Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire! It's disheartening for me to admit it, but without a dedicated caregiver advocate--or patients like us that work tirelessly to stay up-to-date--it's likely that the care received by someone who isn't paying attention
What did you do on Monday? Mine was wall to wall medical. At least the news was all GREAT! It’s a good thing I feel well enough to drive. Monday started out with a visit to my local oncology clinic at 8:30 am, and ended with a visit to see my new primary care doc.
My four day long, unrelenting fever is ongoing. I described it as a "neutropenic" fever yesterday, because it felt so much like a half dozen others I've had in the past. Turns out I was wrong. These were asymptomatic fevers, triggered by low neutrophil (mature white blood cell) counts following my first autologous (using my
Let's wrap up this series of posts (for now). Do I allow Dr. Tricot to hit my myeloma hard before, during and after a second stem cell transplant, or continue to follow an incremental approach that uses the least toxic treatment combinations possible? I'm not crazy about either choice. I believe there is a third
I rarely get writer's block. A reporter from the Jacksonville newspaper just emailed me a list of questions about our beach party event next week. I answered them without giving it a second thought. But writing today's post has me stumped. This is real life or death stuff. I've heard from several good friends over
Plain and simple, I'm exhausted! We have company staying here at the house, I've come down with Pattie's cough and beach party event planning is on overdrive. I don't have the time or energy to contemplate my disintegrating future now. I did get a chance to visit with my medical oncologist, Dr. Mathew Luke, for