Last month our old friend and guest columnist, Danny Parker, approached me about writing a multi-part series about his passion: helping to control multiple myeloma using a combination of lifestyle, diet and possibly complimentary drugs not normally used to treat myeloma.
It’s been an interesting week. I’ve had better.
Once or twice a week I get an invitation to read and review a book. Most are about topics that don’t apply to us. But I was intrigued by Dr. Liza Leal’s new book, Live Well with Chronic Pain; a Guide to Taking the First Steps. Her publisher was kind enough to send me a […]
Pattie reports that our beloved dog, Finnegan, feels the same way about me! Apparently he lays at the front door, forlorn, waiting for me to come home.
More pictures from last weekend? Why not? Tomorrow is another college football Saturday. I’ll share more then. But first I wanted to follow up on a very serious subject: reader responses to Tuesday’s post, pleading for emotional help and support for me and my fellow myeloma patients and caregivers:
Myeloma patients need emotional support
I’m a fighter–and I’m stubborn. I’m focused and willing to do just about anything to help extend my life.
Regular readers understand that my blog isn’t all about me. One of my heartfelt goals is to help all of us–from “experienced,” relapsed patients, to people living with MGUS or smoldering myeloma–improve our multiple myeloma IQ’s.
More and more companies are picking up the bill for dozens of new clinical trials. As the number of trials grow, I’m hopeful that some will ease up and broaden their criteria, allowing nonsectretors like me to participate.
As promised, the updated version of my fourth book, Financial Aid for Myeloma Patients and Caregivers, is “hot off the presses,” and in stock through this site and Amazon.com.
What did I do while I was stuck in Iowa waiting for test results and harvesting my stem cells? I updated two of my books, New Myeloma Therapies from a Patient’s Perspective, and Financial Aid for Myeloma Patients and Caregivers. The New Therapies book has shipped and is ready for sale.
Last week we caught up with allogeneic stem cell transplant recipient, David from Tampa. He’s doing well, but the allo did not wipe out his myeloma–and his new immune system still may not recognize it as an invader. Today let’s hear from Tom. Like David, Tom’s doctors tried an allo as a way to hit […]
As promised, here’s a comprehensive list of drugs and supplements that readers use to help battle peripheral neuropathy (PN) symptoms:
I often write about myeloma related anniversary’s: another year of survival, key dates from stem cell transplants present and past. Today’s anniversary has nothing to do with cancer. My wife and I were married in Madison, Wisconsin, 28 years ago.
As promised, I’m glad to share an update about how I’m doing, 48 days post-transplant. So far, so good!
Important news as the promising new immunotherapy, daratumumab, continues to move swiftly toward FDA approval.
Common peripheral neuropathy (PN) remedies not working for you? Or maybe you’d like to try something new in addition to steps you’ve already taken to control symptoms. Here are additional suggestions made by fellow patients:
As promised, here are more ways to help minimize side effects of peripheral neuropathy (PN).
Like many multiple myeloma patients, I have battled peripheral neuropathy symptoms since starting therapy in 2007. I have written dozens of posts over the years featuring tips on ways to help minimize the debilitating side effects. Several have helped me. Maybe one or more can help you, too.
As I continue to recover from last month’s stem cell transplant, I marvel at the size and skill of the transplant team at the University of Iowa.
I’m fortunate that I was able to recover from this summer’s stem cell transplant much more quickly than my first back in 2011. Part of it was experience; knowing what to expect.