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LLS

Home/Tag:LLS
15 12, 2015

This is why I do what I do

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I experience countless emotional moments as I hear from myeloma patients and caregivers from around the country and sometimes, around the world. I wanted to share an exceptionally personal one with you here today. In October, I flew up to Boston for an annual reunion of Myeloma Patient Ambassadors. I was a member of the

25 11, 2015

Financial aid: Takeda wants to help. Lets work together

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I had an opportunity to interview several Takeda Pharmaceutical team members about the company's new oral, proteasome inhibitor, Ninlaro (ixazomib), yesterday afternoon. I have heard from dozens of patients who find themselves stuck paying thousands of dollars out-of-pocket for two established oral chemotherapy drugs, Revlimid and Pomalyst. I'm concerned that the same obstacles might face

17 10, 2015

Thank you rant

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A number of you have already contributed to help CrowdCare Foundation fund a pair of cutting edge T cell trials in Germany and John Hopkins in Baltimore. THANK YOU! For those of you on-the-fence, I wanted to share some good news. A friend has agreed to match any contribution—dollar for dollar—up to a total of

28 09, 2015

Beware of “myeloma mirage”

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Regular readers understand that my blog isn't all about me. One of my heartfelt goals is to help all of us--from "experienced," relapsed patients, to people living with MGUS or smoldering myeloma--improve our multiple myeloma IQ's. Sometimes I worry that reading about all I'm going through might freak out newly diagnosed patients. That would be

7 02, 2015

LLS announces travel assistance for myeloma patients

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My old friend, myeloma survivor Richard Blustein, shared some great financial aid news with me earlier this week: Another benefit for blood cancer patients. No other organization helps cancer patients like the LLS. This program will benefit those who must travel for specialized treatment. The Leukemia & Lymphoma Society's (LLS) Patient Travel Assistance Program is

16 02, 2014

Comprehensive pain primer courtesy the LLS

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The Leukemia and Lymphoma Society (LLS) has produced a definitive review about pain and pain management for multiple myeloma and other blood cancer patients. It's basic, but I still learned a lot reading it.  Having recently struggled with sharp, intense pain caused by a pair of plasmacytomas underneath my rib cage, the report was timely

19 10, 2013

Multiple myeloma surivors are TOUGH!

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I just flew back from my second Light the Night walk/fundraising appearance away from home the last two weeks.  Last week the LLS sponsored event was a big one in Boston.  Last night's walk was a smaller, more family oriented gathering in Hampton, near Williamsburg, Virginia.  My energy level is good.  This week is the

3 09, 2013

September is Blood Cancer Awareness Month

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March is Multiple Myeloma Awareness Month.  Do we really need another?  Read this and you tell me! As I greeted support group members arriving before last month's meeting, an older couple that I didn't recognize introduced themselves and headed inside.  "We saw the announcement in the paper." The woman proudly announced loudly. "Are you the

10 03, 2012

Every community large enough to support a stand-alone cancer clinic should also feature a multiple myeloma support group

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That's right.  Every cancer clinic of any size should help promote and sponsor a multiple myeloma support group.  Every one. The group doesn't need to meet at any particular clinic.  As a matter of fact, it is probably better that is doesn't.  That way myeloma patients and caregivers from a number of different facilities can

15 12, 2011

LLS support group event reminds me not to neglect the emotional side of living with cancer

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Fresh off the plane from ASH in San Diego, last night I attended a special support group dinner meeting/seminar, hosted by Lourdes Arvelo with the Tampa area Leukemia & Lymphoma Society. True, after traveling five days, I would have prefered to stay home and enjoy a quiet evening with my wife.  But the panel discussion