Reliable healthcare. One would think all of the money spent on our behalf would guarantee a consistent standard of care. Au contraire! It's disheartening for me to admit it, but without a dedicated caregiver advocate--or patients like us that work tirelessly to stay up-to-date--it's likely that the care received by someone who isn't paying attention
My good friend, Gary Petersen, recently returned from his annual visit to UAMS in Arkansas with a clean bill of health. He's not far from being a decade myeloma free. I have written several times, asking why more newly diagnosed patients aren't encouraged to try Total Therapy. The upside is literally off-the-charts. Gary's remarkable run
I participated in a pair of engaging broadcasts recently. Friday, MD Anderson's Dr. Robert Orlowski spent over an hour answering questions from our Myeloma Cure Talk panel. And last night, I spent an hour sharing unvarnished reality with a pair of multiple myeloma survivors on our monthly on-air support group meeting. Dr. Orlowski's appearance was
My inbox is flooded with emails from readers wishing my father well. How kind and uplifting! I am buoyed by your positive energy and support; ready to tackle another day. Dad is a tough old guy! So much for hospice predictions that he would be gone in a matter of hours. That was two days
Tonight I'm taking part in an experiment. With the help of Priya Menon and the team at Cure Talk, we will be launching an on-air, nationwide multiple myeloma support group. The broadcast will begin at 6 PM Eastern time. Due to a scheduling snafu, it happens to air at the same time my local support
Sorry, but I need to delay Part Two of my expose' about stem cell transplant timing until tomorrow in order to take care of some important housekeeping. Last night I participated in a wonderful Myeloma Cure Panel broadcast featuring M.D. Anderson's Dr. Robert Orlowski. Dr. Orlowski is an exceptional myeloma expert. I would rank him
Earlier this year, suzierose, also know as Myeloma Cinderella, wrote several columns for us here at MMB. I have heard from several of you that enjoyed her work, wondering what happened and why she stopped. Those of you that read MMB regularly have noticed that she contributes in our comment section regularly. So what happened?
If you missed it, you can still listen to last night's Myeloma Cure Panel online support group webcast. Our good friend, Priya Menon, produced the broadcast and introduced our panel: Gary Petersen is the editor of myelomasurvival.com and a 6 year myeloma survivor. Gary works with Myeloma specialists to provide life expectancy and survival rate