The commonly used name here for plasmapheresis is plasma exchange. I”m being hooked up for my third, three hour round of plasma exchange. Honestly, I’m in pretty bad shape.
Plasmapheresis and dialysis on the same day? My body is buzzing; literally buzzing. But it all seems to be working.
As difficult as my myeloma journey has become, the one silver lining has always been my excellent kidneys; no worries on that front. That all changed today. I learned today that my kidneys are/have failed.
I’m a medical mystery. Why should I be surprised? Some of the medical news is good. But overshadowing basic improvement are a long list of unanswered questions. I’ve never had more blood drawn in my life!
It’s been 100 days since I received an infusion of over 8 million of my own stem cells in October. Even though it was my second stem cell transplant in less than six months, this is uncharted territory for me.
Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire!
No fever. Resting heart rate down to 80 beats a minute. Oral supplementation at home brought my potassium and magnesium levels up to normal levels. My oncology nurse, Deb, started the IV in my left hand on the first stick Monday. What could go wrong?
A lot has happened since I ran two of the final installments about the importance of controlling blood glucose by Danny Parker:
Blood Glucose, MGUS, Myeloma & Metformin (Part Seven and Eight)
I’m part of the club: experiencing side effects caused–in part–by ongoing maintenance therapy.
It’s official. We didn’t win the Powerball jackpot. One of our tickets did match three numbers, so I should get most of my $20 back. Turns out there were three winners, so there “only” would have been 300 million available to donate for myeloma research. It would have been fun to see what kind of […]
I kicked off my 2016 posts yesterday this way: “Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects… Still plenty of drama to kick off 2016.”
Euphoria over a myeloma free PET scan doesn’t make everything else OK. I’ve been struggling with post transplant side effects. Like many of you, bumps in the medical insurance road have bubbled up unexpectedly. Still plenty of drama to kick off 2016.
Saturday I shared a link to an interview Jenny Ahlstrom did with me the second day at ASH. Can’t get enough of me unabashedly sharing my opinions about myeloma therapy options on video? Then fasten your seatbelts! CLL survivor and dear friend, Carol Preston, interviewed me at ASH for Patient Power.
Good friend and fellow myeloma survivor, Jenny Ahlstrom, is a lot better at the technical side of blogging than I am. She uses a lot of video on her site. Jenny interviewed me on Sunday at ASH. You can listen to it here:
I promised to follow up on yesterday’s amazing news. Dr. Tricot reassures me that my tests confirm there isn’t any active myeloma left.
I unceremoniously experienced my first case of C. diff during the first of my two, modified autologous stem cell transplants this summer. All I knew is everyone wore yellow paper gowns when they came in and out of my room–and I needed to pull an IV pole with me as I sprinted the six steps […]
Before I pass along important information about Takeda’s new oral proteasome inhibitor, Ninlaro (ixazomib), I wanted to share an update about how I’m doing.
I’m feeling a much better today. I was in such a dark place. Feverish and saddled with abdominal pain and now nine days of diarrhea, To be wheeled from ICU up to the BMT unit was discouraging beyond words. But as so many of reminded me with love and certainty, “It will get better!”
They moved me from the University of Iowa ICU to the 7th floor BMT Unit late last night. I’d like to say that I’m resting comfortably. Still no fun on so many levels, but I am feeling well enough to get up and get around.
I left Orlando Wednesday afternoon. Sorry that I didn’t post Thursday, but I was too sick–and in too much pain to do anything but moan, groan and sleep.