My M-spike is creeping up again. More bone pain. And we're moving at the end of the month. Life's a lot of things, but at least it's not dull! To recap, I saw Dr. Roy last Friday, Dr. Alsina at Moffitt Cancer Center in Tamp on Monday and Dr. Malhotra at Florida Cancer Specialists Wednesday.
I concluded Saturday's post this way: "Tomorrow I will reveal what my topnotch medical team decided to try and knock my myeloma back into submission. Here's a hint: I was pleasantly surprised; it was a unanimous decision!" In past posts--and this month's Myeloma Beacon column--I had expressed concern that my healthcare team and I were
I'm exhausted! It has been a long week. I know a lot more now than I did on Monday; all I felt then was acute pain. It was so intense I could feel spasms ripple across my back and abdomen. X rays couldn't confirm that one or more ribs were fractured "at this time." Instead
SNAP! POP! There goes a rib? Friday's post wasn't wrong. It simply didn't go far enough. After three days, my pain and range of movement had actually started to improve. That all came crashing down on Sunday. I inadvertently used both my left and right arms to get up late in the day. Until then,
I try to publish my posts by 10 am Eastern time every day. That deadline is "soft," especially on the weekends. If I don't post on time, some of you email me, worried that something is wrong. Normally it's a merely a scheduling conflict if I'm late. But not today. Today your concern was warranted.
Who knew maintenance therapy could be so hard? My white blood count has a history of being suppressed by Revlimid. No surprise there. And my counts have always bounced-back following a week of rest. But since my stem cell transplant 15 months ago, that reliable resiliency has vanished. The absolute neutrophil count (ANC) is a
A few days ago I continued my narrative about how and why the "half-life-effect" is nothing more than an oncology-related rule of thumb--and how the post SCT re-set effect might work in certain patients. I opened my last post by sharing a discussion I had with the head of the BMT department at Moffitt Cancer
Yesterday I explained how "the half-life effect" is nothing more than an oncology related rule of thumb. I went on to add how when most cancers become drug resistant, even new, otherwise effective therapies tend to work for a shorter period of time--and how this is especially true with multiple myeloma. I have always been
I met with my myeloma specialist, Dr. Melissa Alsina, at Moffitt Cancer Center in Tampa yesterday. Great news! After completing my third, six week full dose RVD chemotherapy cycle, I learned that my monclonal protein reading (M-spike) has continued to edge downward. Let me back-up and fill-in a few of the blanks for our new
I want to apologize. I try to publish my posts each day by 10 am Eastern time. Well, it's now 3 PM. I just received a call from a reader, wondering if I'm OK. I love that! Unfortunately, I'm not OK. Two weeks ago I spent close to a week recovering from the worst cold
Two weeks ago, myeloma expert, Dr. Robert Orlowski, at M.D. Anderson in Houston, Texas, recommended a re-test to verify my M-protein levels had indeed gone up--instead of down--following this summer's autologous stem cell transplant. Interestingly, my mother and wife both suggested the same thing. My myeloma doc, Melissa Alsina agreed. So last week I drove
I am up at 6 am writing this. Severe leg cramps every time I try to lay back down. Fortunately, things settle down after five or ten minutes of standing and leaning against the counter in the kitchen. Then I'm able to sit at my work station with little or no discomfort. Guess someone is
Yesterday I wrote this, following a long day of pre-planning for my upcoming stem cell transplant (SCT) at Moffitt Cancer Center: I would like to re-visit the important issues of housing, scheduling and pre/post transplant planning Sunday. Tomorrow I will outline everything Dr. Alsina covered with me and Pattie during our appointment. But for now,
I completed my third infusioin of Velcade/dexamethasone yesterday around 3 PM. Several hours before I was scheduled to begin, I experienced a severe pain in my left side.At first I thought it might be a pulled muscle. I hadn't been doing anything strenuous--just some light gardening. But the pain didn't improve with time. In fact,
Three weeks ago I began my first of three scheduled cycles of RVD (Revlimid/Velcade/dexamethasone). My myeloma specialist, Dr. Melissa Alsina at Moffitt Cancer Center in Tampa, placed the order. Since Moffitt is located more than an hour from my home, My medical oncologist, Dr. Vikas Malhotra with Florida Cancer Institute in Spring Hill, Florida, is