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1008, 2015

Tale of two transplants (Part Two)

By |August 10th, 2015|About Pat, Side effects, Tips|

Saturday I began to compare differences between my first stem cell transplant in 2011, and the one I’m recovering from this summer. Let’s pick up where I left off. How can my experiences help you?

808, 2015

Tale of two transplants (Part One)

By |August 8th, 2015|About Pat, Inspirational, Side effects, Support, Tips, Transplants|

I’ll be the first to admit that it was tough getting through my first stem cell transplant in 2011. Chronic nausea during and after the experience made it hard to endure. By any measure, my second transplant this summer was much easier to get through.

3007, 2015

Update: Allo transplant patient Tom from Ohio

By |July 30th, 2015|About Pat, Caregivers, Inspirational, Support, Tips, Transplants|

Its always great to hear from friends we’ve featured in our Patient Snapshot series, especially when there’s good news. Tom and his wife and caregiver, Whitney, have had a difficult time. For months it seemed like if it could go wrong, it did. I’m glad the tide has turned.

2007, 2015

Tom Brokaw and multiple myeloma: a global perspective

By |July 20th, 2015|Books, Caregivers|

Gifted writer and cancer patient advocate, Greg Brozeit, kindly offered to share his unique perspective with us after learning I was going to be under the weather for a while. You may remember Greg’s work memorializing Mike Katz this spring:
Living to Make a Difference: Mike Katz (Part One)
Living to Make a Difference: Mike Katz (Part […]

1907, 2015

Infection changes everything

By |July 19th, 2015|About Pat, Side effects, Tips, Transplants|

Vancomycin-resistant Enterococcus (VRE). Scary sounding. I’ve been battling one or more bacterial infections since I got here. Turns out one of them is a VRE.

1707, 2015

Dr. Tricot answers our questions

By |July 17th, 2015|About Pat, Inspirational, News, Research, Support, Tips, Transplants|

So much for short posts! OK, yesterday I got a bit carried away. I was feeling pretty good, writing from an awesome, private infusion suite here at U of Iowa Cancer center hooked to an overloaded poll so the team could give me IV fluids and antiboitics.

1407, 2015

Worst 12 hours of my life! (so far)

By |July 14th, 2015|About Pat, Side effects, Tips, Transplants|

Relatively speaking, I hit a putrid roadblock (17  parts cream corn and 3 parts exhaustion) on Friday night. So much for outpatient; I was admitted to the hospital first thing Saturday morning after spending one of the most miserable nights of my life.

607, 2015

Game on!

By |July 6th, 2015|About Pat, Inspirational, Tips, Transplants|

Preseason is over.  Today starts the regular season.  It’s the main event.

407, 2015

Patient Snapshot: Sara from North Carolina

By |July 4th, 2015|Caregivers, Inspirational, Side effects, Support, Tips|

Readers have been so kind to me these past weeks, even going so far as calling me “brave” and a “hero.”  I try and help, but I don’t think of myself that way. I’d like to introduce you to someone who is. Sara Lathan from Charlotte, North Carolina, is my hero.

2606, 2015

Play the odds: What happens if your therapy doesn’t work?

By |June 26th, 2015|About Pat, Diagnostics, Therapy, Tips, Transplants|

I wanted to backtrack and focus on what may be the most important factor when analyzing the state of my multiple myeloma: my dwindling number of therapy options.

2506, 2015

Lots of news; good and bad

By |June 25th, 2015|About Pat, Diagnostics, Inspirational, News, Side effects, Support, Tips, Transplants|

I’m relieved, disappointed, concerned and overwhelmed–all at the same time.  The long awaited meeting with Dr. Tricot yielded a mixed-bag of good and bad news.

1906, 2015

Truth about bisphosphonates from a patient’s perspective

By |June 19th, 2015|About Pat, Research, Side effects, Supplements/Drugs, Tips|

I field a lot of questions about bisphosphonates.  The two most commonly used for myeloma patients: Aredia and Zometa.

1606, 2015

My Opinion: Many secondary cancers go unreported

By |June 16th, 2015|About Pat, Tips, Transplants|

As an experienced multiple myeloma and skin cancer patient, yesterday’s study and post got me thinking.  The more I thought about it, the more it angered me.  I’m sorry, but this retrospective study left out the gaping hole in myeloma related numbers shared by many trials.  So many numbers were misleading or outright wrong.

1506, 2015

Stem cell transplant survivors face skin cancer risk

By |June 15th, 2015|Inspirational, Research, Side effects, Tips|

Yesterday was a much needed mental health day.  Pattie and I spent time working in the yard, stocked-up at Lowes and Home Depot; relaxed in the pool.  Spending so much time outside reminded me that a good friend emailed me a report last week, warning those of us that had undergone a stem cell transplant […]

1006, 2015

Baseball great Mel Stottlemyre facing relapse

By |June 10th, 2015|Books, Caregivers, Inspirational, News, Side effects|

Before I pass along information about Mel Stottlemyre, I wanted to follow-up on my post about daratumumab from yesterday; the companies involved have officially applied for FDA approval.

806, 2015

UPDATE: Patient Snapshot: David from Florida

By |June 8th, 2015|Caregivers, Inspirational, News, Side effects, Support, Tips, Transplants|

I’ve been corresponding with allogeneic stem cell transplant patient, David from Tampa, Florida.  As I’ve followed his story, we’ve become good friends.  He’s a great guy!

2905, 2015

What’s in a book? How about the will to live!

By |May 29th, 2015|About Pat, Books, Transplants|

I updated this post June 25th.  Give it another look…

2805, 2015

A few bad apples give Internet a bad name

By |May 28th, 2015|News, Tips|

Ever since I as diagnosed I have heard a number of doctors and patients say, “DON’T LOOK UP MULITPLE MYELOMA ON THE INTERNET!”  I have always disagreed.  I find an amazing amount of helpful information there.  But you need to know where to look.

2705, 2015

Low platelet counts threaten my new chemo regimen

By |May 27th, 2015|About Pat, Side effects, Tips, Transplants|

Now my platelets have crashed; my hemoglobin has recovered slightly to just under 10.  I’ve already been stuck with a Procrit equivalent to try and jump start my red counts.  I’m all hooked up to my IV and ready to go; will doctors allow me to proceed?

2405, 2015

Begone, cramps!

By |May 24th, 2015|About Pat, Side effects, Tips|

I’ve been getting lots of great suggestions about ways to try and stop cramping in my hands and legs via comments and email.  Knowing so many of you face similar challenges, here are some past posts with ideas about ways to help from readers:
Reader suggestions: How to stop PM cramping
Reader suggestions to help stop cramping
Supplement […]