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I’m celebrating 100 days post tandem today

Posted on February 01 2016 by Pat Killingsworth

It’s been 100 days since I received an infusion of over 8 million of my own stem cells in October. Even though it was my second stem cell transplant in less than six months, this is uncharted territory for me.

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MT K

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Isn’t battling myeloma hard enough without having to raise money, too?

Posted on January 27 2016 by Pat Killingsworth

An amazing over-the-top (pun intended) multiple myeloma awareness and fundraising mountain climbing adventure scaling Mr. Kilimanjaro sponsored by the MMRF:

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David Bowie

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We need more open and honest conversations about multiple myeloma

Posted on January 22 2016 by Pat Killingsworth

One of my pet peeves: when celebrities don’t disclose the type of cancer that they’re battling. They could at least devulge it in their obituary. Most of the rest of us disclose it. Obviously I’ve done so much more. I’m not implying everyone needs to be as open as I am. But come on: inquiring minds want to know!

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It shouldn’t be so hard to get excellent care

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It shouldn’t be so hard to get excellent care

Posted on January 20 2016 by Pat Killingsworth

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!

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Medical Update: Stinky news

Posted on January 18 2016 by Pat Killingsworth

Rough weekend. As I explained in a post last week, I’m not used to backsliding–post transplant–once I start improving.

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Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Posted on January 16 2016 by Pat Killingsworth

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:

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Maintenance therapy side effects nothing to brush off

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Maintenance therapy side effects nothing to brush off

Posted on January 15 2016 by Pat Killingsworth

I’m part of the club: experiencing side effects caused–in part–by ongoing maintenance therapy.

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Patients medical history book

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BOOK REVIEW: Patient’s Medical Journal

Posted on January 11 2016 by Pat Killingsworth

I recently ordered a copy of Sandra de Bruin and Nick Lyons’ new book, Patient’s Medical Journal. In log book format, it’s a way to record your personal and family medical history, along with documenting your medical visits and treatment plans.

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SARA

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Rest in peace dearest Sara

Posted on January 08 2016 by Pat Killingsworth

These are the posts I dread writing. One of my closest myeloma friends, Sara Lathan, from Charlotte, North Carolina, lost her extended fight with multiple myeloma earlier this week.

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How and when to take dexamethasone

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How and when to take dexamethasone

Posted on January 07 2016 by Pat Killingsworth

Fellow multiple myeloma surivor, Nebraskan Jim Omel, is one of the smartest guys I know. A retired physician, Jim works tirelessly to help his fellow patients. Readers often ask me if it matters when they take their dexamethasone. Scheduled to start consolidation therapy this week, I’ve been wondering about it, too.

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Stem cell transplant fallout front and center in 2016 (Part Two)

Posted on January 05 2016 by Pat Killingsworth

I kicked off my 2016 posts yesterday this way: “Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects… Still plenty of drama to kick off 2016.”

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Stem cell transplant fallout front and center in 2016 (Part One)

Posted on January 04 2016 by Pat Killingsworth

Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects. Like many of you, bumps in the medical insurance road have bubbled up unexpectedly. Still plenty of drama to kick off 2016.

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Dr. Rajkumar

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Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)

Posted on December 20 2015 by Pat Killingsworth

ASH, unscheduled trips to the ICU, Iowa City drama. A lot has happened since I ran the last installment of Danny Parker’s series about blood glucose and metformin.

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Dr. Farooq

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Everything you didn’t know you wanted to know about C. diff

Posted on December 16 2015 by Pat Killingsworth

I unceremoniously experienced my first case of C. diff during the first of my two, modified autologous stem cell transplants this summer. All I knew is everyone wore yellow paper gowns when they came in and out of my room–and I needed to pull an IV pole with me as I sprinted the six steps to the bathroom every hour.

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REALITY CHECK: I’m that “cancer guy.”

Posted on December 03 2015 by Pat Killingsworth

I’m betting most of you have walked into your local infusion room and noticed the sickly, bald and emaciated guy sleeping across the way; three or four bags of yellow and caramel colored IV bags sagging from the glistening stainless pole above. Most myeloma patients are lucky. Our chemo tends to be more internalized: no hair loss or telltale weight loss.

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Dr Orlowski

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Blood Glucose, MGUS, Myeloma & Metformin (Part Four)

Posted on November 24 2015 by Pat Killingsworth

Following the news that not one but two new myeloma therapies are newly FDA approved, is it possible that the diabetes drug, meformin, could be a third? Before I post the fourth installment of Danny Parker’s series, I wanted to update everyone about how I’m holding up.

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Blood sugar graph

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Blood Glucose, MGUS, Myeloma & Metformin (Part Three)

Posted on November 23 2015 by Pat Killingsworth

I don’t think I’ve ever slept as much as I did this weekend. Coming off my first pomalidomide/dex maintenance cycle, I hit the wall. If I didn’t know better I’d say my GI issues are improving. Time will tell. It’s been two steps forward, one back.

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Ninlaro should be a great drug, but storm clouds on the horizon

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Ninlaro should be a great drug, but storm clouds on the horizon

Posted on November 21 2015 by Pat Killingsworth

By most accounts, ixazomib (trade name, Ninlaro) should work as well or even better than Velcade. Preliminary reports are hopeful that adverse side effects may be fewer and more tolerable, too. “But storm clouds on the horizon?”

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UW slippers

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Day 30: Diarrhea and dexamethasone

Posted on November 20 2015 by Pat Killingsworth

Day 30. 30 days since the first half of my 8 million+ stem cells were infused back into me up in Iowa City. I was suspicious of a conspiracy; that my cells would be altered and I’d emerge an Iowa Hawkeye. No way! I still bleed Badger Red.

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Blood Glucose, MGUS, Myeloma & Metformin (Part Two)

Posted on November 19 2015 by Pat Killingsworth

Could it be that newly diagnosed myeloma patients might benefit and live longer if prescribed the diabetes drug, metformin? Possibly relapsed patients, too? Here is the second installment of Danny Parker’s series:

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