Please Subscribe to get a daily link to Pat's blog via email


Your privacy is important to us. We will never spam you and keep your personal data secure.


802, 2016

I’m not dead yet!

By |February 8th, 2016|About Pat, Diagnostics, Side effects, Transplants|

The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.

602, 2016

My world turned upside down

By |February 6th, 2016|About Pat, Diagnostics, Side effects, Transplants|

As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.

502, 2016

Medical mystery worthy of reality TV

By |February 5th, 2016|About Pat, Diagnostics, Side effects, Transplants|

I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!

3001, 2016

No pants? A comical look back at my trip to Iowa City

By |January 30th, 2016|About Pat, Diagnostics|

Back in December I experienced an unpleasant ordeal after I was blindsided by C. diff while traveling to the University of Iowa for follow up tests ten weeks after the second of my two stem cell transplants. But as those close to me know, there was a comical edge to my experience. Yesterday I discovered […]

2001, 2016

It shouldn’t be so hard to get excellent care

By |January 20th, 2016|About Pat, Diagnostics, Side effects, Tips, Transplants|

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!

1901, 2016

Didn’t see that coming…

By |January 19th, 2016|About Pat, Diagnostics, Side effects, Transplants|

No fever. Resting heart rate down to 80 beats a minute. Oral supplementation at home brought my potassium and magnesium levels up to normal levels. My oncology nurse, Deb, started the IV in my left hand on the first stick Monday. What could go wrong?

2112, 2015

More about Thursday’s great news

By |December 21st, 2015|About Pat, Diagnostics, Side effects|

Thursday I ran an emotional post about being “myeloma free.” Everyone understands that’s only an expression, right? Few myeloma patients/survivors are ever truly cancer free.

1812, 2015

An amazing emotional roller coaster ride

By |December 18th, 2015|About Pat, Diagnostics, News, Side effects, Transplants|

I promised to follow up on yesterday’s amazing news. Dr. Tricot reassures me that my tests confirm there isn’t any active myeloma left.

2311, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part Three)

By |November 23rd, 2015|Diagnostics, Nutrition, Research|

I don’t think I’ve ever slept as much as I did this weekend. Coming off my first pomalidomide/dex maintenance cycle, I hit the wall. If I didn’t know better I’d say my GI issues are improving. Time will tell. It’s been two steps forward, one back.

1911, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part Two)

By |November 19th, 2015|Diagnostics, Nutrition, Research, Side effects|

Could it be that newly diagnosed myeloma patients might benefit and live longer if prescribed the diabetes drug, metformin? Possibly relapsed patients, too? Here is the second installment of Danny Parker’s series:

2710, 2015

There’s a light at the end of the tunnel–thank God it isn’t the big one!

By |October 27th, 2015|About Pat, Diagnostics, Side effects, Transplants|

Yesterday may well have been the worst day of my life. I’m guessing anyone that has undergone an auto or allo has had one or more of these. How the heck did we make it to the other side?

1610, 2015

Great news!

By |October 16th, 2015|About Pat, Diagnostics, Inspirational, News|

I met with Dr. Tricot this morning for my pre-transplant check. As expected, I’m good to go. I wasn’t expecting such encouraging, eye-opening test results.

1510, 2015

My tandem transplant schedule

By |October 15th, 2015|About Pat, Diagnostics, Side effects|

Ready or not, I’m back in Iowa City, preparing to undergo my second modified stem cell transplant in less than four months. I was at the University of Iowa Cancer Center all day for tests.

1310, 2015

Dealing with pre-transplant jitters…

By |October 13th, 2015|About Pat, Diagnostics, News|

I saw my radiation oncologist today. Dr. Perkins is confident he can mop up any active lesions the second transplant doesn’t get.

1109, 2015

Dr. Tricot: “I’m pleased…”

By |September 11th, 2015|About Pat, Diagnostics, News, Side effects, Transplants|

As you’ve probably guessed by now, Dr. Tricot is a man of few words. Not known to use superlatives, a comment like, “I’m pleased with your results,” jumps out at you. But before everyone gets too excited, I need to add an asterisk. Turns out things are complicated.

1009, 2015

My early transplant results look encouraging…

By |September 10th, 2015|About Pat, Diagnostics, Transplants|

I don’t see Dr. Tricot until later today. But thanks to MyChart online patient portal, I had a chance to see enough of my test results yesterday to give me an idea what to expect.

709, 2015

Tomorrow’s tests key to my future

By |September 7th, 2015|About Pat, Diagnostics, Transplants|

I’m on my way! Iowa City, here I come. I can’t say I’m looking forward to undergoing another bone marrow biopsy (BMB) tomorrow morning, but it shouldn’t be a big deal after I down a shot or two of their passion pink, mind numbing elixir; if all goes as planned, I should be feeling no […]

2808, 2015

My Medical: Good news, but myeloma storm clouds on horizon

By |August 28th, 2015|About Pat, Diagnostics, Inspirational, Side effects, Tips, Transplants|

As promised, I’m glad to share an update about how I’m doing, 48 days post-transplant. So far, so good!

508, 2015

New myeloma staging system long overdue

By |August 5th, 2015|Diagnostics, News|

I think most myeloma experts would agree: its time for a myeloma staging system that incorporates genetic risk assessment. Italian specialist, Dr. Palumbo, and his team are proposing docs worldwide use their new system.

408, 2015

Crazy medical myeloma Monday!

By |August 4th, 2015|About Pat, Diagnostics, News, Transplants|

What did you do on Monday? Mine was wall to wall medical. At least the news was all GREAT!