As most of you know, I've been facing the toughest therapy decision of my eight year multiple myeloma journey. But this week's series of posts aren't about me. They are a culmination of what I've been working on for years: collecting patient testimonials and feedback that can help all of us make life extending, uber-informed
I've never run a consecutive, four part series before. Seemed to go over well. Lots of emails and positive feedback. It was kind of Chuck to be so open and share with us that way, don't you think? In the meantime, some news and notes I'd like to share have been piling-up. Let me get
Things have been hectic and I’ve been out-of-touch this week. I’ll explain why tomorrow. It must have been crazy for me to forget my “birthday.” It was two years ago Monday that my stem cells were infused back into my body following high dose chemotherapy. In other words, this is the second anniversary of my
To start, I would like to apologize to a number of readers that never saw their comments published. I normally receive an email whenever someone comments on any post--or so I thought. But I learned today that there were 27 comments from the past week or so waiting to be approved by “the Administrator.” HEY!
Have myeloma docs been too quick to dismiss option of using allo (donor) stem cell transplants as initial therapy?
Allogeneic (donor) stem cell transplants aren't used much in multiple myeloma patients anymore. And when they are, it is most often as a salvage therapy "hail Mary" type last resort that usually doesn't work very well. However, several of our regular readers have had good luck whith allos when used up-front as an early therapy.
It was easy to become a bit discouraged as I wrote my book last year, Stem Cell Transplants from a Patient's Perspective. As I interviews lots of donor transplant patients, it didn't take long to figure out that their side-effects were significant and long lasting. But I did speak with a few that tried mini