

Tags: , ,

Dr. Tricot: “I’m pleased…”

Posted on September 11 2015 by Pat Killingsworth

As you’ve probably guessed by now, Dr. Tricot is a man of few words. Not known to use superlatives, a comment like, “I’m pleased with your results,” jumps out at you. But before everyone gets too excited, I need to add an asterisk. Turns out things are complicated.

Comments (27)

IOWA 018

Tags: ,

My early transplant results look encouraging…

Posted on September 10 2015 by Pat Killingsworth

I don’t see Dr. Tricot until later today. But thanks to MyChart online patient portal, I had a chance to see enough of my test results yesterday to give me an idea what to expect.

Comments (19)

Tags: ,

Tomorrow’s tests key to my future

Posted on September 07 2015 by Pat Killingsworth

I’m on my way! Iowa City, here I come. I can’t say I’m looking forward to undergoing another bone marrow biopsy (BMB) tomorrow morning, but it shouldn’t be a big deal after I down a shot or two of their passion pink, mind numbing elixir; if all goes as planned, I should be feeling no pain.

Comments (17)


Tags: , , ,

My Medical: Good news, but myeloma storm clouds on horizon

Posted on August 28 2015 by Pat Killingsworth

As promised, I’m glad to share an update about how I’m doing, 48 days post-transplant. So far, so good!

Comments (14)

New myeloma staging system long overdue

Tags: ,

New myeloma staging system long overdue

Posted on August 05 2015 by Pat Killingsworth

I think most myeloma experts would agree: its time for a myeloma staging system that incorporates genetic risk assessment. Italian specialist, Dr. Palumbo, and his team are proposing docs worldwide use their new system.

Comments (8)


Tags: , , ,

Crazy medical myeloma Monday!

Posted on August 04 2015 by Pat Killingsworth

What did you do on Monday? Mine was wall to wall medical. At least the news was all GREAT!

Comments (19)

Follow On Twitter!

Follow HelpWithMyeloma on Twitter