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Archive | Transplants

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I’m not dead yet!

Posted on February 08 2016 by Pat Killingsworth

The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.

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Tough day for me and my blood

Posted on February 06 2016 by Pat Killingsworth

Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.

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My world turned upside down

Posted on February 06 2016 by Pat Killingsworth

As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.

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Dr. Guerrero

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Medical mystery worthy of reality TV

Posted on February 05 2016 by Pat Killingsworth

I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!

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I’m celebrating 100 days post tandem today

Posted on February 01 2016 by Pat Killingsworth

It’s been 100 days since I received an infusion of over 8 million of my own stem cells in October. Even though it was my second stem cell transplant in less than six months, this is uncharted territory for me.

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It shouldn’t be so hard to get excellent care

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It shouldn’t be so hard to get excellent care

Posted on January 20 2016 by Pat Killingsworth

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!

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PLATELETS

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Didn’t see that coming…

Posted on January 19 2016 by Pat Killingsworth

No fever. Resting heart rate down to 80 beats a minute. Oral supplementation at home brought my potassium and magnesium levels up to normal levels. My oncology nurse, Deb, started the IV in my left hand on the first stick Monday. What could go wrong?

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Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

Posted on January 16 2016 by Pat Killingsworth

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:

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Maintenance therapy side effects nothing to brush off

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Maintenance therapy side effects nothing to brush off

Posted on January 15 2016 by Pat Killingsworth

I’m part of the club: experiencing side effects caused–in part–by ongoing maintenance therapy.

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Anne Pacowta

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Fast recovery thanks to support from so many amazing friends

Posted on January 14 2016 by Pat Killingsworth

It’s official. We didn’t win the Powerball jackpot. One of our tickets did match three numbers, so I should get most of my $20 back. Turns out there were three winners, so there “only” would have been 300 million available to donate for myeloma research. It would have been fun to see what kind of difference 300 million could have made, wouldn’t it?

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Stem cell transplant fallout front and center in 2016 (Part Two)

Posted on January 05 2016 by Pat Killingsworth

I kicked off my 2016 posts yesterday this way: “Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects… Still plenty of drama to kick off 2016.”

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Stem cell transplant fallout front and center in 2016 (Part One)

Posted on January 04 2016 by Pat Killingsworth

Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects. Like many of you, bumps in the medical insurance road have bubbled up unexpectedly. Still plenty of drama to kick off 2016.

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Carol Preston

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My Patient Power interview at ASH

Posted on December 28 2015 by Pat Killingsworth

Saturday I shared a link to an interview Jenny Ahlstrom did with me the second day at ASH. Can’t get enough of me unabashedly sharing my opinions about myeloma therapy options on video? Then fasten your seatbelts! CLL survivor and dear friend, Carol Preston, interviewed me at ASH for Patient Power.

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Video highlights of my first few days at ASH

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Video highlights of my first few days at ASH

Posted on December 26 2015 by Pat Killingsworth

Good friend and fellow myeloma survivor, Jenny Ahlstrom, is a lot better at the technical side of blogging than I am. She uses a lot of video on her site. Jenny interviewed me on Sunday at ASH. You can listen to it here:

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An amazing emotional roller coaster ride

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An amazing emotional roller coaster ride

Posted on December 18 2015 by Pat Killingsworth

I promised to follow up on yesterday’s amazing news. Dr. Tricot reassures me that my tests confirm there isn’t any active myeloma left.

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Dr. Farooq

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Everything you didn’t know you wanted to know about C. diff

Posted on December 16 2015 by Pat Killingsworth

I unceremoniously experienced my first case of C. diff during the first of my two, modified autologous stem cell transplants this summer. All I knew is everyone wore yellow paper gowns when they came in and out of my room–and I needed to pull an IV pole with me as I sprinted the six steps to the bathroom every hour.

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Back to ASH: Ninlaro and Pomalyst combo promising

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Back to ASH: Ninlaro and Pomalyst combo promising

Posted on December 14 2015 by Pat Killingsworth

Before I pass along important information about Takeda’s new oral proteasome inhibitor, Ninlaro (ixazomib), I wanted to share an update about how I’m doing.

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BMT Bondage

Posted on December 13 2015 by Pat Killingsworth

I’m feeling a much better today. I was in such a dark place. Feverish and saddled with abdominal pain and now nine days of diarrhea, To be wheeled from ICU up to the BMT unit was discouraging beyond words. But as so many of reminded me with love and certainty, “It will get better!”

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I’m tired of being sick

Posted on December 12 2015 by Pat Killingsworth

They moved me from the University of Iowa ICU to the 7th floor BMT Unit late last night. I’d like to say that I’m resting comfortably. Still no fun on so many levels, but I am feeling well enough to get up and get around.

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I’m in the ICU

Posted on December 11 2015 by Pat Killingsworth

I left Orlando Wednesday afternoon. Sorry that I didn’t post Thursday, but I was too sick–and in too much pain to do anything but moan, groan and sleep.

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