Here's an update about how I'm doing. I'm feeling OK, but I've been a bit scattered; I'm having trouble focusing. One reason? Check out all these pills I took last night at 5 PM--just one of four different cups of fun: It isn't the number of pills; I take this many and more at home.
How do I feel today? That depends on what you mean by "feel." By feel do you mean my energy or pain levels? How about emotionally? Dropping Revlimid from my chemo regimen (still on weekly Velcade and 20 mg dex) has jump-started my numbers. All my blood counts are back to normal and my energy
Following-up on the controversy about tighter restrictions on prescription pain medications, I wanted to share a practical example that hit close-to-home late last week. But first--if you have the time--here are several posts I ran about the pain med controversy last year: Move to limit pain med options may “hurt” cancer patients Ongoing use
I mowed and trimmed our lawn yesterday afternoon. It was hot--almost 90 degrees. But that's normal for late June along the north coast of Florida. Ironic, since I understand two thirds of the country is facing temps much higher--some record highs? It takes me around an hour and a half to mow and trim. Not
This past week I experienced two extraordinary acts of healthcare kindness in unexpected ways. The first occurred Wednesday. I hadn't been paying attention, and my supply of oxycodone pain meds had run low. No big deal, except I was preparing to head up the South Carolina coast with Pattie for a long weekend. I didn't
Earlier this week I spoke to a group of 50 nurses near my home here in Florida. One of the other speakers–oncology nurse Elizabeth Finley with Moffitt Cancer Center–reminded the audience several times how important it is to keep patients moving. Elizabeth stressed the importance of making sure patients take their pain meds regularly. Why?
I just noticed that the first link was broken from yesterday's post that contained links to important Myeloma Beacon columns--and several other resources about peripheral neuropathy (PN). It is fixed if you would like more background information and helpful suggestions from past years. Today, let's take a look at ways that you and I can
Like depression, the use, overuse and controversy surrounding pain meds directly affects a number of multiple myeloma patients--especially those of us with lasting bone damage. Here is an excerpt from one of the best and most balanced articles I have ever read on the subject: Chronic Pain Fuels Boom in Opioids By John Fauber, Reporter, Milwaukee
Last Wednesday, Californian Lori Puente stopped-in to visit our Nature Coast (Florida) Multiple Myeloma Support Group meeting and Christmas party. Her husband, Dave (the patient), was unable to attend because he was fighting a cold. Lori writes an excellent caregivers blog called Riding The Wave. She is a tireless advocate for the UAMS/Arkansas myeloma treatment
A few thoughts about how cancer patients are being denied pain meds in Florida I just finished reading a column by Tampa pharmacist David Craig in our local St. Pete Times. Titled Cancer patients denied needed pain treatment, the piece is critical of the new push in Florida to make oxycodone unavailable. Why? It’s a