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Dr. Tricot

Home/Tag:Dr. Tricot
20 01, 2016

It shouldn’t be so hard to get excellent care

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Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire! It's disheartening for me to admit it, but without a dedicated caregiver advocate--or patients like us that work tirelessly to stay up-to-date--it's likely that the care received by someone who isn't paying attention

18 12, 2015

An amazing emotional roller coaster ride

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I promised to follow up on yesterday's amazing news. Dr. Tricot reassures me that my tests confirm there isn't any active myeloma left. Yet I didn't go into our meeting expecting such good news. Late Wednesday night I was able to take a sneak peek at my PET scan results Tuesday. I’m usually pretty good

17 12, 2015

I’M MYELOMA FREE!

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Looks like our highly toxic gamble to try a pair of salvage autologous stem cell transplants worked! I'm at the airport getting ready to board a plane to Atlanta on the way home, so no time to post details... Still, I quickly wanted to share the good news with so many that have been sympathetic

26 06, 2015

Play the odds: What happens if your therapy doesn’t work?

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I wanted to backtrack and focus on what may be the most important factor when analyzing the state of my multiple myeloma: my dwindling number of therapy options. Yesterday I wrote: Apparently my current therapy combination of Cytoxan, carfilzomib (Kyprolis) and dex (CCd) was not as effective as Dr. Tricot had hoped.  He told me

17 05, 2015

Therapy karma catches up to me

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I understand some of you have endured difficult side effects while using Revlimid and/or Velcade.  Sure, walking around borderline neutropenic often left me feeling a bit fatigued.  But I was one of the lucky ones; except for later in the day of RVD therapy--which left me feeling wiped-out and fluish--Rev and Velcade were no big

11 05, 2015

Decision time: modified auto, allo or drug roulette? (Part One)

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I ended Saturday's post this way:  "I’ve had an epiphany.  I like the sound of  'in my future.'  This has been a game changing week for me, full of amazing coincidences, reaffirming phone calls–and signs.  Some 'signs' are too improbably to ignore." I've spend the last several months focused on which late stage myeloma therapy

28 04, 2015

It’s the dex!

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Dr. Tricot chose to administer CcD every other week, so my bone marrow would have time to recover between cycles.  I started round two of my Cytoxan/Kyprolis/dexamethasone (CcD) yesterday afternoon.  If you recall, the combination really wiped me out two weeks ago. So I get Kyprolis infusions (common name, carfilzomib; hence the small "c") on

27 03, 2015

Why can’t I get my doctors to step up and help me!

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Last night I had the opportunity to interview one of the busiest stem cell transplant experts in the United States: Dr. William Bensinger from Seattle.  I try not to ask personal medical questions during my interviews.  But now is not the time to stick to shy and stick to the script! My first two questions

14 03, 2015

Lessons learned: My 2nd opinion in Iowa (Part Five)

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Let's wrap up this series of posts (for now).  Do I allow Dr. Tricot to hit my myeloma hard before, during and after a second stem cell transplant, or continue to follow an incremental approach that uses the least toxic treatment combinations possible?  I'm not crazy about either choice.  I believe there is a third