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Living With Multiple Myeloma

Home/Tag:Living With Multiple Myeloma
9 08, 2014

Reality check for a myeloma survivor

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Remission.  Complete response (CR).  Stringent complete response (sCR).  Minimal residual disease (MRD).  All technical terms that seemingly have precise and specific meanings. But this enlightening newspaper column, written by a former copy editor and multiple myeloma survivor in Maine, makes a point that I've been stressing for years: a lot of myeloma patients and caregivers

9 04, 2014

Updated versions of my first two books available NOW!

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I'm excited to announce that my publisher has released new and improved versions of my my first two books, Living with Multiple Myeloma and  Stem Cell Transplants from a Patient's Perspective. Living with Multiple Myeloma describes my emotional and physical struggle with multiple myeloma.  The focus is on how and why I made the fateful

18 07, 2013

Could I ask a favor?

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I know many of my readers here at MMB have also ordered and read one or more of my books. I continue to search-out ways to get my books in the hands of patients, caregivers, families and friends that need the information. I think I've discovered a way to help get my books out faster;

17 05, 2012

Take the time to develop a “myeloma philosophy”

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Mixed-in with a lot of new research teasers from the upcoming ASCO meetings in Chicago, a number of significant and touching eulogies and several inspirational stories of myeloma warriors like you and me, I thought I would share some thoughts from readers about myeloma philosophy. Not just a treatment philosophy--although that's a big part of

24 10, 2011

Newly diagnosed multiple myeloma patient resource available on my homepage

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I often receive emails with questions from newly diagnosed multiple myeloma patients, their caregivers and/or family members. Truth be told, the majority of these emails are from friends and family--probably because the patient is understandably in a state of shock. I want to remind everyone that this site features a NEWLY DIAGNOSED PATIENTS  reference section,

9 06, 2011

Tips To Help Minimize The Pain And Discomfort Caused By Peripheral Neuropathy From The People Who Know Best: Our Fellow Patients

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If you have been reading my blog at all the past few weeks, you already know I have been suffering from a sudden, serious case of peripheral neuropathy (PN). Sure, I have been forced to endure some inconvenient neuropathy over the years in my hands and feet, caused by my myeloma, as well as four-plus years

19 10, 2010

Link To Hopeful Webinar About Living With Multiple Myeloma For A Long, Long Time

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Here is a link to a helpful, well produced webinar, featuring Nick Tiller and 16+ year multiple myeloma survivor Lt. Frank Cronin, about living with multiple myeloma and the efforts of the MMRF to cure this disease.Worth a look, especially for newly diagnosed patients and/or those who are "freaked out" multiple myeloma median life expectancy

25 08, 2010

Allogeneic Stem Cell Transplants Using Chord Blood Expands Possible Donor Options For Multiple Myeloma Patients

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Here is a research abstract I found on the OncologyStat.com site, confirming how using chord blood can be a good allogeneic stem cell transplant alternative:Allogeneic Hematopoietic Cell Transplantation for Hematological Malignancy: Relative Risks and Benefits of Double Umbilical Cord BloodBlood. 2010 Aug 4;[Epub Ahead of Print], CG Brunstein, JA Gutman, DJ Weisdorf, AE Woolfrey, TE