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Dr. Roy

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29 03, 2015

My head is spinning…

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Sorry my post is so late this weekend.  I got caught up in enjoying Saturday; going to the farmer's market with Pattie, cleaning the pool, cooking dinner and watching Wisconsin win another nail biter against Arizona to got the the NCAA Final Four in men's basketball--for the second year in a row. Yes, I've calmed

27 03, 2015

Why can’t I get my doctors to step up and help me!

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Last night I had the opportunity to interview one of the busiest stem cell transplant experts in the United States: Dr. William Bensinger from Seattle.  I try not to ask personal medical questions during my interviews.  But now is not the time to stick to shy and stick to the script! My first two questions

25 03, 2015

Bad news from my Mayo Clinic specialist

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At the end of Saturday's presentations I shared something very personal with our group. I wrote a five part series of posts after I returned from seeing Dr. Tricot in Iowa.  To review, Dr. Tricot recommended that I immediately switch my current treatment regimen from pomalidomide and dex to Kyprolis, Cytoxan and dex.  Assuming it

14 03, 2015

Lessons learned: My 2nd opinion in Iowa (Part Five)

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Let's wrap up this series of posts (for now).  Do I allow Dr. Tricot to hit my myeloma hard before, during and after a second stem cell transplant, or continue to follow an incremental approach that uses the least toxic treatment combinations possible?  I'm not crazy about either choice.  I believe there is a third

11 11, 2014

Mayo Clinic drama–and some good advice from a reader

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Doctors at Mayo Clinic, Jacksonville, biopsied three different spots today.  Good thing Dr. Roy pulled some strings to get me in so quickly! I should know which ones need further attention next week.  One was, "possibly melanoma."  According to the attractive young resident that did the exam; an opinion that was shared by the attending.

16 09, 2014

Pomalidomide hang-over

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I felt pretty lousy Sunday, yesterday afternoon and now this morning.  Me?  A hangover?  I don't think the one beer I had Saturday evening while watching college football caused it.  Nope, it's the pomalidomide. Monday afternoon and I didn't feel well.  Fatigue and shortness of breath were most notable.  Today I just don't feel like

11 08, 2014

Multiple myeloma wins round two

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Disappointing news.  After dropping my M-spike from 0.7 to 0.4 the first month, my spike jumped back up to 0.6 this month.  Two months on pomalidomide and I'm right back where I started. I know, I know.  Lab numbers often jump around and vary from month to month.  As a rule, mine haven't, but that

5 06, 2014

Tomorrow’s Mayo Clinic visit is “the combo platter; the whole enchilada”

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No ASCO blockbusters.  Some significant data was presented.  But as I mentioned yesterday, nothing time sensitive.  So today I would like to write briefly about what could be a life changing meeting tomorrow at Mayo Clinic. OK, I'll admit it.  I'm apprehensive about my appointment with my new myeloma specialist, Dr. Roy.  My first impressions