A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker: Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight) ASH, unscheduled trips to the ICU, Iowa City drama. A lot went wrong in December. I'm still having trouble bouncing back from
I'm part of the club: experiencing side effects caused--in part--by ongoing maintenance therapy. I was lucky for so many years. Sure, three or four hours after doing the RVD thing I might feel like I got hit by a truck for a few hours. My neutrophil (ANC) and white blood count tended to run low.
Following the news that not one but two new myeloma therapies are newly FDA approved, is it possible that the diabetes drug, meformin, could be a third? Before I post the fourth installment of Danny Parker's series, I wanted to update everyone about how I'm holding up. Following my first auto stem cell transplant this
I don't think I've ever slept as much as I did this weekend. Coming off my first pomalidomide/dex maintenance cycle, I hit the wall. If I didn't know better I'd say my GI issues are improving. Time will tell. It's been two steps forward, one back. I feel rested and ready to rock 'n roll
Day 30. 30 days since the first half of my 8 million+ stem cells were infused back into me up in Iowa City. I was suspicious of a conspiracy; that my cells would be altered and I'd emerge an Iowa Hawkeye. No way! I still bleed Badger Red. I continue to be plagued by diarrhea.
Could it be that newly diagnosed myeloma patients might benefit and live longer if prescribed the diabetes drug, metformin? Possibly relapsed patients, too? Here is the second installment of Danny Parker's series: Metformin, Myeloma and Type 2 Diabetes For a number of years the evidence has been increasing that there is something about the diabetes
Last month our old friend and guest columnist, Danny Parker, approached me about writing a multi-part series about his passion: helping to control multiple myeloma using a combination of lifestyle, diet and possibly complimentary drugs not normally used to treat myeloma. I'm not sure how many of you know this, but Danny is a prolific
I often write about myeloma related anniversary's: another year of survival, key dates from stem cell transplants present and past. Today's anniversary has nothing to do with cancer. My wife and I were married in Madison, Wisconsin, 28 years ago. It's already raining hard here, remnants of former tropical storm Erika. Are we doing something
Common peripheral neuropathy (PN) remedies not working for you? Or maybe you'd like to try something new in addition to steps you've already taken to control symptoms. Here are additional suggestions made by fellow patients: Suzanne suggests, if the neuropathy get too annoying, ask your Doctor to put you on a small dose of nortriptline;
As I continue to recover from last month's stem cell transplant, I marvel at the size and skill of the transplant team at the University of Iowa. Before I arrived, social worker Tammy Temple helped me find housing at half the cost of a normal room. She even made reservations for me. Once I arrived,
Two weeks ago I ran part one of Danny Parker's column, Thoughts from the Edge of Relapse. I was waiting for Danny pass along his latest test results. Did RVD (Revlimid/Velcade/dexamethasone) do the trick? Was it able to vanquish his wakening multiple myeloma before it picks up a head of steam? Here's Part Two: My
Yesterday I promised to address the two most powerful weapons a myeloma patient have in his or her cognitive arsenals: counseling and psycho-therapeutic drugs. Listen. Good nutrition and supplements like curcumin may help slow myeloma down up front. But on the back end? It takes the most powerful therapeutic combinations to stop it. I feel
Recently I have experienced several disconcerting changes in my prescribed medication. In one case, pills that were once thin and white were now thicker and green. The bottle said that the medication was the same inside. But was it? What gives? The same thing happened to me twice in a two week span. It would
A new reader, Hailey, from Washington, DC, sent me a link to this fascinating video about using nutrition to help defeat cancer. Recorded in 2010, the advice presented by researcher, Dr. William Li, is timeless. Give it a look; success by patients with multiple myeloma are featured in the presentation: http://www.ted.com/talks/william_li#t-609043 I love this guy!
I've "known" Matt for what seems to be a long time. We have spoken by phone and exchanged emails for almost two years. I find his story exceptionally hopeful. Matt's unusual type of multiple myeloma was unresponsive to therapy combinations that work for most everyone else. Then a breakthrough! I've been trying to get Matt
Chewing gum: the newest way to take daily supplements? I wrote a pair of posts about it recently on HelpWithCancer.org The first was about a new hemp gum called canchew. I received a sample in the mail and really liked it! Touted as rich in antioxidants, unfortunately the gum contains none of the mind altering,
I had the privilege of interviewing a renowned alternative medicine expert, oncologist Donald Abrams, last January on a Cure Talk broadcast. One of my most popular posts ever, I thought it was worth a second look and listen: Broadcast features expert nutritional advice for cancer patients Posted on January 20 2014 by Pat Killingsworth
Talk about conflicting data! According to a number of researchers, the amino acid, L-glutamine, may be bad for multiple myeloma patients. Yet taken in large enough doses it clearly helps many control their peripheral neuropathy. Danny Parker and I have warned our readers repeatedly about the risks of taking L-glutamine (most shorten it to "glutamine")
Topping yesterday's summary list of foods for multiple myeloma patients to avoid: excessively toasted breads and baked goods. The process produces a acrylamide, a well known carcinogen. For years myeloma specialists have told patients that diet has nothing to do with multiple myeloma. This was still the prevailing view in 2012. Danny Parker was ahead
Now myeloma lifestyle columnist, Danny Parker, wrote a series of nutritional columns for MMB back in 2012. He summarized the do's and don'ts in this helpful post, read by thousands of patients and caregivers: Diet and Multiple Myeloma: Danny Parker's dietary recommendations Posted on November 26 2012 by Pat Killingsworth | 7,593 views So, over