Saturday I began to compare differences between my first stem cell transplant in 2011, and the one I’m recovering from this summer. Let’s pick up where I left off. How can my experiences help you?
I’ll be the first to admit that it was tough getting through my first stem cell transplant in 2011. Chronic nausea during and after the experience made it hard to endure. By any measure, my second transplant this summer was much easier to get through.
Its always great to hear from friends we’ve featured in our Patient Snapshot series, especially when there’s good news. Tom and his wife and caregiver, Whitney, have had a difficult time. For months it seemed like if it could go wrong, it did. I’m glad the tide has turned.
Gifted writer and cancer patient advocate, Greg Brozeit, kindly offered to share his unique perspective with us after learning I was going to be under the weather for a while. You may remember Greg’s work memorializing Mike Katz this spring:
Living to Make a Difference: Mike Katz (Part One)
Living to Make a Difference: Mike Katz (Part […]
Vancomycin-resistant Enterococcus (VRE). Scary sounding. I’ve been battling one or more bacterial infections since I got here. Turns out one of them is a VRE.
So much for short posts! OK, yesterday I got a bit carried away. I was feeling pretty good, writing from an awesome, private infusion suite here at U of Iowa Cancer center hooked to an overloaded poll so the team could give me IV fluids and antiboitics.
Relatively speaking, I hit a putrid roadblock (17 parts cream corn and 3 parts exhaustion) on Friday night. So much for outpatient; I was admitted to the hospital first thing Saturday morning after spending one of the most miserable nights of my life.
Preseason is over. Today starts the regular season. It’s the main event.
Readers have been so kind to me these past weeks, even going so far as calling me “brave” and a “hero.” I try and help, but I don’t think of myself that way. I’d like to introduce you to someone who is. Sara Lathan from Charlotte, North Carolina, is my hero.
I wanted to backtrack and focus on what may be the most important factor when analyzing the state of my multiple myeloma: my dwindling number of therapy options.
I’m relieved, disappointed, concerned and overwhelmed–all at the same time. The long awaited meeting with Dr. Tricot yielded a mixed-bag of good and bad news.
As an experienced multiple myeloma and skin cancer patient, yesterday’s study and post got me thinking. The more I thought about it, the more it angered me. I’m sorry, but this retrospective study left out the gaping hole in myeloma related numbers shared by many trials. So many numbers were misleading or outright wrong.
Yesterday was a much needed mental health day. Pattie and I spent time working in the yard, stocked-up at Lowes and Home Depot; relaxed in the pool. Spending so much time outside reminded me that a good friend emailed me a report last week, warning those of us that had undergone a stem cell transplant […]
Before I pass along information about Mel Stottlemyre, I wanted to follow-up on my post about daratumumab from yesterday; the companies involved have officially applied for FDA approval.
I’ve been corresponding with allogeneic stem cell transplant patient, David from Tampa, Florida. As I’ve followed his story, we’ve become good friends. He’s a great guy!
I updated this post June 25th. Give it another look…
Now my platelets have crashed; my hemoglobin has recovered slightly to just under 10. I’ve already been stuck with a Procrit equivalent to try and jump start my red counts. I’m all hooked up to my IV and ready to go; will doctors allow me to proceed?
I’ve been getting lots of great suggestions about ways to try and stop cramping in my hands and legs via comments and email. Knowing so many of you face similar challenges, here are some past posts with ideas about ways to help from readers:
Reader suggestions: How to stop PM cramping
Reader suggestions to help stop cramping