Floridian Jenny Hack is a regular reader and member of the Jacksonville Multiple Myeloma support group. I met her a number of years ago, and was happy to see her again at the meeting last week. Jenny has become a focused and dedicated activist, working hard to help get oral chemotherapy meds paid for like
Remember Jim Bond? I featured the long lived multiple myeloma survivor in several Patient Snapshot posts last year. Last week I heard from his lovely wife and caregiver, Kathleen. She says Jim is doing great! Apparently the only serious complication resulting from Jim's allo (donor) stem cell transplant a year and a half ago: graft
Thalomid, Revlimid, Pomalyst, MLN9708. Four oral chemotherapy agents we need to help keep us alive. Yet unlike Velcade or Kyprolis, these drugs are treated and billed like they are antibiotics we pay for and pick-up at Walgreens or CVS. The IMF is working hard to get oral chemo drugs like these to be treated like
I attended a meeting this afternoon sponsored by the IMF. The topic: Making sure that sub-q and oral cancer medications are covered by Medicare and private insurance in the same way that intravenously infused medications are. With up to 35% of new cancer drugs expected to be oral medications, the IMF is pushing Congress
Check-out this Milwaukee area news story about a multiple myeloma patient who is fighting to get oral chemotherapy covered by insurance: State legislators are working to make oral chemo affordable for patients By Courtny Gerrish, Stephanie Graham Oct. 19, 2011 MILWAUKEE - Marc Richman of Delafield doesn't mince words when it comes to his cancer
I try to not be too political here. Cancer isn't a Republican or Democrat. This initiative, supported by the International Myeloma Foundation, won't cost the taxpayers much. But it will help thousands of cancer patients immediately: Please Help Eliminate Disparity in Coverage for Chemotherapy! Representative Brian Higgins (D-NY) has introduced legislation that will make oral
A Good Multiple Myeloma Patient Is A Well Informed Patient – Becoming More Involved May Save You Money & Your Life!
Two weeks ago I started an ongoing series, Examining The High Cost Of Celgene's Multiple Myeloma Drugs. Writing these articles has been an interesting ride! I have heard from multiple myeloma patients in Europe, Asia and all across the United States. My column in last week's Myeloma Beacon, Pat’s Place: A Patient’s Reflections On The