Consecutive M-spike nonoclonal protein readings of 0.5--and now 0.6--seem to confirm my autologous stem cell transplant failed to vanquish my multiple myeloma. So how did it feel, starting the same Revlimid/Velcade/dexamethasone chemotherapy cocktail I had endured for four, three week cycles prior to my transplant Wednesday? Physically, not so bad. The dexamethasone (Decadron) that is
Friday I wrote this short post about Gabapentin, and how I believed it had been subtly helped my neuropathy for years:There seems to be a wide variety of opinions about how effective the neuropathy drug, gabapentin (brand name Neurontin) really is. Most myeloma patients with neuropathy I have spoken with dismiss it as irrelevant. So
There seems to be a wide variety of opinions about how effective the neuropathy drug, gabapentin (brand name Neurontin) really is. Most myeloma patients with neuropathy I have spoken with dismiss it as irrelevant. So when I switched insurance plans after January 1st, I decided to let it go—to not refill the gabapentin perscription I
I have been e-mailing with a number of myeloma patients recently about ideas to help improve peripheral neuropathy (PN) symptoms. Several e-mailed back with suggestions that might help:1) Metanx, a prescription strength vitamin B complex. Staff at Little Rock, Arkansas sometimes prescribe it 2x daily (can be taken 3x daily) in combination with Lyrica and
I get lots and lots of e-mail responses to my posts. Here is a follow-up response to my article about neuropathy from a few days ago:Pat-Great blog post. The article linked below discusses possible causes of PN from mm and chemos- also possible remedies of supplementation, B vitamins, ALA pluscremes, gels, etc-http://beating-myeloma.org/article/therapies/peripheral-neuropathy-remediesAs for my own
Before I left ASH yesterday I attended a large session reviewing neuropathy research results. I have shared with you that I do suffer from a varying degree of peripheral neuropathy. My feet often feel like they are asleep. My fingers become stiff and my dexterity falls off the charts. The symptoms are worse toward the
Program Director Dr. Brian Durie has just introduced tonight's panel: Dr. Mario Boccadoro from Italy, Dr. Philippe Moreau from France, Dr. Robert Orlowski with M.D. Anderson Cancer Centers and Dr. Vincent Rajkumar from Mayo Clinic. 400+ docs, researchers, drug reps, oncology nurses and a few of us patients, fill the room. The presentations have begun.
I have been taking Revlimid monthly now for over two years; the first 16 months with Dexamethasone and this last year without Dex. The side effects vary from cycle to cycle. Normally I feel fluish and a bit weak the first three or four days back on the drug following a week to ten days