More pictures from last weekend? Why not? Tomorrow is another college football Saturday. I'll share more then. But first I wanted to follow up on a very serious subject: reader responses to Tuesday's post, pleading for emotional help and support for me and my fellow myeloma patients and caregivers: Myeloma patients need emotional support
I've had to make some pretty tough therapy decisions lately. It got me thinking. Where do patients like us go for emotional support? Online? Hard for me to dis that approach. Support groups? They can be exceptional ways to learn more about our cancer. Phone counseling? Patient to patient mentoring? Seeing a therapist? How about
I had a rough night last night. It started innocently enough on the way back from an evening walk at the beach. Pattie and I had spent much of the afternoon planning for my midsummer stem cell transplant trip to Iowa City; lining up caregivers, making final arrangements for a rental car and spending an
I've been accumulating a wide variety of helpful information since the start of the start of the new year. Not enough to post about one by one, but I didn't want that to stop me from passing them along. Onyx (now a division of Amgen) has been working hard to expand FDA approval of Kyprolis.
I received a number of insightful emails in response to last Thursday's post, The emotional side of multiple myeloma can be devastating. I especially liked what Jeff from California had to say. Here's an edited version of one of the thoughtful emails he shot my way: Yes, the first couple of months after my June,
I had an opportunity to meet one of our readers earlier this month. I met Susan and her husband and caregiver, Bob, for lunch at a fun southern style diner near my home in Fernandina Beach. Susan and I have been exchanging emails for years. The couple lives in New Mexico, their kids in Colorado.
Joan is always busy taking care her husband and myeloma patient, Don, along with their rural home and garden in the Hocking Hills of Ohio . She emails me daily, sharing frustrations about Don's doctors, the cold, lousy weather and Don's cantankerous demeanor. Don is a lot older than I am, but we have something
Prayer. I receive dozens of emails each week from readers kind enough to mention that they're praying for me. I think it helps! Knowing I have so many friends supporting me is encouraging. This weekend I received an unusual request. Take a moment to read this touching email from Denise: Hello Pat- Thank you for
Yesterday I cryptically ended my post by writing that "my quality of life has taken a significant hit." I've been so busy writing about various other multiple myeloma related topics, I forgot to post an update about how I'm doing. Two weeks ago I wrote a post where I introduced the topic: My “little secret?”
Now, do these pictures look like a guy who has suffered both a mental and physical setback the past few weeks? That's my dear friend, Cindy Chmielewski, who kindly took the time to fly-down from New Jersey to speak to our Nature Coast Multiiple Myeloma Support Group last night. The weather was stormy, but as
I had an early appointment with the specialist that performed my hip replacement surgery this morning, so I'm late getting back to you. That's not all I had going this am. I also stepped across the street from Moffitt Cancer Center's main clinic building to visit the psych department. I'm serious about following-up and seeking
Yesterday I shared my feelings of being overwhelmed since my father's "turn for the worse" recently. Rack-up more phone calls and travel to my growing to-do list. Although sometimes I pause before I hit the PUBLISH button after I write such a personal entry, I almost always go ahead and post it. It isn't fair
I have several different items to share with you today. First, I have been saving a link to an in-depth article OncLive ran a week ago about the International Myeloma Foundation's power couple, Dr. Brian Durie and Susie Novis. The article features fascinating personal insights, most of which were new to me; and I know
Yesterday I wrote about a conversations I had with tough, never-say-die and long-lived multiple myeloma survivor, Dr. Arnold Goodman. The meeting meant so much to me I practically gushed with admiration over Arnie's ability to overcome the difficult hand he has been dealt. But I don't want to forget the reason we were there in