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Transplants

/Transplants
802, 2016

I’m not dead yet!

By |February 8th, 2016|About Pat, Diagnostics, Side effects, Transplants|

The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.

602, 2016

Tough day for me and my blood

By |February 6th, 2016|About Pat, Side effects, Support, Transplants|

Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.

602, 2016

My world turned upside down

By |February 6th, 2016|About Pat, Diagnostics, Side effects, Transplants|

As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.

502, 2016

Medical mystery worthy of reality TV

By |February 5th, 2016|About Pat, Diagnostics, Side effects, Transplants|

I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!

102, 2016

I’m celebrating 100 days post tandem today

By |February 1st, 2016|About Pat, Side effects, Tips, Transplants|

It’s been 100 days since I received an infusion of over 8 million of my own stem cells in October. Even though it was my second stem cell transplant in less than six months, this is uncharted territory for me.

2001, 2016

It shouldn’t be so hard to get excellent care

By |January 20th, 2016|About Pat, Diagnostics, Side effects, Tips, Transplants|

Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!

1901, 2016

Didn’t see that coming…

By |January 19th, 2016|About Pat, Diagnostics, Side effects, Transplants|

No fever. Resting heart rate down to 80 beats a minute. Oral supplementation at home brought my potassium and magnesium levels up to normal levels. My oncology nurse, Deb, started the IV in my left hand on the first stick Monday. What could go wrong?

1601, 2016

Blood Glucose, MGUS, Myeloma & Metformin (Part Nine)

By |January 16th, 2016|About Pat, Caregivers, Inspirational, Nutrition, Research, Side effects, Support, Tips, Transplants|

A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:
Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)
 

1501, 2016

Maintenance therapy side effects nothing to brush off

By |January 15th, 2016|About Pat, News, Nutrition, Side effects, Tips, Transplants|

I’m part of the club: experiencing side effects caused–in part–by ongoing maintenance therapy.

1401, 2016

Fast recovery thanks to support from so many amazing friends

By |January 14th, 2016|About Pat, Caregivers, Support, Transplants|

It’s official. We didn’t win the Powerball jackpot. One of our tickets did match three numbers, so I should get most of my $20 back. Turns out there were three winners, so there “only” would have been 300 million available to donate for myeloma research. It would have been fun to see what kind of […]

501, 2016

Stem cell transplant fallout front and center in 2016 (Part Two)

By |January 5th, 2016|About Pat, Side effects, Tips, Transplants|

I kicked off my 2016 posts yesterday this way: “Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects… Still plenty of drama to kick off 2016.”

401, 2016

Stem cell transplant fallout front and center in 2016 (Part One)

By |January 4th, 2016|About Pat, News, Tips, Transplants|

Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects. Like many of you, bumps in the medical insurance road have bubbled up unexpectedly. Still plenty of drama to kick off 2016.

2812, 2015

My Patient Power interview at ASH

By |December 28th, 2015|About Pat, Side effects, Therapy, Transplants|

Saturday I shared a link to an interview Jenny Ahlstrom did with me the second day at ASH. Can’t get enough of me unabashedly sharing my opinions about myeloma therapy options on video? Then fasten your seatbelts! CLL survivor and dear friend, Carol Preston, interviewed me at ASH for Patient Power.

2612, 2015

Video highlights of my first few days at ASH

By |December 26th, 2015|News, Therapy, Transplants|

Good friend and fellow myeloma survivor, Jenny Ahlstrom, is a lot better at the technical side of blogging than I am. She uses a lot of video on her site. Jenny interviewed me on Sunday at ASH. You can listen to it here:

1812, 2015

An amazing emotional roller coaster ride

By |December 18th, 2015|About Pat, Diagnostics, News, Side effects, Transplants|

I promised to follow up on yesterday’s amazing news. Dr. Tricot reassures me that my tests confirm there isn’t any active myeloma left.

1612, 2015

Everything you didn’t know you wanted to know about C. diff

By |December 16th, 2015|About Pat, Side effects, Tips, Transplants|

I unceremoniously experienced my first case of C. diff during the first of my two, modified autologous stem cell transplants this summer. All I knew is everyone wore yellow paper gowns when they came in and out of my room–and I needed to pull an IV pole with me as I sprinted the six steps […]

1412, 2015

Back to ASH: Ninlaro and Pomalyst combo promising

By |December 14th, 2015|About Pat, News, Research, Transplants|

Before I pass along important information about Takeda’s new oral proteasome inhibitor, Ninlaro (ixazomib), I wanted to share an update about how I’m doing.

1312, 2015

BMT Bondage

By |December 13th, 2015|About Pat, Caregivers, Side effects, Transplants|

I’m feeling a much better today. I was in such a dark place. Feverish and saddled with abdominal pain and now nine days of diarrhea, To be wheeled from ICU up to the BMT unit was discouraging beyond words. But as so many of reminded me with love and certainty, “It will get better!”

1212, 2015

I’m tired of being sick

By |December 12th, 2015|About Pat, Side effects, Transplants|

They moved me from the University of Iowa ICU to the 7th floor BMT Unit late last night. I’d like to say that I’m resting comfortably. Still no fun on so many levels, but I am feeling well enough to get up and get around.

1112, 2015

I’m in the ICU

By |December 11th, 2015|About Pat, Side effects, Transplants|

I left Orlando Wednesday afternoon. Sorry that I didn’t post Thursday, but I was too sick–and in too much pain to do anything but moan, groan and sleep.