I've recently received a lot of constructive criticism from readers that feel my doctors should reduce my weekly dexamethasone dose--or eliminate it altogether. I understand the risks of higher dose, long term use of any corticoid steroid. But statistics clearly show the anti-myeloma benefit that dex brings to the table. Before I get started, here's
Dr. Berenson dropped several bombshell this evening on our Myeloma Cure Panel discussion. REAL NEWS! Although Dr. Berenson couldn’t share specific date that he will be presenting next week at ASH in Atlanta, he let slip that substituting Kyprolis for Velcade in RVD or other multiple drug resistant patients is achieving surprisingly high success rates.
Late last month I received this e-mail comment from fellow patient Jack Searight, in response to my four part series of articles following my visit with multiple myeloma specialist Dr. James Berenson in Los Angeles. Jack apparently had trouble getting Blogger to accept his comment. From my experience, Jack's difficulties are not unusual. I think
Here is a link to a helpful site, Corticosteroid converter, for those of you patients taking dex or medrol or prednisone. I have noticed more and more multiple myeloma patients moving away from dex to medrol. Some report fewer negative side effects (less anger, irritability, sleeping issues) while using medrol vs dex. You may want
One of our readers mentioned Medrol as a possible alternative or addition to an anti-peripheral neuropathy (PN) regimen during my three part series about PN earlier this week. Here is part of what MedicineNet.Com says about Medrol:Pharmacy Author: Omudhome Ogbru, PharmD Medical and Pharmacy Editor: Jay W. Marks, MDGENERIC NAME: methylprednisolone BRAND NAME: Medrol, Depo-Medrol