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C. diff

Home/Tag:C. diff
20 01, 2016

It shouldn’t be so hard to get excellent care

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Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire! It's disheartening for me to admit it, but without a dedicated caregiver advocate--or patients like us that work tirelessly to stay up-to-date--it's likely that the care received by someone who isn't paying attention

18 01, 2016

Medical Update: Stinky news

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Rough weekend. As I explained in a post last week, I'm not used to backsliding--post transplant--once I start improving. Once again, diarrhea is a real problem. Imodium or Lomotil is only slowing things down for three hours at a time, making this the "I'm in danger of becoming dehydrated," type of diarrhea. Is that why

18 12, 2015

An amazing emotional roller coaster ride

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I promised to follow up on yesterday's amazing news. Dr. Tricot reassures me that my tests confirm there isn't any active myeloma left. Yet I didn't go into our meeting expecting such good news. Late Wednesday night I was able to take a sneak peek at my PET scan results Tuesday. I’m usually pretty good

14 12, 2015

Back to ASH: Ninlaro and Pomalyst combo promising

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Before I pass along important information about Takeda's new oral proteasome inhibitor, Ninlaro (ixazomib), I wanted to share an update about how I'm doing. Much better, thank you very much!  Squirting a shot of vancomycin liquid into the back of my mouth (yuck) every six hours seems to be doing the trick. Another antibiotic, Flagyl,

13 12, 2015

BMT Bondage

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I'm feeling a much better today. I was in such a dark place. Feverish and saddled with abdominal pain and now nine days of diarrhea, To be wheeled from ICU up to the BMT unit was discouraging beyond words. But as so many of reminded me with love and certainty, "It will get better!" Funny

12 12, 2015

I’m tired of being sick

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They moved me from the University of Iowa ICU to the 7th floor BMT Unit late last night. I'd like to say that I'm resting comfortably. Still no fun on so many levels, but I am feeling well enough to get up and get around. I did eat oatmeal for breakfast and part of a

11 12, 2015

I’m in the ICU

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I left Orlando Wednesday afternoon. Sorry that I didn't post Thursday, but I was too sick--and in too much pain to do anything but moan, groan and sleep. A was already in bad shape when I arrived in Detroit to catch my connecting flight to Iowa City for tests. Missed the tests, ended up in