I kicked off my 2016 posts yesterday this way: "Euphoria over a myeloma free PET scan doesn't make everything else OK. I've been struggling with post transplant side effects... Still plenty of drama to kick off 2016." Monday I wrote about how stressful insurance mix-ups can be. And I didn't even get into the financial
Thursday I ran an emotional post about being "myeloma free." Everyone understands that's only an expression, right? Few myeloma patients/survivors are ever truly cancer free. That's one of the infuriating things that sets our blood cancer apart from so many others. Once it develops, it is nearly impossible to ever rid ourselves of myeloma completely.
After stepping-back and taking some time to establish her own rockin' blog, Myeloma Cinderella is back. What a treat! Back to back columns from my two favorite contributors. WARNING: You are leaving my acronym-free zone Myeloma Cinderella is big on acronyms--the alphabet soup I try to avoid--and often uses terms I don't normally use. I
Today Nick break's Total Therapy (TT) down into distinct segements; induction, transplants, consolidation and maintenance. Total Therapy Demystified (Part Two) Multiple myeloma survivor and Total Therapy Patient Nick van Dyk PHASE ONE: INDUCTION In traditional conservative treatment approaches, induction refers to the use of one or more agents to reduce disease burden before a transplant.
I met with my myeloma specialist, Dr. Melissa Alsina, at Moffitt Cancer Center in Tampa yesterday. Great news! After completing my third, six week full dose RVD chemotherapy cycle, I learned that my monclonal protein reading (M-spike) has continued to edge downward. Let me back-up and fill-in a few of the blanks for our new
I'm heading-off to Moffitt Cancer Center first thing this am to meet with my myeloma specialist, Dr. Melissa Alsina. My worsening M-protein test numbers--or M-spike--a few months following my autologous stem cell transplant were alarming. Today I learn just how well my consolidation, post-SCT therapy using Revlimid, Velcade and dexamethasone is working. After five weeks
Two weeks ago, myeloma expert, Dr. Robert Orlowski, at M.D. Anderson in Houston, Texas, recommended a re-test to verify my M-protein levels had indeed gone up--instead of down--following this summer's autologous stem cell transplant. Interestingly, my mother and wife both suggested the same thing. My myeloma doc, Melissa Alsina agreed. So last week I drove
I have been struggling with starting a systematic review of my recent post-transplant set-back. This is unusual, since I rarely if ever get anything resembling writer's block. But Pattie just suggested that I write about that--about how difficult I'm finding it to write about all of this. One wonderful thing holding me up: The hundreds
What Our Doctors Read Influences How Patients Are Treated – For Now That Means Using Lots Of Drugs & Invasive, Expensive Transplants
What our doctors read in medical journals and publications which summarize research results and new therapy trends greatly influences how they are likely to act.Case in point: Here is an article from the trade publication, Internal Medicine News about what is soon to be considered the "standard of care" for multiple myeloma patients:ORLANDO – For patients
Saturday I started sharing some basics for newly diagnosed multiple myeloma patients and caregivers, Tips To Raise Your Multiple Myeloma IQ.We covered the what, how's and why's about interpreting a prognosis, how genetic abnormalities can complicate a diagnosis and understanding median life expectancy. I can't emphasize enough how important it is to get a second opinion