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Tips

/Tips
102, 2016

I’m celebrating 100 days post tandem today

By |February 1st, 2016|About Pat, Side effects, Tips, Transplants|

It’s been 100 days since I received an infusion of over 8 million of my own stem cells in October. Even though it was my second stem cell transplant in less than six months, this is uncharted territory for me.

2701, 2016

Isn’t battling myeloma hard enough without having to raise money, too?

By |January 27th, 2016|Inspirational, Research, Tips|

An amazing over-the-top (pun intended) multiple myeloma awareness and fundraising mountain climbing adventure scaling Mr. Kilimanjaro sponsored by the MMRF:

2201, 2016

We need more open and honest conversations about multiple myeloma

By |January 22nd, 2016|Caregivers, News, RIP, Support, Tips|

One of my pet peeves: when celebrities don’t disclose the type of cancer that they’re battling. They could at least devulge it in their obituary. Most of the rest of us disclose it. Obviously I’ve done so much more. I’m not implying everyone needs to be as open as I am. But come on: inquiring […]

2001, 2016

It shouldn’t be so hard to get excellent care

By |January 20th, 2016|About Pat, Diagnostics, Side effects, Tips, Transplants|

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!

1801, 2016

Medical Update: Stinky news

By |January 18th, 2016|About Pat, Caregivers, Side effects, Support, Tips|

Rough weekend. As I explained in a post last week, I’m not used to backsliding–post transplant–once I start improving.

1601, 2016

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

By |January 16th, 2016|About Pat, Caregivers, Inspirational, Nutrition, Research, Side effects, Support, Tips, Transplants|

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:
Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)
 

1501, 2016

Maintenance therapy side effects nothing to brush off

By |January 15th, 2016|About Pat, News, Nutrition, Side effects, Tips, Transplants|

I’m part of the club: experiencing side effects caused–in part–by ongoing maintenance therapy.

1101, 2016

BOOK REVIEW: Patient’s Medical Journal

By |January 11th, 2016|Books|

I recently ordered a copy of Sandra de Bruin and Nick Lyons’ new book, Patient’s Medical Journal. In log book format, it’s a way to record your personal and family medical history, along with documenting your medical visits and treatment plans.

801, 2016

Rest in peace dearest Sara

By |January 8th, 2016|Caregivers, Inspirational, RIP, Support, Tips|

These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week.

701, 2016

How and when to take dexamethasone

By |January 7th, 2016|Side effects, Supplements/Drugs, Tips|

Fellow multiple myeloma surivor, Nebraskan Jim Omel, is one of the smartest guys I know. A retired physician, Jim works tirelessly to help his fellow patients. Readers often ask me if it matters when they take their dexamethasone. Scheduled to start consolidation therapy this week, I’ve been wondering about it, too.

501, 2016

Stem cell transplant fallout front and center in 2016 (Part Two)

By |January 5th, 2016|About Pat, Side effects, Tips, Transplants|

I kicked off my 2016 posts yesterday this way: “Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects… Still plenty of drama to kick off 2016.”

401, 2016

Stem cell transplant fallout front and center in 2016 (Part One)

By |January 4th, 2016|About Pat, News, Tips, Transplants|

Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects. Like many of you, bumps in the medical insurance road have bubbled up unexpectedly. Still plenty of drama to kick off 2016.

2012, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)

By |December 20th, 2015|Research, Tips|

ASH, unscheduled trips to the ICU, Iowa City drama. A lot has happened since I ran the last installment of Danny Parker’s series about blood glucose and metformin.

1612, 2015

Everything you didn’t know you wanted to know about C. diff

By |December 16th, 2015|About Pat, Side effects, Tips, Transplants|

I unceremoniously experienced my first case of C. diff during the first of my two, modified autologous stem cell transplants this summer. All I knew is everyone wore yellow paper gowns when they came in and out of my room–and I needed to pull an IV pole with me as I sprinted the six steps […]

312, 2015

REALITY CHECK: I’m that “cancer guy.”

By |December 3rd, 2015|About Pat, Side effects, Tips, Transplants|

I’m betting most of you have walked into your local infusion room and noticed the sickly, bald and emaciated guy sleeping across the way; three or four bags of yellow and caramel colored IV bags sagging from the glistening stainless pole above. Most myeloma patients are lucky. Our chemo tends to be more internalized: no […]

2411, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part Four)

By |November 24th, 2015|Nutrition, Research, Supplements/Drugs, Therapy|

Following the news that not one but two new myeloma therapies are newly FDA approved, is it possible that the diabetes drug, meformin, could be a third? Before I post the fourth installment of Danny Parker’s series, I wanted to update everyone about how I’m holding up.

2311, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part Three)

By |November 23rd, 2015|Diagnostics, Nutrition, Research|

I don’t think I’ve ever slept as much as I did this weekend. Coming off my first pomalidomide/dex maintenance cycle, I hit the wall. If I didn’t know better I’d say my GI issues are improving. Time will tell. It’s been two steps forward, one back.

2111, 2015

Ninlaro should be a great drug, but storm clouds on the horizon

By |November 21st, 2015|News, Research, Side effects, Supplements/Drugs, Support, Therapy, Tips|

By most accounts, ixazomib (trade name, Ninlaro) should work as well or even better than Velcade. Preliminary reports are hopeful that adverse side effects may be fewer and more tolerable, too. “But storm clouds on the horizon?”

2011, 2015

Day 30: Diarrhea and dexamethasone

By |November 20th, 2015|About Pat, Nutrition, Side effects, Support, Tips, Transplants|

Day 30. 30 days since the first half of my 8 million+ stem cells were infused back into me up in Iowa City. I was suspicious of a conspiracy; that my cells would be altered and I’d emerge an Iowa Hawkeye. No way! I still bleed Badger Red.

1911, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part Two)

By |November 19th, 2015|Diagnostics, Nutrition, Research, Side effects|

Could it be that newly diagnosed myeloma patients might benefit and live longer if prescribed the diabetes drug, metformin? Possibly relapsed patients, too? Here is the second installment of Danny Parker’s series: