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Side effects

//Side effects
1312, 2015

BMT Bondage

By |December 13th, 2015|About Pat, Caregivers, Side effects, Transplants|

I’m feeling a much better today. I was in such a dark place. Feverish and saddled with abdominal pain and now nine days of diarrhea, To be wheeled from ICU up to the BMT unit was discouraging beyond words. But as so many of reminded me with love and certainty, “It will get better!”

1212, 2015

I’m tired of being sick

By |December 12th, 2015|About Pat, Side effects, Transplants|

They moved me from the University of Iowa ICU to the 7th floor BMT Unit late last night. I’d like to say that I’m resting comfortably. Still no fun on so many levels, but I am feeling well enough to get up and get around.

1112, 2015

I’m in the ICU

By |December 11th, 2015|About Pat, Side effects, Transplants|

I left Orlando Wednesday afternoon. Sorry that I didn’t post Thursday, but I was too sick–and in too much pain to do anything but moan, groan and sleep.

912, 2015

ASH to Iowa City: The good, bad and ugly

By |December 9th, 2015|About Pat, Side effects, Transplants|

After a series of drug company meetings this morning, I’m flying up to Iowa City for tests following my second stem cell transplant in late October. How am I holding up? Here’s the good, the bad and the ugly…

312, 2015

REALITY CHECK: I’m that “cancer guy.”

By |December 3rd, 2015|About Pat, Side effects, Tips, Transplants|

I’m betting most of you have walked into your local infusion room and noticed the sickly, bald and emaciated guy sleeping across the way; three or four bags of yellow and caramel colored IV bags sagging from the glistening stainless pole above. Most myeloma patients are lucky. Our chemo tends to be more internalized: no […]

112, 2015

More about elotuzumab (Empliciti). Are immunotherapies the answer?

By |December 1st, 2015|News, Research, Side effects|

In my haste to get the news out about elotuzumab’s FDA approval yesterday, I mistakenly relied on a Cure Magazine article that stated Kyprolis was the drug used in combination with elo. I was surprised, but ran with it. I should have known better. The Cure Magazine article was mistaken. Elotuzumab (Empliciti), Revlimid and dexamethasone […]

2111, 2015

Ninlaro should be a great drug, but storm clouds on the horizon

By |November 21st, 2015|News, Research, Side effects, Supplements/Drugs, Support, Therapy, Tips|

By most accounts, ixazomib (trade name, Ninlaro) should work as well or even better than Velcade. Preliminary reports are hopeful that adverse side effects may be fewer and more tolerable, too. “But storm clouds on the horizon?”

2011, 2015

Day 30: Diarrhea and dexamethasone

By |November 20th, 2015|About Pat, Nutrition, Side effects, Support, Tips, Transplants|

Day 30. 30 days since the first half of my 8 million+ stem cells were infused back into me up in Iowa City. I was suspicious of a conspiracy; that my cells would be altered and I’d emerge an Iowa Hawkeye. No way! I still bleed Badger Red.

1911, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part Two)

By |November 19th, 2015|Diagnostics, Nutrition, Research, Side effects|

Could it be that newly diagnosed myeloma patients might benefit and live longer if prescribed the diabetes drug, metformin? Possibly relapsed patients, too? Here is the second installment of Danny Parker’s series:

1611, 2015

Patient Snapshot Update: Transplant survivor David from Tampa

By |November 16th, 2015|Inspirational, News, Side effects, Transplants|

We’ve been following the progress of allogeneic (donor) stem cell transplant survivor, David, from Tampa, for a year. The young myeloma patient handled the difficult procedure better than most, but he openly expressed disappointment that his transplant didn’t completely snuff out his cancer.

1511, 2015

Good days? Bad days? Try both!

By |November 15th, 2015|About Pat, Side effects, Tips, Transplants|

It’s been an interesting week. I’ve had better.

1111, 2015

Thank God I’m Alive!

By |November 11th, 2015|About Pat, Side effects, Transplants|

I’ve been battling top to bottom GI issues. So much nausea and diarrhea that Pattie suggested I skip the hour drive to attend Mayo Clinic’s monthly support group meeting. I reluctantly agreed.

1011, 2015

Myeloma News and Updates

By |November 10th, 2015|About Pat, Inspirational, News, Research, Side effects, Transplants|

More good news about Mike Barron and his successful run with daratumumab. Mike wants all to know that his latest cycle picks up where the last on left off: daratumumab and dex is doing the trick. “It’s like a miracle,” Mike wrote me.

911, 2015

Safe and sound in Fernandina Beach. Side Effects? Who cares!

By |November 9th, 2015|About Pat, Side effects, Transplants|

Yesterday a blustery nor’easter pounded us here on Fernandina Beach with high winds and flooding rain, One moment I felt fine, the next weak and gagging back dry heaves–or I found myself racing from one toilet or another trying to stay in front of seemingly endless diarrhea. So much to do: unpack, drain the pool, […]

711, 2015

Next stop: Amelia Island

By |November 7th, 2015|About Pat, Side effects, Transplants|

My left hip is biopsied and we’re waiting for the results. Regardless, Pattie and I are flying home today as planned. Most folks worry about whether they turned off the lights, forgot the tickets or left the toaster plugged in after they leave for the airport. Me? I’m back on the 7th floor for an […]

611, 2015

Not so fast: Infection may derail our travel plans home

By |November 6th, 2015|About Pat, Caregivers, Side effects, Transplants|

Having undergone yet another stem cell transplant, I’ve learned one thing you can count on: expect complications.

411, 2015

Trick or Treat: I’m checking out today

By |November 4th, 2015|About Pat, Side effects, Transplants|

I was just emerging from a five day long, near coma on Halloween. That didn’t stop my sister, Joan, from decorating my room top to bottom:

211, 2015

Day 12: Houston, we have lift-off!

By |November 2nd, 2015|About Pat, Side effects, Transplants|

Remember being a teenager and getting yelled at for staying in the shower too long? Or dealing with a son or granddaughter for using up all of the hot water? Check this out:

111, 2015

Need inspiration? How about Cindy’s smile!

By |November 1st, 2015|About Pat, Inspirational, Side effects, Transplants|

Doing so much better today! The thickening of my stomach wall is still there, but my fever is gone, and antibiotics seem to be working. I’m all too aware of how many of you have also lived through the “worst days of your lives.”

2910, 2015

Off the grid

By |October 29th, 2015|About Pat, Side effects, Transplants|

No kind volunteer to step up and write for me today. One advantage to being an inpatient: I didn’t need caregivers over difficult to staff Halloween weekend. That’s fine, but only works if there aren’t any complications.