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23 07, 2013

Best video I’ve ever watched about MDS

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Myelodysplastic syndrome (MDS) results in the bone marrow not producing enough normal blood cells for the body to function properly.  It isn't unusual for multiple myeloma patients to develop MDS after undergoing years of chemotherapy.  I just watched the best video I've ever seen on this rare hematological disorder--and I'm not just saying that because

25 04, 2013

Is it reasonable to delay transplant? YES! But myeloma establishment doesn’t agree

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A reader emailed me yesterday and asked how many subscribers/readers I have.  I responded, "We are currently averaging between 1,200-1,300 page views daily."  That translates into between 500-600 daily readers, best I can tell.  April 5th I wrote a "catch-all" post that blows these numbers away.  Almost 2,300 people have read this post in less

26 01, 2013

Myeloma Cinderella: Disease vs Therapy (Part One)

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After a couple days change of pace, time to return to "myeloma 101."  Except suzierose's column this week is very technical--more graduate school level.  But don't let that detour you!  This weekend our very own Myeloma Cinderella finds more morsels of hope for high risk multiple myeloma patients:   Part One of Disease vs Therapy

15 05, 2011

Let’s Try To Make Sense Of The "Alphabet Soup" Used To Describe Stem Cell Transplants For Multiple Myeloma Patients

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Saturday I wrote in detail about my meeting with my myeloma specialist at Moffitt Cancer Center: Details From Thursday's Disappointing Visit With Dr. Alsina At the end of the article, I promised to cover the pros and cons of inpatient versus outpatient stem cell transplant care today. But before I use my pre-transplant experiences to highlight the advantages

24 01, 2011

One Thing Is Certain: There Is Still No Clear-Cut Direction In The Confusing World Of Multiple Myeloma Therapy

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Whether you are a newly diagnosed patient or long term survivor, there is still lots of confusion over which anti-myeloma therapies should be used and when.Let's use this interesting, "outsider's" look as an example of this--using stem cell transplants to treat multiple myeloma from a Website called Health Articles 101:Autologous Stem Cell Transplant in Multiple Myeloma

10 11, 2010

French Study Focuses On Wisdom Of Using Stem Cell Transplants In Older Multiple Myeloma Patient Populations

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Here is a link to a study published this fall which has important ramifications for older multiple myeloma patients:Multiple Myeloma in the Elderly: When to Treat, When to Go to Transplant By JEAN-LUC HAROUSSEAU, MDDirector, Professor of Hematology, University of Nantes, Nantes/Saint Herblain, FranceThis isn't just a link to an abstract.  Thanks to Cancer,

9 08, 2010

New Clinical Oncology Newsletter Article Analyzing ASCO Study Findings About Using Revlimid Maintenance Therapy

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Here is an article I found in this week's Clinical Oncology newsletter.  No new news, but some insight into how stats effect progression free surivival (PFS).In Multiple Myeloma, Maintenance Therapy After Transplant Improves PFS Ted BosworthChicago—Maintenance therapy with lenalidomide (Revlimid, Celgene) greatly improves progression-free survival (PFS) in patients with multiple myeloma (MM) after autologous stem

11 07, 2010

European Hematology Association Finds Donor Stem Cell Transplants Are Not More Effective Than Existing Treatments For Multiple Myeloma

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Friday I wrote about my four part series featured on/in The Myeloma Beacon.  The Beacon is an excellent, independent source for multiple myeloma related news.  Here is an example:Donor Stem Cell Transplant Is Not More Effective Than Existing Treatments For Multiple Myeloma (EHA 2010) by Melissa Cobleigh, July 9, 2010 The results of a recent

19 03, 2010

Newly Diagnosed Multiple Myeloma Patients: Should You Go Directly To Stem Cell Transplant Or Should You Wait?

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I write this blog each and every day from a patient's perspective.  But considering the e-mails I get requesting advice from other patients and caregivers, I aspire to learn as much as I can about our cancer.  I want to be as informed as possible when I respond to my new friends--and I need to learn as

21 02, 2010

Real World/First Hand Patient Account Of How Different Novel Therapy Combinations Can Work In Unexpected & Surprising Ways

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I get e-mails from multiple myeloma patients like this one each and everyday.  I found Dick's story both compelling and instructive: Pat, I was diagnosed IIIB light chain in 2001 at the age of 65 and treated with pulsed dex initially, followed by ASCT in June, 2002. This gave me 3 years of CR. As