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18 12, 2015

An amazing emotional roller coaster ride

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I promised to follow up on yesterday's amazing news. Dr. Tricot reassures me that my tests confirm there isn't any active myeloma left. Yet I didn't go into our meeting expecting such good news. Late Wednesday night I was able to take a sneak peek at my PET scan results Tuesday. I’m usually pretty good

9 09, 2014

I can live in no-mans-land…

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I reference my M-spike often.  Some cancers don't have good blood markers.  But doctors can reliably monitor the progression of multiple myeloma in the majority of patients by tracking how much monoclonal protein is floating around in their blood or urine, using a serum protein electropheresis (SPEP) test. A pathologist reads a graph of the

11 08, 2014

Multiple myeloma wins round two

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Disappointing news.  After dropping my M-spike from 0.7 to 0.4 the first month, my spike jumped back up to 0.6 this month.  Two months on pomalidomide and I'm right back where I started. I know, I know.  Lab numbers often jump around and vary from month to month.  As a rule, mine haven't, but that

4 08, 2014

Do I love DEMON DEX?

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Dexamethasone may be slowly destroying my body, but for three days a week, I love it! There are actually a lot of closet dexamethasone fans out there.  I hear from them regularly.  They almost always suffer from significant bone involvement (bone damage) caused by their multiple myeloma. Sure, I get an energy boost after taking

14 04, 2014

Medical Update: Settling in for a long, slow fight

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"How am I doing?" I'm often asked; by email, in person or on the phone.  Here's an update. Dr. Malhotra is now running a SPEP test (measures my M-spike) every two weeks.  This week's results: I remained at a steady 0.4, same as the last test that had dropped from 0.5 the month before. I'm

31 01, 2014

POP! SNAP! There goes a rib…

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In the past I have experienced bone damage at M-spikes as low as 0.5.  In the back of my mind I have been anticipating trouble; following 3 months hovering around 0.5, my number has crept up and held stable at 0.6 for 2 months.  Apparently my instincts were spot-on.  I broke a rib yesterday. Thursday

24 10, 2013

This month’s test results: Good and bad news

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When I left home this morning for Moffitt Cancer Center it was still dark.  I try and avoid early morning rush hour.  But my myeloma specialist, Dr. Melissa Alsina, had fit me in before her regular patient schedule began today.  I was anxious to learn the results of this month's blood tests, along with an MRI of my

6 01, 2012

Good News!

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I'm breathing a sigh of relief right now. After waiting more than a week due to holiday week delays, I finally learned my M-spike dropped from 0.3 to 0.2. last month. This is good news.  Not fantastic news, but very good news. After my first six week cycle on RVD (Revlimid, Velcade and dexamethasone), my