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7 12, 2014

Busy Sunday at ASH

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It’s the holiday season. One of the things I look forward to most in December? Spending time at ASH. This will be the sixth consecutive year that I’m attending the American Society of Hematology annual meeting. While most people are getting in the holiday spirit, I’m rushing for miles through crowded concourses and sitting in

31 03, 2014

Demystifying MGUS

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A week ago I promised to pass along more information about MGUS and smoldering multiple myeloma.  I hear from readers with both conditions often.  They are often anxious and stressed about their uncertain futures. I understand!  Learning that you have a chance of developing cancer is a frightening thing.  But after researching MGUS (monoclonal gammopathy

21 03, 2014

Risk of developing MGUS varies by race and region

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Let's shift gears today and focus on what researchers are learning about a surprisingly high number of people that develop MGUS; a possible precursor to multiple myeloma. I found some fascinating statistics about MGUS in a recent article on Oncology Nurse  Read it and see what you think: Precursor of multiple myeloma more common

18 10, 2011

Dr. Berenson to release video series about MGUS

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One of the multiple myeloma specialists who reviewed my lab results last week, Dr. James Berenson, commented on an article I wrote last year about MGUS yesterday. I didn't want his comments to get lost, so I thought I would share them with you here: Pat – Just released a series of education videos on

4 12, 2010

Live Coverage From IMF’s Multiple Myeloma Expert Panel Discussion Friday, December 3rd from the annual American Society of Hematology Meetings

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Good evening from the Grand Ballroom at the Peabody Hotel in Orlando, Florida.  I'm covering the IMF’s ASH kick-off event, Key Myeloma Questions for 2010: Latest Developments int Diagnosis, Prognosis and Risk Assessment in Multiple Myeloma.This should be of special interest to a cyber friend of mine, Thomas from Germany. Thomas contacted me three or four

21 04, 2010

Nineteen Year Multiple Myeloma Survivor’s Advice: Forget The Stats!

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I wanted to share this e-mail "rant" I recieved from Barbara, a nineteen year multiple myeloma survivor this weekend, about an often discussed topic on this site--patient survival statistics: Any up-to-date review of patient response to current treatment regimes suggests median new patient survival greater than 7 years. UAMS would say closer to 10. MDA has

13 01, 2010

More About MGUS – Help & Hope For Newly Diagnosed Multiple Myeloma Patients & Their Families

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Yesterday I wrote about MGUS and Margaret from Italy's technically excellent multiple myeloma blog. I have recieved several e-mails from newly diagnosed patients and/or their family members asking me what MGUS and other commonly used multiple myeloma related acronyms stand for.  I get queries like this a lot.  That is one reason that I, unlike

11 11, 2009

Living WITHOUT Multiple Myeloma

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My good friend and fellow patient, Nick van Dyk, from California, recently wrote an essay about his experiences with multiple myeloma. Like me, Nick blogs on a regular basis. He is one of the "young warriors," working with docs in Little Rock, Arkansas on an aggressive treatment plan designed not just to control myeloma, but

31 08, 2009

How Does A Physician Know Your Myeloma Is Active?

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Friday afternoon at the IMF conference in Edina, Minnesota we learned, in detail, the criteria for diagnosis in multiple myeloma. Mayo Clinic transplant nurse Teresa Micelli explained there are four basic disorders that affect plasma cells in the bone marrow. Monoclonal gammopathy of undetermined significance (MGUS), smoldering (indolent) myeloma, plasmacytoma and active myeloma. MGUS and