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MDS

Home/Tag:MDS
24 03, 2014

Relapse review: What should Pat do next?

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I hadn't planned to write a follow up post about me today.  But I can tell from the flood of emails and comments I've been getting that some readers are concerned  I'm sitting back and not doing enough to battle my relapse. And there does seem to be some confusion about my treatment plan moving

9 08, 2013

Wise words help me face my next round of treatment: CHEMO IS YOUR FRIEND!

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Yesterday I wrote about how I was dreading starting another chemotherapy treatment cycle.  Why now?  I have undergone seemingly countless cycles in the past—on and off; mostly on—for the past six years.  Could it have something to do with losing my father, or other stressors in my life?  As difficult as the past two weeks

23 07, 2013

Best video I’ve ever watched about MDS

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Myelodysplastic syndrome (MDS) results in the bone marrow not producing enough normal blood cells for the body to function properly.  It isn't unusual for multiple myeloma patients to develop MDS after undergoing years of chemotherapy.  I just watched the best video I've ever seen on this rare hematological disorder--and I'm not just saying that because

30 10, 2012

Amyloidosis patients need your help!

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Amyloidosis and MDS.  Two blood disorders that multiple myeloma patients and caregivers should understand.  Amyloidosis, because one out of five myeloma patients also have "amy."  And MDS, because as many as 15% of us may develop this precursor to leukemia, caused by the drugs we take to fight our myeloma. I received this urgent letter

20 10, 2012

More about my inelastic bone marrow, MDS and a trip to Boca

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I have received a number of supportive emails, following yesterday's post about what I can my "inelastic bone marrow."  Let's face it.  It is pretty pathetic that even following more than a week's rest and a neupogen shot, my absolute neutrophil count (ANC) wouldn't budge. I'm not big on repeating my past myeloma history, but

30 07, 2012

IMF Support Group Leaders Summit – Dallas, Texas (Part Three)

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Sunday morning featured a wide array of medical and practical information--sort of a “shot gun” approach.  I used a similar style in yesterday’s post about the Support Group Leaders‘ Summit in Dallas. So here are some important points that a variety of speakers made Saturday afternoon, evening and Sunday morning; including the long awaited hint

20 05, 2012

Amyloidosis/multiple myeloma have a lot in common…

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We have a number readers who suffer from both multiple myeloma and/or several other hematological disorders, including amyloidosis and myelodysplastic syndromes (MDS). Prognosis and treatment options are often eerily similar to multiple myeloma.  For example, Velcade, Revlimid and stem cell transplants are common therapies for a lot of amy and MDS patients as well. Recently

25 04, 2011

New Comprehensive Online Resource Available For Myelodysplastic Syndrome Patients

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I wanted to pass along a link to a new online publication, created for patients and caregivers who are living with myelodysplastic syndromes, http://www.mdsbeacon.com/.The MDS Beacon was created by the same group who publish The Myeloma Beacon, The MDS Beacon features medical news, important resources and human interest stories, all focusing on this rare cancer which negatively

4 10, 2009

Myelodysplastic Syndromes (MDS)

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According to Cure Magazine, the successful myeloma chemotherapy drug, Revlimid, is also used to help patients with myelodysplastic syndromes. MDS is a catch-all diagnosis for a number of different blood disorders that usually require regular transfusion therapy. Use of Revlimid among certain types of MDS improved hemoglobin levels and close to 70% of these patients