I promised to follow up on yesterday's amazing news. Dr. Tricot reassures me that my tests confirm there isn't any active myeloma left. Yet I didn't go into our meeting expecting such good news. Late Wednesday night I was able to take a sneak peek at my PET scan results Tuesday. I’m usually pretty good
I reference my M-spike often. Some cancers don't have good blood markers. But doctors can reliably monitor the progression of multiple myeloma in the majority of patients by tracking how much monoclonal protein is floating around in their blood or urine, using a serum protein electropheresis (SPEP) test. A pathologist reads a graph of the
Disappointing news. After dropping my M-spike from 0.7 to 0.4 the first month, my spike jumped back up to 0.6 this month. Two months on pomalidomide and I'm right back where I started. I know, I know. Lab numbers often jump around and vary from month to month. As a rule, mine haven't, but that
Dexamethasone may be slowly destroying my body, but for three days a week, I love it! There are actually a lot of closet dexamethasone fans out there. I hear from them regularly. They almost always suffer from significant bone involvement (bone damage) caused by their multiple myeloma. Sure, I get an energy boost after taking
It's wonderful to have so many dear online friends looking out for you. When suzierose commented--and then emailed me--suggesting that a FLC assay would be a more sensitive and accurate way to measure the progress that pomalidomide was or wasn't makingm I responded that I wasn't familiar with that test. Coincidentally, that's one of the
I have received a flood of emails from readers, all including information about clinical trials that do not require a 1.0 M-spike in order to qualify. Thank you! Could my "wish" come true? I may qualify for the before mentioned T cell study after all. A couple of things. First, I never meant to imply
Our new house is awesome! I'm juiced! All revved up. Painters, internet techs, cleaning and getting things organized; so much going on all at once. But lurking just below the surface of the adrenaline rush: my myeloma--and bone pain--are getting worse. My M-spike is slowly rising again; up to 0.6 at my local Florida Cancer
My M-spike is creeping up again. More bone pain. And we're moving at the end of the month. Life's a lot of things, but at least it's not dull! To recap, I saw Dr. Roy last Friday, Dr. Alsina at Moffitt Cancer Center in Tamp on Monday and Dr. Malhotra at Florida Cancer Specialists Wednesday.
"How am I doing?" I'm often asked; by email, in person or on the phone. Here's an update. Dr. Malhotra is now running a SPEP test (measures my M-spike) every two weeks. This week's results: I remained at a steady 0.4, same as the last test that had dropped from 0.5 the month before. I'm
Hematologists track how active multiple myeloma is in most patients by measuring how much monoclonal protein is in our blood or urine. This helpful marker is called an M-spike. For most it's a broad indicator; a way to see which way our myeloma is trending. But for me it's an exacting measure. Even a tenth
In the past I have experienced bone damage at M-spikes as low as 0.5. In the back of my mind I have been anticipating trouble; following 3 months hovering around 0.5, my number has crept up and held stable at 0.6 for 2 months. Apparently my instincts were spot-on. I broke a rib yesterday. Thursday
Good news. Not great news, but it could be a lot worse; my IgG is up 10%, but my monoclonal protein level remained at 0.6 after the latest six week cycle. Considering my history of bone involvement with M-spike readings as low as 0.5, the plan was to make a therapy change if it ticked
I saw my myeloma specialist, Dr. Melissa Alsina, at Moffitt Cancer Center in Tampa Monday. The news wasn't good. To recap: 16 months ago I relapsed after a short, 10 week remission. At the time I was only on Revlimid maintenance. We added Velcade and dexamethasone to the mix and my M-spike stalled at 0.4.
When I left home this morning for Moffitt Cancer Center it was still dark. I try and avoid early morning rush hour. But my myeloma specialist, Dr. Melissa Alsina, had fit me in before her regular patient schedule began today. I was anxious to learn the results of this month's blood tests, along with an MRI of my
Good news from my myeloma specialist, Dr. Melissa Alsina, at Moffitt Cancer Center. My myeloma is stable for the third quarterly visit in a row; locked-in at an M-spike of 0.2. My hemoglobin, platelet and white blood counts are up and a bit better, too. A once a week sub-q Velcade injection--along with 20 mg
Monday I learned a sad truth: my multiple myeloma is back again. Say goodby to my second remission. Say goodby? I never really had a chance to say hello! I'm sad, but it's tough to mourn the loss of something that only lasted 10 weeks. Last August I learned that by using a combination of
Yesterday I closed my post with this cryptic statement: I was going to share the news about my visit with my myeloma specialist, Dr. Alsina today. I will get to that tomorrow. No tease–the news was sort of no news at all. Let’s just say I’m sentenced to a life of perpetual post SCT chemo.
I wanted to keep those of you who kindly follow my site updated on my medical journey. As you have probably guessed, I would rather write about myeloma news and medical advances, tips for newly diagnosed patients and the like then to write about me. But I can see by how
While my latest medical update may not live up to the sensationalized headline, I am facing some serious issues with low blood counts and questions about whether I can continue on my RVD consolidation therapy as planned. There is no question that staying on full dose RVD (Revlimid, Velcade, dex) six week cycles may not
I'm breathing a sigh of relief right now. After waiting more than a week due to holiday week delays, I finally learned my M-spike dropped from 0.3 to 0.2. last month. This is good news. Not fantastic news, but very good news. After my first six week cycle on RVD (Revlimid, Velcade and dexamethasone), my