Doctors at Mayo Clinic, Jacksonville, biopsied three different spots today. Good thing Dr. Roy pulled some strings to get me in so quickly!
I met with my Mayo Clinic myeloma specialist, Dr. Roy, Monday. Great news all the way around!
Are you like me? Are your bones negatively affected by multiple myeloma? If so, Wednesday’s Myeloma Cure Panel discussion could be important.
There are two reasons why I’m spending so much time exploring future therapy options. The first is obvious: to help me make the best available choices. But that’s not really why I’m running this ongoing series of posts.
I felt pretty lousy Sunday, yesterday afternoon and now this morning. Me? A hangover? I don’t think the one beer I had Saturday evening while watching college football caused it. Nope, it’s the pomalidomide.
I reference my M-spike often. Some cancers don’t have good blood markers. But doctors can reliably monitor the progression of multiple myeloma in the majority of patients by tracking how much monoclonal protein is floating around in their blood or urine, using a serum protein electropheresis (SPEP) test.
Disappointing news. After dropping my M-spike from 0.7 to 0.4 the first month, my spike jumped back up to 0.6 this month. Two months on pomalidomide and I’m right back where I started.
When I was first diagnosed back in April, 2007, I was told by my Mayo Clinic specialist that I had no concerning genetic prognostic indicators. In other words, I was a low risk multiple myeloma patient. But this spring I learned that had changed.
Here’s an excerpt from an interesting and comprehensive article from the July edition of Clinical Oncology News, How I Manage: Evolving Role of Autologous Transplantation in Multiple Myeloma. It features the views of myeloma specialist, Sagar Lonial, with the Winship Cancer Institute at Emory University in Atlanta:
After the obligatory 2 year waiting period following my approval to receive Social Security Disability (SSDI), I became eligible to receive Medicare. I respectfully declined it. Turns out my instinct were right!
It’s wonderful to have so many dear online friends looking out for you. When suzierose commented–and then emailed me–suggesting that a FLC assay would be a more sensitive and accurate way to measure the progress that pomalidomide was or wasn’t makingm I responded that I wasn’t familiar with that test. Coincidentally, that’s one of the […]
Friday I wrote a post about how differently multiple myeloma can manifest itself in patients–and how different patients react to and follow their myeloma. I featured lifestyle columnist, Danny Parker, as on of my examples. Danny was kind enough to finish what I started in this month’s column:
I was reflecting back on my myeloma journey during a walk along the beach last evening. Active lesions above my right hip and between my shoulders were especially painful.
Pattie and I don’t mess around! Most of the boxes are unpacked and we’re getting settled in to our new home. The renovations are dragging along; nothing we can do about that.
Today’s pivotal, life changing meeting? Not so fast!
Today is myeloma day at the American Society of Clinical Oncology annual meetings in Chicago. There isn’t a lot of myeloma related data being presented this year, but the important stuff is out today. Normally I’d be there covering the event. Not this year. I spent today at Mayo Clinic in Jacksonville, Florida.
My M-spike is creeping up again. More bone pain. And we’re moving at the end of the month. Life’s a lot of things, but at least it’s not dull!
“You have stable disease.” Dr. Roy pronounced at our first visit at Mayo Clinic in Jacksonville. If only it were that simple!
Thursday’s Mayo Clinic visit reminded me of a featured appetizer at a five star restaurant; tasty, but leaving you wanting more.