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18 11, 2015

Blood Glucose, MGUS, Myeloma & Metformin (Part One)

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Last month our old friend and guest columnist, Danny Parker, approached me about writing a multi-part series about his passion: helping to control multiple myeloma using a combination of lifestyle, diet and possibly complimentary drugs not normally used to treat myeloma. I'm not sure how many of you know this, but Danny is a prolific

15 11, 2015

Good days? Bad days? Try both!

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It's been an interesting week. I've had better. I plan to spend a few upcoming posts to help unravel the mystery of why different patient's transplant experiences can be so different. Heck, I experienced a different complication following each of mine; my own recoveries were distinctly different, too. Of the three, my autologous stem cell transplant (SCT)

24 10, 2015

Book Review: Living Well with Chronic Pain

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Once or twice a week I get an invitation to read and review a book. Most are about topics that don't apply to us. But I was intrigued by Dr. Liza Leal's new book, Live Well with Chronic Pain; a Guide to Taking the First Steps. Her publisher was kind enough to send me a

18 10, 2015

Hectic first day glitches

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Pattie reports that our beloved dog, Finnegan, feels the same way about me! Apparently he lays at the front door, forlorn, waiting for me to come home. Sorry, Finnegan; it's going to be a long wait. But if things go as well as we all hope, I'll be home with you for a good long

28 09, 2015

Beware of “myeloma mirage”

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Regular readers understand that my blog isn't all about me. One of my heartfelt goals is to help all of us--from "experienced," relapsed patients, to people living with MGUS or smoldering myeloma--improve our multiple myeloma IQ's. Sometimes I worry that reading about all I'm going through might freak out newly diagnosed patients. That would be

24 09, 2015

New/updated Financial Aid books available NOW

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As promised, the updated version of my fourth book, Financial Aid for Myeloma Patients and Caregivers, is "hot off the presses," and in stock through this site and Amazon.com. Few understands how exhausting making phone calls and doing paperwork can be. It isn't fair! You're sick, and now you need to work hard in order

31 08, 2015

Help with peripheral neuropathy A to Z

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As promised, here's a comprehensive list of drugs and supplements that readers use to help battle peripheral neuropathy (PN) symptoms: Acetyl L-carnitine - Important amino acid that might help. It has the added benefit of being credited with helping improve memory in Alzheimer’s patients–those of us with chemo brain can use all the help we

30 08, 2015

Happy Anniversary! Married 28 years

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I often write about myeloma related anniversary's: another year of survival, key dates from stem cell transplants present and past. Today's anniversary has nothing to do with cancer. My wife and I were married in Madison, Wisconsin, 28 years ago. It's already raining hard here, remnants of former tropical storm Erika. Are we doing something

27 08, 2015

BREAKING NEWS: Daratumumab pushes forward toward FDA approval

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Important news as the promising new immunotherapy, daratumumab, continues to move swiftly toward FDA approval. My friends at Genmab and Jannsen in the Netherlands emailed me details last evening, along with some helpful background information to review: Daratumumab is an investigational human anti-CD38 monoclonal antibody that received Breakthrough Therapy Designation from the FDA in May,

25 08, 2015

Tips to help control peripheral neuropathy (Part Three)

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Common peripheral neuropathy (PN) remedies not working for you? Or maybe you'd like to try something new in addition to steps you've already taken to control symptoms. Here are additional suggestions made by fellow patients: Suzanne suggests, if the neuropathy get too annoying, ask your Doctor to put you on a small dose of nortriptline;

22 08, 2015

Tips to help control peripheral neuropathy (Part One)

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Like many multiple myeloma patients, I have battled peripheral neuropathy symptoms since starting therapy in 2007. I have written dozens of posts over the years featuring tips on ways to help minimize the debilitating side effects. Several have helped me. Maybe one or more can help you, too. Patients that have been diagnosed within the