For those of you who haven't visited this site recently, you are in for a surprise! What should have been a non-event--getting my first post-transplant M-protein numbers Thursday--proved to be a jaw-dropping stunner: My M-spike actually rose from a pre-SCT number of 0.2, to a surprisingly higher 0.5. I received lots of emails and comments
I have been struggling with starting a systematic review of my recent post-transplant set-back. This is unusual, since I rarely if ever get anything resembling writer's block. But Pattie just suggested that I write about that--about how difficult I'm finding it to write about all of this. One wonderful thing holding me up: The hundreds
I've come a long way from when this picture was taken. I was still an outpatient following my auto stem cell transplant July 1st... My sister-in-law, Mary, took this shot while we were walking through a tropical nature park, called Lettuce Lake, which is located a few miles from Moffitt Cancer Center. Mary was acting
Today is the first "cool" day of our early fall season here on Florida's nature coast north of Tampa. "Cool means it started-out in the low 70's this morning, with a soothing north breeze. It will get up to the mid-80's today, but beats the steady march of 90+ degree days we see in August.
It's my two month "anniversary" today. It has been exactly two months since my stem cells were infused back into my body July 1st at Moffitt Cancer Center in Tampa. So how am I doing? GREAT! Thanks so much for asking! My energy level is good. I feel "normal" for much of each day, especially
A number of my readers are always asking for more pictures. Why not? Here a a shot of me and Nature Coast Multiple Myeloma Support Group Leader Dianne Terry. Dianne is a tireless caregiver to her husband, Herb. This was one of my first public appearances since returning home from my auto SCT. As you
I have been home one month post-stem cell transplant, following a 16 day inpatient and 7 day outpatient stay at Moffitt Cancer Center. So far, so good! Let's start with the numbers. At 4.0, my white count is in the normal range. Specifically, my lymphocytes (the most important type of white blood cell for fighting
OK, OK... I know I haven't been keeping everyone updated about how I'm doing, now seven weeks following my stem cell transplant. Most every day features some good parts and not so good parts. My stomach continues to be an issue. I am controlling the worst of it with medication and by eating lots of
Before I begin, I have a request for my fellow stem cell transplant survivors: Please hold your critical comments and emails, unless your are so upset you feel you must say something. In that case, please be kind... I know I messed-up this weekend. It wasn't the few sips of beer I had on Saturday.
How do my readers know I'm starting to feel better? I'm busier posting myeloma related news than I am writing about my own medical ups and downs. For those of you who follow my blog to read about how I'm doing, I apologize. I receive so many emails every day from readers with questions about
It is 4 am as I write this. I am tired and want to/need to sleep. Unfortunately, an upset stomach is preventing me from sleeping. I have made a lot of progress with my digestive issues the past two days. As a matter of fact, I have all but eliminated the problem during the day.
Yesterday I promised to share a few of my numbers--and how I'm doing with you. Today is a very good day. I have been having lots of digestive issues as my new stomach adjusts to life post SCT. Really--literally a new stomach--well, at least the lining. And the way it feels, maybe the acid "jets"
Is it an anniversary or a birthday? I'm not sure. All I know is I received my stem cell infusion one month ago today. In a lot of ways I'm amazed at how well I'm doing. Yes, I sleep several times a day. And my stomach continues to be upset most of the time. All
Today is Thursday. This was to be the big day--the day I got to go home. Since I didn't have to be at Moffitt until 10am, Pattie and her sister, Mary, helped pack up the room and check-out. There's a lot of stuff after 16 days, inpatient, and another week staying at the Marriot. Fortunately,
Barring an unexpected complication over the next few days, I'm heading home Thursday afternoon. This is great news! I feel like I'm ready now. I am trying to learn how to manage my nausea. Some days are better than others. But I am up and walking a mile or more each day. I'm still not
Let's jump right in with more ASCO news. Of course, there were lots of study results featuring new drugs used in combination with Revlimid and Velcade. As you should have noticed by now, the combination approach is the new "in thing" when treating myeloma. The Revlimid/Velcade/dexamethasone (RVD) induction combination I'm enduring now, prior to my stem
I'm guessing most of you have seen one of the movie versions of Invasion of the Body Snatchers. You know, the movie where aliens visit earth, using human bodies as hosts to take over the world. Movie poster from 1956 film Movie poster from 1978 film That's how I have felt the last two or
Did any of you happen to read comment following yesterday's post about the unsettling reaction I had earlier this week at my sub-q Velcade injection site?Lileng noticed how cramping was becoming a serious issue for me. She suggested taking chloride supplements 4x 600mg. She also found tonic water which has quinine to be helpful, too. Which
I am up at 6 am writing this. Severe leg cramps every time I try to lay back down. Fortunately, things settle down after five or ten minutes of standing and leaning against the counter in the kitchen. Then I'm able to sit at my work station with little or no discomfort. Guess someone is
Yesterday I shared how hard Velcade hits me within a few hours after my infusion. I then mentioned that I was stubbornly trying something new on the evenings following my treatment: "Most rational people would simply rest and take it easy, waiting for all of this to blow over. And it does--I always feel normal by morning.