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Side effects

//Side effects
802, 2016

I’m not dead yet!

By |February 8th, 2016|About Pat, Diagnostics, Side effects, Transplants|

The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.

602, 2016

Tough day for me and my blood

By |February 6th, 2016|About Pat, Side effects, Support, Transplants|

Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.

602, 2016

My world turned upside down

By |February 6th, 2016|About Pat, Diagnostics, Side effects, Transplants|

As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.

502, 2016

Medical mystery worthy of reality TV

By |February 5th, 2016|About Pat, Diagnostics, Side effects, Transplants|

I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!

102, 2016

I’m celebrating 100 days post tandem today

By |February 1st, 2016|About Pat, Side effects, Tips, Transplants|

It’s been 100 days since I received an infusion of over 8 million of my own stem cells in October. Even though it was my second stem cell transplant in less than six months, this is uncharted territory for me.

2501, 2016

Can they pump me full of any more meds?

By |January 25th, 2016|About Pat, Side effects, Therapy|

Not to say that there weren’t hiccups, but I was administered my Kyprolis IV late this morning. I took 40 mg dex, and 3 mg pomalidomide, after I learned my platelets had recovered enough to proceed. I tried to get a few things done this afternoon, but basically passed out.

2001, 2016

It shouldn’t be so hard to get excellent care

By |January 20th, 2016|About Pat, Diagnostics, Side effects, Tips, Transplants|

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!

1901, 2016

Didn’t see that coming…

By |January 19th, 2016|About Pat, Diagnostics, Side effects, Transplants|

No fever. Resting heart rate down to 80 beats a minute. Oral supplementation at home brought my potassium and magnesium levels up to normal levels. My oncology nurse, Deb, started the IV in my left hand on the first stick Monday. What could go wrong?

1801, 2016

Medical Update: Stinky news

By |January 18th, 2016|About Pat, Caregivers, Side effects, Support, Tips|

Rough weekend. As I explained in a post last week, I’m not used to backsliding–post transplant–once I start improving.

1601, 2016

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

By |January 16th, 2016|About Pat, Caregivers, Inspirational, Nutrition, Research, Side effects, Support, Tips, Transplants|

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:
Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)

1501, 2016

Maintenance therapy side effects nothing to brush off

By |January 15th, 2016|About Pat, News, Nutrition, Side effects, Tips, Transplants|

I’m part of the club: experiencing side effects caused–in part–by ongoing maintenance therapy.

701, 2016

How and when to take dexamethasone

By |January 7th, 2016|Side effects, Supplements/Drugs, Tips|

Fellow multiple myeloma surivor, Nebraskan Jim Omel, is one of the smartest guys I know. A retired physician, Jim works tirelessly to help his fellow patients. Readers often ask me if it matters when they take their dexamethasone. Scheduled to start consolidation therapy this week, I’ve been wondering about it, too.

501, 2016

Stem cell transplant fallout front and center in 2016 (Part Two)

By |January 5th, 2016|About Pat, Side effects, Tips, Transplants|

I kicked off my 2016 posts yesterday this way: “Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects… Still plenty of drama to kick off 2016.”

201, 2016

The power of combination therapies

By |January 2nd, 2016|News, Research, Side effects, Therapy|

New checkpoint inhibitor studies combining the experimental drug, Keytruda, with Revlimid, are working in patients who have become refractory to Revlimid.

2812, 2015

My Patient Power interview at ASH

By |December 28th, 2015|About Pat, Side effects, Therapy, Transplants|

Saturday I shared a link to an interview Jenny Ahlstrom did with me the second day at ASH. Can’t get enough of me unabashedly sharing my opinions about myeloma therapy options on video? Then fasten your seatbelts! CLL survivor and dear friend, Carol Preston, interviewed me at ASH for Patient Power.

2412, 2015

Happy Holidays! Catching up with our myeloma friends

By |December 24th, 2015|Caregivers, Inspirational, Side effects|

I understand that all of my reader’s don’t celebrate Christmas. After all, myeloma doesn’t respect religious or political boundries; it’s an equal opportunity dose of misery. Even so, I thought that Christmas Eve might be the perfect time to catch up on how some of our friends we’ve been following this past year are doing.

2112, 2015

More about Thursday’s great news

By |December 21st, 2015|About Pat, Diagnostics, Side effects|

Thursday I ran an emotional post about being “myeloma free.” Everyone understands that’s only an expression, right? Few myeloma patients/survivors are ever truly cancer free.

1812, 2015

An amazing emotional roller coaster ride

By |December 18th, 2015|About Pat, Diagnostics, News, Side effects, Transplants|

I promised to follow up on yesterday’s amazing news. Dr. Tricot reassures me that my tests confirm there isn’t any active myeloma left.

1712, 2015

Inside look at Darzalex (daratumumab)

By |December 17th, 2015|News, Research, Side effects|

Last week I had the opportunity to interview the Senior Director of Clinical Research for Janssen Pharmaceuticals, Dr. Tahamtan Ahmadi, PhD. Janssen is the company that manufacturers newly FDA approved Darzalex (daratumumab). I promised a more detailed follow up and I’m glad to follow through.

1612, 2015

Everything you didn’t know you wanted to know about C. diff

By |December 16th, 2015|About Pat, Side effects, Tips, Transplants|

I unceremoniously experienced my first case of C. diff during the first of my two, modified autologous stem cell transplants this summer. All I knew is everyone wore yellow paper gowns when they came in and out of my room–and I needed to pull an IV pole with me as I sprinted the six steps […]