Yesterday may well have been the worst day of my life. I’m guessing anyone that has undergone an auto or allo has had one or more of these. How the heck did we make it to the other side?
I’m loaded up with all 8 million+ stem cells I had left. Some in storage, some from this summer’s collection.
I put this together Tuesday evening. Last time I’ll be smiling like this for a while!
Pattie reports that our beloved dog, Finnegan, feels the same way about me! Apparently he lays at the front door, forlorn, waiting for me to come home.
Ready or not, I’m back in Iowa City, preparing to undergo my second modified stem cell transplant in less than four months. I was at the University of Iowa Cancer Center all day for tests.
I’m often said our readers are my best resource. Early reports about the new immunotherapy, daratumumab, have been good. Mike, from North Carolina, recently enrolled in a dara trial. He emailed me about how great it’s working for him and agreed to share an email he sent his friends, trumpeting the early results. Here’s a […]
We were all so excited! Dying myeloma patient, Stacy from Minnesota, responded miraculously to Mayo Clinic’s experimental measles vaccine therapy. Yet apparently attempts to match this early success is fleeting.
Great weekend! UW Badgers lost to Iowa, when our quarterback tripped over one of his own blockers and fumbled before he could hand the ball off for the winning touchdown. But I wasn’t going to let that ruin my day. After all, the Iowa Hawkeyes represent my new home away from home!
I’m sorry that I haven’t been more responsive to reader’s comments on the blog, Facebook and Email. Pattie and I just completed another “never a dull moment” series of flight delays on our way to Madison, Wisconsin to see the University of Wisconsin play the Iowa Hawkeyes Saturday.
I’m a fighter–and I’m stubborn. I’m focused and willing to do just about anything to help extend my life.
I’ll delay the post I had planned to run today until tomorrow. I wanted to share a telling moment I experienced yesterday.
I’m feeling a lot better this weekend than I did earlier in the week. I think my body is getting used to pomalidomide.
Last year at ASH, everyone was anticipating FDA approval of carfilzomib (Kyrpolis) and pomalidomide (Pomalyst). It felt a lot like it does now, expecting the first two myeloma related immunotherapies, elotuzumab and daratumumab, to be approved within the next six months.
More and more companies are picking up the bill for dozens of new clinical trials. As the number of trials grow, I’m hopeful that some will ease up and broaden their criteria, allowing nonsectretors like me to participate.
I wanted to follow up and respond to comments and emails about my decision to proceed with the tandem. But before I start, I have a confession to make.
This is complicated stuff. Apparently Amgen, (now own Onyx who makes Kyprolis) is partnering up with others to try and move into the immunotherapy and T cell therapy space. I’m not sure I understand why they need a partner to do this, but money is BIG!
Amgen, Xencor to Partner on Cancer Immunotherapy, Inflammation Drugs
September 16 […]
I’ll keep this short. We’ll save my long, rambling posts for good news. I’ve had a tough week. The way I picture it: sliding back down one of those rain-slick hills in Utah or Arizona, where you see cars and people being swept away.
Dr. Tricot and I didn’t restrict our conversation to the “transplant again or not” debate. We also spent a good deal of time discussing how to handle my worrisome peripheral neuropathy (PN).
As you’ve probably guessed by now, Dr. Tricot is a man of few words. Not known to use superlatives, a comment like, “I’m pleased with your results,” jumps out at you. But before everyone gets too excited, I need to add an asterisk. Turns out things are complicated.
Last week we caught up with allogeneic stem cell transplant recipient, David from Tampa. He’s doing well, but the allo did not wipe out his myeloma–and his new immune system still may not recognize it as an invader. Today let’s hear from Tom. Like David, Tom’s doctors tried an allo as a way to hit […]