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Pat’s Myeloma Survival School Registration

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Pat’s Myeloma Survival School 2017

Friday, Mar 3, 2017 – Sunday, Mar 5, 2017

10:00am – 1:00pm

AMELIA SUNRISE2017 Pat’s Myeloma Survival School

March 3-5, 2017

It’s almost time to head to Fernandina Beach,FL!  Come and join us for the most up to date information from oncologists, researchers, pharmaceutical options, physical therapy and exercise, diet and overall well-being, to live a better quality of life with Multiple Myeloma. We have a weekend full of speakers sharing information and answering questions you may have all while enjoying a relaxed and fun environment with friends, old and new. Here is a sample of topics and speakers we have lined up:

Friday, March 3rd

Theme of the day “Physical Therapy”

We have a very special treat! We have Melanie House, DPT, NCS from Department of Rehabilitation Therapies, University of Iowa Hospitals and Clinics, Adult Bone Marrow Transplant Unit, Iowa City, IA, heading a “Free personalized therapeutic massage evaluation and treatment” specifically designed for the person with Multiple Myeloma. Patients and their caregivers are eligible for this special offer, included with their $60 Registration Fee. There are a limited number of spaces for this so please REGISTER TODAY to reserve your space!

Melanie will then be speaking on “Indications and Precautions for Manual Therapy with Multiple Myeloma”, followed by breakout session of:

#1 “Focused Exercise Program for Stem Cell Transplant”, Melanie House, DPT, NCS
#2 “Lessons Learned: A PT’s Journey, As Patient, Through Tandem Transplant”, Leah Lenz, MSPT, CEP, CSCS
#3 “Massage Demonstration for Caregivers” Daphne Moeller, LMT, Coastal Massage Therapy, Fernandina Beach, FL, Tony Crawford, LMT, Jacksonville, FL

Then “Total Therapy Demystified” Guido Tricot, MD, Ph.D., Director, Bone Marrow Transplant and Multiple Myeloma Program, Holden Comprehensive Cancer Center, University of Iowa Hospitals and Clinics

Saturday, March 4th

“Basic Survival Strategies” Dave Visel, “The Multiple Myeloma Survival Guide”
“Survivorship Care for Multiple Myeloma Patients and Caregivers” Tracy Bonds, RN, Cliical Nurse Educator, Amgen

“The CrowdCare Mission” Jenny Ahlstrom, CrowdCare (Remember Silent Auction Proceeds go to CrowdCare!)

“Leading Clinical Trials for Myeloma Patients and what these Trials are Teaching Us”

“Developments in Myeloma Therapies” Dr. Asher Chanan-Khan, MD: Professor and Chair, Hematology/Oncology, Mayo Clinic, Jacksonville

“Protect Your Kidneys” Mary Doyle Faculty Administrator and Maria Mercado, Patient Liason, New Port Richie Kidney Center, New Port Richie, FL

“Preventing Osteonecrosis of the Jaw” John Killip, DDS, Myeloma Patient, Professor Emeritus, University ofMissouri, School of Dentistry, Kansas City, MO

“Understanding Lab Values” Kena Miller, RN, Takeda Oncology

“Taking Care of the Caregiver” Ann Pacowta, Regional Director, International Myeloma Foundation

“The Stem Cell Transplant Experience” John Killip, DDS, MMJP Program, Sanofi

“Empliciti” Bristol Myers Squibb

“A Myeloma patient’s war on Myeloma” Tony Blau, Professor of Medicine/Hematology,

“When Myeloma Hits Home” Sibel Blau, MD, Medical Director, Rainier Hematology-Oncology, Clinical Associate Professor, Division of Hematology
University of Washington

Sunday, March 5th
“MMRF Research Update” Anne Quinn Young, MPH, VP, Development and Strategic Partnerships, MMRF, Norwalk, CT

“Promising Myeloma Drug Research” Brian VanNess, PhD, Head, Dept of Genetics, Cell, Biology and Development, University of MN Cancer Center

“My Life is Worth It” Bob Tufts, Myeloma Patient, Former Major League Baseball Player, Now teaches at three East Coast Universities, talks to us about values and goals.

We will also have our Silent Auction and Beach Walk as we do each year with proceeds to benefit “CrowdCare” to fund much needed clinical trials! To Register for the Beach Walk on Saturday Morning, click here:

We have booked blocks of rooms at local hotels in the area. We will post contact numbers, information and pricing soon!

See you in Fernandina Beach FL!


 We are limited on space and with the amazing content of this event, we will fill up quickly!

Event Location

Fernandina Beach Womens Club
Fernandina Beach, FL, 32043

Event Fees

$ 60.00