I missed the HBO special, "Killing Cancer," that aired last week. Fortunately, I was able to catch a replay this weekend. Measles viral therapy for multiple myeloma is one of the featured therapies. All of the work we do to help promote multiple myeloma awareness in March was surpassed by the ten minutes about myeloma
Yesterday was a game changer for me. A reassuring visit from my guardian angel, then an exciting and energizing hour long, on-air conversation with myeloma patient and activist, Jenny Ahlstrom. As far as myeloma patient media types to, Jenny is relatively new on the scene. But she's never let convention get in the way or
I haven't had my inbox light up like this since Kyoprolis was approved last year! Apparently the miraculous recovery of a Mayo Clinic myeloma patient has become international news. I am very familiar with the concept of using the measles virus to destroy myeloma cells. Here are several posts about it I have run in
Two weeks ago I started receiving emails and press releases about a new international collaborative project, code name "Black Swan." The brainchild of Dr. Brian Durie and his wife and President of the International Myeloma Foundation, Susie Novis, the initiative is described by the IMF "a unique project to develop the first definitive, measurable cure
Who knew? Defining a "cure" for multiple myeloma may be as difficult as actually achieving it! Watch this short Patient Power video and see if you can figure it out... http://www.youtube.com/watch?v=Mxr2-gFZ2c8&feature=player_detailpage My friend, Andrew Schorr, does such a good job with these video interviews. But in this case, I think we needed more. Dr. Craig
I posted this comment on our My Cancer Store wall yesterday: "I thought about dropping all of the technical stuff until after Christmas. But the deeper I dig-into results from ASH, the more hopeful and excited I get! And hope is what the holiday is all about, right?" Yesterday I had a long visit with
I just ran a post about an extremely promising cancer immunotherapy on Help With Cancer.org: An experimental immunotherapy that actually works! I mention how a lot of "amazing" new cancer therapies have come and gone over the years. But what I like about this approach is that the immunotherapy targets aren't too specific. And that's
While laying in a feverish stupor yesterday, I realized that I never posted a link to last month's Myeloma Cure Panel broadcast that I hosted, Cure vs Control. It's a bit rough, but it might be worth a listen on a rainy day: Listen HERE! To the Myeloma Cure Panel discussion with Pat Killingsworth on
Have myeloma docs been too quick to dismiss option of using allo (donor) stem cell transplants as initial therapy?
Allogeneic (donor) stem cell transplants aren't used much in multiple myeloma patients anymore. And when they are, it is most often as a salvage therapy "hail Mary" type last resort that usually doesn't work very well. However, several of our regular readers have had good luck whith allos when used up-front as an early therapy.
Wednesday I took part in a media press event at the Charles Hotel in historic Cambridge, Massachusetts, located just across the river from Boston. Titled Surrogates or Survival: A Discussion on Endpoints in Multiple Myeloma Clinical Trials, the panel discussion focused on the role of progression free survival (PFS) and overall survival (OS) data in
Here is a link to an important video, forwarded me by David over at Working With Me.com - News for Blood Cancer Patients and their Caregivers:Question: Who will build the disease models soon capable of providing the powerful insights to cure patients? Answer: You! The idea of patients and researchers collaborating to help form a global community
Follow-Up Comments From Institute for Myeloma & Bone Cancer Research Executive Director Geoffrey Gee
I just received this e-mail in response to Sunday's article, Research Targets Pleiotrophin In Promising Anti-Myeloma Therapy, about how the Institute for Myeloma & Bone Cancer Research was working to develop a cure for multiple myeloma:Pat- Just wanted to throw in my two cents worth. This is how I express our focus: The Cure Myeloma Project