I knew that writing about Total Therapy--along with the word "cure"--would be controversial. Setting science and numbers aside, some of us have made very personal, life and death treatment decisions. It's to be expected that we would defend our choices. Think about it. If you had the option to start myeloma therapy using a doublet
We spend so much time hoping and praying for a cure. Could it be that for some, a cure already exists? Most of you should already be familiar with Total Therapy (TT). Developed over decades by Dr. Bart Barlogie at the University of Arkansas School of Medical Sciences (UAMS), TT is often criticized for being
With few exceptions, most myeloma specialists don't believe that our cancer can be cured using therapy options available today. These exceptions include a small percentage (5-10%) of allogeneic (donor) transplant recipients, and possibly some low risk, Total Therapy grads from Arkansas. Any others are considered outliers; rare exceptions that don't fit the norm. Five years
Sorry, but I need to delay Part Two of my expose' about stem cell transplant timing until tomorrow in order to take care of some important housekeeping. Last night I participated in a wonderful Myeloma Cure Panel broadcast featuring M.D. Anderson's Dr. Robert Orlowski. Dr. Orlowski is an exceptional myeloma expert. I would rank him
Earlier this year, suzierose, also know as Myeloma Cinderella, wrote several columns for us here at MMB. I have heard from several of you that enjoyed her work, wondering what happened and why she stopped. Those of you that read MMB regularly have noticed that she contributes in our comment section regularly. So what happened?
I will be hosting this month's Myeloma Cure Panel webcast tomorrow evening at 6 PM Eastern time. The broadcast will focus on questions you have about how best to withstand the seemingly endless assault of multiple myeloma--and myeloma therapy--on our quality of life. Cure Talk sponsors these broadcasts. Click-on the headline link below to read
Today Nick break's Total Therapy (TT) down into distinct segements; induction, transplants, consolidation and maintenance. Total Therapy Demystified (Part Two) Multiple myeloma survivor and Total Therapy Patient Nick van Dyk PHASE ONE: INDUCTION In traditional conservative treatment approaches, induction refers to the use of one or more agents to reduce disease burden before a transplant.
For someone that isn't a doctor, I know a lot about myeloma therapies. Not so much about the science of how they work, but the timing of it all--when best to use them and ways to help minimize side effects. But I still have a lot to learn about one specific treatment philosophy: Total Therapy.
Purdue University researcher, Gary Blau, wrote this on Tuesday: Pat: I am looking to answers to this question not only for those following a transplant but for us elderly and frail types who jump right to maintenance following consolidation. I hope you will also address the issue of becoming refractory to maintenance agents. Shouldn’t
Was Controversy About Secondary Cancer Risk Among Long Term Revlimid Users Reactionary Or Overblown?
A fellow multiple myeloma patient blogger and good friend, Nick van Dyk, shared his views about the recent secondary cancer scare for long term users of Revlimid today: Some thoughts on this Revlimid situation...perhaps a false alarm?Nick lives in California, yet he travels all of the way to Arkansas to see myeloma specialists at UAMS.
Fellow multiple myeloma patient and blogger Nick van Dyk, from California, gave me a great "shout out" on his most recent blog post. Nick is undergoing a very aggressive form of anti-myeloma treatment known as Total Therapy. He does a good job comparing and contrasting the different therapy paths we have each taken the past few
As part of the continuing series about inspirational multiple myeloma patients, I would like to introduce you to Nick van Dyk from Los Angeles. Over the past year or so, Nick and I have become close friends. Last year, Nick wrote a three part essay, Living WITHOUT Multiple Myeloma, about his experiences with multiple myeloma and
I hope you all read yesterday's third and final installment of Nick's myeloma story. He concludes by giving us five important things all myeloma patients should do. To summarize: Recognize that you are your own best advocate, and take ownership of your disease. Advice is great, but ultimately the choice is yours. Learn everything you
Here is the third and final installment of Nick van Dyk's multiple myeloma story. He makes a number of important points which are relevant for any myeloma patient:There are a few things from my experience, though, that I think can serve just about anybody facing this diagnosis. So if I can leave you with a
Before I continue Nick's story, I wanted to share a wonderful experience I had yesterday with you. Before we moved to Florida, while I was writing my first book, I started corresponding with a gentleman named Jack Pacowta. Jack had started a multiple myeloma support group in Jacksonville, Florida. Jack was frank, open and honest