I'm part of an important broadcast Monday evening. Myeloma specialist, Dr. Ola Landgren, has been too busy to do interviews since moving his practice to Memorial Sloan-Kettering Cancer Center in New York. He's making an exception of us. The topic: Can focusing on high risk myeloma help us find a cure? Remember, anyone who's relapsed
Any news clip, article or column about multiple myeloma that appears in the mainstream media always gets my attention. Myeloma survivor, Bob Tufts, makes some thoughtful points on his blog post last week in the Huffington Post. Here's a pair of excerpts: This cost-based line of reasoning would have harmed me when I was diagnosed
Wednesday our Cure Talk panel was fortunate to spend over an hour with Emory University's Dr. Sagar Lonial, a well known myeloma specialist. The focus was on ways to treat high risk multiple myeloma patients most effectively. I was pleased by how well the hour went. No real technical glitches. Intelligent questions from our panel
The promise of becoming part of exciting, new clinical trials can be intoxicating. But most only work for less than half of the patients that sign up. Here's an update from a Patient Snapshot alumnus, Chuck. Sounds like he's one of the unlucky ones: Pat, Rewinding to my last update: http://multiplemyelomablog.com/2014/05/patient-snapshot-update-chucks-challenging-myeloma-journey.html I was just starting
How many different types of multiple myeloma are there? Six? Ten or twelve? According to Dr. Rafael Fonseca, " Every patient's myeloma is likely different." Are you a "high risk" multiple myeloma patient? Not sure? Don't feel bad; myeloma experts can't seem to agree about what it means. Monday night's Cure Talk broadcast guest, Dr.
I rarely post about or promote fundraisers. But when my dear friend and fellow myeloma survivor, Arnie Goodman, asked me to help publicize his Sweetwater Paddle for the Cure event, how could I say no? Traditionally held in late spring, this year's event is scheduled on Sunday, February 16th, 2014. Colorful boats and paddlers in
Yesterday I promised that I would "point-out another inexcusable error, this time made by Chuck’s hematologist. And you will learn that Chuck’s myeloma road has been far from average or easy." Here is Part Two of Chuck's myeloma journey: I finally met with my hematologist, and he ordered another serum protein test as well as