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21 01, 2016

MMRF 2015 myeloma year in review

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I'm part of a Cure Talk Radio broadcast in a few hours featuring Multiple Myeloma Research Foundation co-founder, Anne Quinn Young. If you can't listen live, I'll pass along a link so you an listen later. Here's a short rundown about the show: 2015 saw a lot of action in the Myeloma world. Four new

29 12, 2015

Key research breakthroughs at ASH

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Did you see the MMRF's outline of important myeloma related news at ASH this year? Short and to the point. American Society of Hematology (ASH) Key Takeaways Earlier this month the MMRF attended the 57th Annual Meeting of the American Society of Hematology (ASH) in Orlando, Florida. In last month’s newsletter, Blake Morrison, PharmD MMRF

19 12, 2015

More financial aid is on the way!

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This is awesome news; another source of financial assistance for myeloma patients in need. HealthWell Foundation Launches Fund to Provide Financial Assistance to Multiple Myeloma Patients New Fund Offers Relief to Patients Struggling with Out-of-Pocket Costs for Treatment GAITHERSBURG, Md., Dec. 16, 2015 /PRNewswire/ -- The HealthWell Foundation®, an independent non-profit that provides a financial

17 10, 2015

Thank you rant

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A number of you have already contributed to help CrowdCare Foundation fund a pair of cutting edge T cell trials in Germany and John Hopkins in Baltimore. THANK YOU! For those of you on-the-fence, I wanted to share some good news. A friend has agreed to match any contribution—dollar for dollar—up to a total of

28 09, 2015

Beware of “myeloma mirage”

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Regular readers understand that my blog isn't all about me. One of my heartfelt goals is to help all of us--from "experienced," relapsed patients, to people living with MGUS or smoldering myeloma--improve our multiple myeloma IQ's. Sometimes I worry that reading about all I'm going through might freak out newly diagnosed patients. That would be

12 08, 2015

BREAKING NEWS: MMRF helps push expanded access for dararumumab

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Today is your last chance to participate in a focus group study using your smart phones. Amazon gift cards will be given to all who participate. Contact Kristin Mraz,Community Recruitment Manager - WEGO Health, 177 Tremont Street, 3rd Floor,Boston, MA,02111 - cell:  518.774.6114 - office:  617.863.7745 - fax:  617.426.5027 - I've worked with these

7 05, 2015

Tom Brokaw interview tonight on NBC

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Sensing so much interest following my posts about Tom Brokaw, I wanted to let everyone know that Mr. Brokaw will be featured on a Dateline NBC broadcast tonight at 10 PM Eastern.  And I ordered a copy of his book for delivery on the release day: May 12th. The MMRF must have worked hard to

14 04, 2015

High tech diagnostics emerging to battle most complicated cancer

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The Multiple Myeloma Research Foundation (MMRF) just announced  a collaboration with Adaptive Biotechnologies, the University of Torino and Amgen/Onyx to perform sequencing-based assessment of minimal residual disease (MRD) on hundreds of multiple myeloma patients. Patients enrolled in a ground-breaking, comparative, clinical disease monitoring trial, INSIDE MM-1, will be monitored for MRD using flow cytometry and

16 02, 2015

Another creative way to get the word out

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There are lots of different ways to get the word out about multiple myeloma.  Here's a fun, silly one, courtesy my newly adopted, North Florida support group doing the mambo for myeloma: There wasn't much room, so I volunteered to move up-front and mambo on my knees.  We're "dancing" to a modified version of

10 02, 2015

MMRF supports innovative research

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The good research news continues, as scientists collaborate (and compete) to discover new anti-myeloma pathways: Multiple Myeloma Research Foundation and Inflection Biosciences Collaborate on a New Cancer Treatment DUBLIN and NORWALK, Conn. – February 9, 2015– Inflection Biosciences Ltd., a private company developing highly innovative treatments for cancer, today announced a collaboration with the Multiple

3 02, 2015

MMRF embraces government’s attempt to expand genetic tissue bank

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With the help of Sarah Noonan, I've been able to present to you an introduction to an initiative initiative announced by President Obama earlier this week.  Fortune Magazine featured the article, an editorial by the Multiple Myeloma Research Foundation's (MMRF) Kathy Giusti after accompanying the President for this groundbreaking announcement. Here's an excerpt: Critics may

10 01, 2015

The MMRF continues to help push research forward

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Several of you have asked me to post the link from Thursday Morning's Cure Talks broadcast, featuring Italian myeloma specialist, Dr. Antonio Palumbo.  It was a fascinating broadcast.  Co-hosts from India and Florida,  panelists from the East Coast and California, all questioning a physician in Torino, Italy: Best I  can tell the sound quality

24 12, 2014

Emotional side of multiple myeloma

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I met with several members of the hard working Multiple Myeloma Research Foundation (MMRF) team at ASH.  I agreed to blog monthly on their site.  I was asked to share my emotional reaction to ASH in San Francisco to get things started.  Here's an excerpt from my first post, Hop on my hopeful multiple myeloma