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Side effects

//Side effects
2710, 2015

There’s a light at the end of the tunnel–thank God it isn’t the big one!

By |October 27th, 2015|About Pat, Diagnostics, Side effects, Transplants|

Yesterday may well have been the worst day of my life. I’m guessing anyone that has undergone an auto or allo has had one or more of these. How the heck did we make it to the other side?

2310, 2015

Strangers, passing in the dark. Life in, death out.

By |October 23rd, 2015|About Pat, Side effects, Transplants|

I’m loaded up with all 8 million+ stem cells I had left. Some in storage, some from this summer’s collection.

2110, 2015

Chemo today, Day Zero tomorrow

By |October 21st, 2015|About Pat, Side effects, Transplants|

I put this together Tuesday evening. Last time I’ll be smiling like this for a while!

1810, 2015

Hectic first day glitches

By |October 18th, 2015|About Pat, Side effects, Tips, Transplants|

Pattie reports that our beloved dog, Finnegan, feels the same way about me! Apparently he lays at the front door, forlorn, waiting for me to come home.

1510, 2015

My tandem transplant schedule

By |October 15th, 2015|About Pat, Diagnostics, Side effects|

Ready or not, I’m back in Iowa City, preparing to undergo my second modified stem cell transplant in less than four months. I was at the University of Iowa Cancer Center all day for tests.

1410, 2015

Reader celebrating great response to daratumumab

By |October 14th, 2015|News, Side effects, Supplements/Drugs, Therapy, Transplants|

I’m often said our readers are my best resource. Early reports about the new immunotherapy, daratumumab, have been good. Mike, from North Carolina, recently enrolled in a dara trial. He emailed me about how great it’s working for him and agreed to share an email he sent his friends, trumpeting the early results. Here’s a […]

710, 2015

Immunotherapy angst: Why is myeloma code so tough to crack?

By |October 7th, 2015|News, Research, Side effects|

We were all so excited! Dying myeloma patient, Stacy from Minnesota, responded miraculously to Mayo Clinic’s experimental measles vaccine therapy. Yet apparently attempts to match this early success is fleeting.

410, 2015

How do others see us?

By |October 4th, 2015|Side effects, Transplants|

Great weekend! UW Badgers lost to Iowa, when our quarterback tripped over one of his own blockers and fumbled before he could hand the ball off for the winning touchdown. But I wasn’t going to let that ruin my day. After all, the Iowa Hawkeyes represent my new home away from home!

210, 2015

Madison, here we come!

By |October 2nd, 2015|About Pat, Caregivers, Side effects|

I’m sorry that I haven’t been more responsive to reader’s comments on the blog, Facebook and Email. Pattie and I just completed another “never a dull moment” series of flight delays on our way to Madison, Wisconsin to see the University of Wisconsin play the Iowa Hawkeyes Saturday.

3009, 2015

Our cancer, our lives, our choice

By |September 30th, 2015|About Pat, Caregivers, Side effects, Tips, Transplants|

I’m a fighter–and I’m stubborn. I’m focused and willing to do just about anything to help extend my life.

2909, 2015

Snapshot frozen in time

By |September 29th, 2015|About Pat, Side effects, Transplants|

I’ll delay the post I had planned to run today until tomorrow. I wanted to share a telling moment I experienced yesterday.

2709, 2015

How’s Pat doing?

By |September 27th, 2015|About Pat, Side effects, Transplants|

I’m feeling a lot better this weekend than I did earlier in the week. I think my body is getting used to pomalidomide.

2609, 2015

New “gold standard” therapy for multiple myeloma?

By |September 26th, 2015|Research, Side effects|

Last year at ASH, everyone was anticipating FDA approval of carfilzomib (Kyrpolis) and pomalidomide (Pomalyst). It felt a lot like it does now, expecting the first two myeloma related immunotherapies, elotuzumab and daratumumab, to be approved within the next six months.

2509, 2015

More about my decision to transplant and lingering side effects

By |September 25th, 2015|About Pat, News, Side effects, Tips, Transplants|

More and more companies are picking up the bill for dozens of new clinical trials. As the number of trials grow, I’m hopeful that some will ease up and broaden their criteria, allowing nonsectretors like me to participate.

2209, 2015

“I’m going to live. That’s what I do.”

By |September 22nd, 2015|About Pat, Inspirational, Side effects, Transplants|

I wanted to follow up and respond to comments and emails about my decision to proceed with the tandem. But before I start, I have a confession to make.

1909, 2015

New research partnership and more about Kyprolis

By |September 19th, 2015|News, Research, Side effects|

This is complicated stuff. Apparently Amgen, (now own Onyx who makes Kyprolis) is partnering up with others to try and move into the immunotherapy and T cell therapy space. I’m not sure I understand why they need a partner to do this, but money is BIG!
Amgen, Xencor to Partner on Cancer Immunotherapy, Inflammation Drugs
September 16 […]

1709, 2015

Two steps forward and a big step back…

By |September 17th, 2015|About Pat, Side effects, Transplants|

I’ll keep this short. We’ll save my long, rambling posts for good news. I’ve had a tough week. The way I picture it: sliding back down one of those rain-slick hills in Utah or Arizona, where you see cars and people being swept away.

1309, 2015

Thalidomide: Worth the risk?

By |September 13th, 2015|About Pat, Side effects, Therapy|

Dr. Tricot and I didn’t restrict our conversation to the “transplant again or not” debate. We also spent a good deal of time discussing how to handle my worrisome peripheral neuropathy (PN).

1109, 2015

Dr. Tricot: “I’m pleased…”

By |September 11th, 2015|About Pat, Diagnostics, News, Side effects, Transplants|

As you’ve probably guessed by now, Dr. Tricot is a man of few words. Not known to use superlatives, a comment like, “I’m pleased with your results,” jumps out at you. But before everyone gets too excited, I need to add an asterisk. Turns out things are complicated.

809, 2015

Allo transplant patient Tom from Ohio: Better news!

By |September 8th, 2015|Caregivers, Side effects, Support, Tips, Transplants|

Last week we caught up with allogeneic stem cell transplant recipient, David from Tampa. He’s doing well, but the allo did not wipe out his myeloma–and his new immune system still may not recognize it as an invader. Today let’s hear from Tom. Like David, Tom’s doctors tried an allo as a way to hit […]