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CrowdCare Foundation

Home/Tag:CrowdCare Foundation
27 01, 2016

Isn’t battling myeloma hard enough without having to raise money, too?

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An amazing over-the-top (pun intended) multiple myeloma awareness and fundraising mountain climbing adventure scaling Mr. Kilimanjaro sponsored by the MMRF: https://m.facebook.com/media/set/?set=a.10153334017497918&type=3&l=f16f8c5178 February 1st, CrowdCare Foundation will launch a safer, but just as exciting Muscles for Myeloma Challenge fundraiser. Our Pat's Myeloma Beach Walk will be part of the extended project. More about that soon. Both

27 11, 2015

T cell immunotherapy advancing rapidly

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Tuesday night I was part of a panel that questioned myeloma T cell therapy pioneer, Dr. Ivan Borrello of Johns Hopkins in Baltimore. The hour shed light on how and why researchers are so hopeful about the potential of T cell immunotherapy. Here is the replay link to the broadcast, courtesy of Cure Talks: http://www.curetalks.com/event/rsvp/A-Novel-More-Precise-and-Effective-T-Cell-Immunoth/243/

17 10, 2015

Thank you rant

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A number of you have already contributed to help CrowdCare Foundation fund a pair of cutting edge T cell trials in Germany and John Hopkins in Baltimore. THANK YOU! For those of you on-the-fence, I wanted to share some good news. A friend has agreed to match any contribution—dollar for dollar—up to a total of

12 10, 2015

We can’t wait for a cure!

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I had a chance to see myeloma patient and CrowdCare Foundation co-founder, Jenny Ahlstrom, in Boston last week. She made an impassioned plea to anyone that would listen to help her raise money to pay for two cutting edge T cell clinical trials; one in the U.S. and one in Germany. Here's information about the

21 08, 2015

CrowdCare Foundation betting on T cell therapy

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After hearing from dozens of you about your peripheral neuropathy--and what you do to help minimize the symptoms--I'm working on a two part series about it, sharing tips from more than 20 patients; I'll run the posts this weekend. In the meantime, here is CrowdCare Foundation's official press release, announcing our support for two important,

18 08, 2015

Cutting edge T cell research could help save our lives

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I've got some exciting news. My good friend and founder of the CrowdCare Foundation, Jenny Ahlstrom, announced the two groundbreaking clinical trials we plan to help fund today. Regular readers will remember that I'm a member of CrowdCare Foundation's Patient Advisory Board. We've spent the last eight months searching for underfunded research most likely to

21 05, 2015

Exciting new research needs funding

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May 13th I was part of a patient panel asking researchers, Dr. Carmen Baldino, PhD, and Dr. Kelvin Lee, MD.  They are working on an incredible new myeloma therapy that may be able to cure--YES, CURE--patients with 14;16 genetic translocations; sort of a lucky genomic loophole. My dear friend and colleague, CrowdCare Foundation's Jenny Ahlstrom,

11 05, 2015

Decision time: modified auto, allo or drug roulette? (Part One)

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I ended Saturday's post this way:  "I’ve had an epiphany.  I like the sound of  'in my future.'  This has been a game changing week for me, full of amazing coincidences, reaffirming phone calls–and signs.  Some 'signs' are too improbably to ignore." I've spend the last several months focused on which late stage myeloma therapy

26 04, 2015

Musical tribute to myeloma patients

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Myeloma survivor and CrowdCare Foundation co-founder, Jenny Ahlstrom, is also an aspiring song writer.  Jenny's shy; she reluctantly performed for us last month at Pat's Myeloma Beach Party.  Great voice! Jenny has written a song about her battle with cancer; all proceeds of her new CD to be donated to CrowdCare.  Here's the link to