I'd made my decision: no transplant. The majority of myeloma experts--especially transplant docs--agreed. So did Pattie. Then a single phone call changed it all. Pattie and I had literally just decided on which way to go with my latest late stage therapy. I would forgo a salvage autologous stem cell transplant, trusting my luck using
I went back and edited yesterday's post; too many typos when I edit and publish late at night. I don't want to get bogged down with too many details, but I'm hoping what I report will help others like me. Hoping to see Dr. Chanan-Khan last week, I never did get any Cytoxan. Now Dr.
Sorry my post is so late this weekend. I got caught up in enjoying Saturday; going to the farmer's market with Pattie, cleaning the pool, cooking dinner and watching Wisconsin win another nail biter against Arizona to got the the NCAA Final Four in men's basketball--for the second year in a row. Yes, I've calmed
Last night I had the opportunity to interview one of the busiest stem cell transplant experts in the United States: Dr. William Bensinger from Seattle. I try not to ask personal medical questions during my interviews. But now is not the time to stick to shy and stick to the script! My first two questions
At the end of Saturday's presentations I shared something very personal with our group. I wrote a five part series of posts after I returned from seeing Dr. Tricot in Iowa. To review, Dr. Tricot recommended that I immediately switch my current treatment regimen from pomalidomide and dex to Kyprolis, Cytoxan and dex. Assuming it
Let's wrap up this series of posts (for now). Do I allow Dr. Tricot to hit my myeloma hard before, during and after a second stem cell transplant, or continue to follow an incremental approach that uses the least toxic treatment combinations possible? I'm not crazy about either choice. I believe there is a third
Doctors at Mayo Clinic, Jacksonville, biopsied three different spots today. Good thing Dr. Roy pulled some strings to get me in so quickly! I should know which ones need further attention next week. One was, "possibly melanoma." According to the attractive young resident that did the exam; an opinion that was shared by the attending.
I felt pretty lousy Sunday, yesterday afternoon and now this morning. Me? A hangover? I don't think the one beer I had Saturday evening while watching college football caused it. Nope, it's the pomalidomide. Monday afternoon and I didn't feel well. Fatigue and shortness of breath were most notable. Today I just don't feel like
Disappointing news. After dropping my M-spike from 0.7 to 0.4 the first month, my spike jumped back up to 0.6 this month. Two months on pomalidomide and I'm right back where I started. I know, I know. Lab numbers often jump around and vary from month to month. As a rule, mine haven't, but that
I was reflecting back on my myeloma journey during a walk along the beach last evening. Active lesions above my right hip and between my shoulders were especially painful. I'm sure we've all experienced it: how just the right spectrum of sunlight--or a certain song or long lost smell--can take us back to a forgotten
I'm touched and buoyed by the kind words, prayers and suggestions my friends and readers have shared more than you'll ever know! But as someone who tends to always be in a hurry and skims things can attest, sometimes it would be helpful if you read my entire post. I continue to get lots of
Drama in real time. I sat down to write today's post when my cell phone rang. It was Dr. Roy at Mayo Clinic. He was calling with results from yesterday's PET scan. The news wasn't good. I hadn't expected to hear from Dr. Roy until sometime next week. I continue to be impressed with Mayo
Pattie and I don't mess around! Most of the boxes are unpacked and we're getting settled in to our new home. The renovations are dragging along; nothing we can do about that. New pool is seven weeks late and counting. The whole is dug, concrete is in and everything is plumbed and wired. That leaves
No ASCO blockbusters. Some significant data was presented. But as I mentioned yesterday, nothing time sensitive. So today I would like to write briefly about what could be a life changing meeting tomorrow at Mayo Clinic. OK, I'll admit it. I'm apprehensive about my appointment with my new myeloma specialist, Dr. Roy. My first impressions
My M-spike is creeping up again. More bone pain. And we're moving at the end of the month. Life's a lot of things, but at least it's not dull! To recap, I saw Dr. Roy last Friday, Dr. Alsina at Moffitt Cancer Center in Tamp on Monday and Dr. Malhotra at Florida Cancer Specialists Wednesday.