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1111, 2014

Mayo Clinic drama–and some good advice from a reader

By |November 11th, 2014|About Pat, Caregivers, Diagnostics|

Doctors at Mayo Clinic, Jacksonville, biopsied three different spots today.  Good thing Dr. Roy pulled some strings to get me in so quickly!

2910, 2014

Great news from Mayo Clinic!

By |October 29th, 2014|About Pat, Diagnostics, Inspirational, News, Side effects, Tips|

I met with my Mayo Clinic myeloma specialist, Dr. Roy, Monday.  Great news all the way around!

1210, 2014

Bone Damage in Multiple Myeloma with Dr. Amrita Krishnan

By |October 12th, 2014|Diagnostics, News, Research, Tips|

Are you like me?  Are your bones negatively affected by multiple myeloma?  If so, Wednesday’s Myeloma Cure Panel discussion could be important.

2909, 2014

Expert advice from an experienced patient

By |September 29th, 2014|About Pat, Diagnostics, Research, Side effects, Tips|

There are two reasons why I’m spending so much time exploring future therapy options.  The first is obvious: to help me make the best available choices.  But that’s not really why I’m running this ongoing series of posts.

1609, 2014

Pomalidomide hang-over

By |September 16th, 2014|About Pat, Diagnostics, Side effects, Tips|

I felt pretty lousy Sunday, yesterday afternoon and now this morning.  Me?  A hangover?  I don’t think the one beer I had Saturday evening while watching college football caused it.  Nope, it’s the pomalidomide.

909, 2014

I can live in no-mans-land…

By |September 9th, 2014|About Pat, Diagnostics|

I reference my M-spike often.  Some cancers don’t have good blood markers.  But doctors can reliably monitor the progression of multiple myeloma in the majority of patients by tracking how much monoclonal protein is floating around in their blood or urine, using a serum protein electropheresis (SPEP) test.

1108, 2014

Multiple myeloma wins round two

By |August 11th, 2014|About Pat, Diagnostics, News, Tips|

Disappointing news.  After dropping my M-spike from 0.7 to 0.4 the first month, my spike jumped back up to 0.6 this month.  Two months on pomalidomide and I’m right back where I started.

1407, 2014

What’s in a number? I’m a t(11;14) not t(4;14)

By |July 14th, 2014|About Pat, Diagnostics, Research, Transplants|

When I was first diagnosed back in April, 2007, I was told by my Mayo Clinic specialist that I had no concerning genetic prognostic indicators.  In other words, I was a low risk multiple myeloma patient.  But this spring I learned that had changed.

1307, 2014

Dr. Sagar Lonial’s thoughts about stem cell transplants

By |July 13th, 2014|Diagnostics, Research, Transplants|

Here’s an excerpt from an interesting and comprehensive article from the July edition of Clinical Oncology News,  How I Manage: Evolving Role of Autologous Transplantation in Multiple Myeloma.   It features the views of myeloma specialist, Sagar Lonial, with the Winship Cancer Institute at Emory University in Atlanta:

1107, 2014


By |July 11th, 2014|Diagnostics, News, Tips, Transplants|

After the obligatory 2 year waiting period following my approval to receive Social Security Disability (SSDI), I became eligible to receive Medicare.  I respectfully declined it.  Turns out my instinct were right!

207, 2014

FLC assays: sensistive test works well for some, not others

By |July 2nd, 2014|About Pat, Diagnostics, Tips|

It’s wonderful to have so many dear online friends looking out for you.  When suzierose commented–and then emailed me–suggesting that a FLC assay would be a more sensitive and accurate way to measure the progress that pomalidomide was or wasn’t makingm  I responded that I wasn’t familiar with that test.  Coincidentally, that’s one of the […]

2906, 2014

More about alternative ways to monitor myeloma

By |June 29th, 2014|Diagnostics, Tips|

Friday I wrote a post about how differently multiple myeloma can manifest itself in patients–and how different patients react to and follow their myeloma.  I featured lifestyle columnist, Danny Parker, as on of my examples.  Danny was kind enough to finish what I started in this month’s column:

2406, 2014

Dr. Roy is confident: pomalidomide and dex will do the trick!

By |June 24th, 2014|About Pat, Diagnostics, News|

I was reflecting back on my myeloma journey during a walk along the beach last evening.  Active lesions above my right hip and between my shoulders were especially painful.

1106, 2014

Post-move reflections and Pat’s medical update

By |June 11th, 2014|About Pat, Diagnostics, Inspirational, News, Side effects|

Pattie and I don’t mess around!  Most of the boxes are unpacked and we’re getting settled in to our new home.  The renovations are dragging along; nothing we can do about that.

606, 2014

Mayo Clinic Zen

By |June 6th, 2014|About Pat, Diagnostics|

Today’s pivotal, life changing meeting?  Not so fast!

206, 2014

When practical trumps theoretical

By |June 2nd, 2014|About Pat, Diagnostics|

Today is myeloma day at the American Society of Clinical Oncology annual meetings in Chicago.  There isn’t a lot of myeloma related data being presented this year, but the important stuff is out today.  Normally I’d be there covering the event.  Not this year.  I spent today at Mayo Clinic in Jacksonville, Florida.

905, 2014

Pat’s Medical Update (Part Two)

By |May 9th, 2014|About Pat, Diagnostics, News, Side effects, Transplants|

My M-spike is creeping up again.  More bone pain.  And we’re moving at the end of the month.  Life’s a lot of things, but at least it’s not dull!

805, 2014

Pat’s Medical Update: Stuck in no man’s land, but not for long!

By |May 8th, 2014|About Pat, Diagnostics, Therapy, Transplants|

“You have stable disease.”  Dr. Roy pronounced at our first visit at Mayo Clinic in Jacksonville.  If only it were that simple!

205, 2014

Mayo Clinic visit leaves many questions unanswered

By |May 2nd, 2014|About Pat, Diagnostics, Transplants|

Thursday’s Mayo Clinic visit reminded me of a featured appetizer at a five star restaurant; tasty, but leaving you wanting more.

2804, 2014

Multiple myeloma is so inconvenient!

By |April 28th, 2014|About Pat, Diagnostics, Therapy|

I’ve written before about how living with multiple myeloma is like having a part time job.  Want proof?  Check out my schedule for the upcoming week: