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Patient Shapshot

Home/Tag:Patient Shapshot
20 10, 2014

Patient Snapshot Update: Mark from Ohio

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From time to time I like to do follow-ups about former Patient Snapshot subjects--especially when the news is good.   In February, 2013, I wrote about Mark, a newly diagnosed patient that was having a hard time.  Mark's daughter, Stephanie, had emailed me for help; she was very concerned about her dad.  I was more

30 06, 2014

Hope for a cure: Tom’s allo transplant journey (Part Twenty One)

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Two weeks ago I posted an update about our good friend, allo (donor) transplant patient, Tom.  He's back home now, living with his wife and caregiver, Whitney, and his energetic, adorable kids.  But as I reported, things haven't been easy: Hope for a cure: Tom’s allo transplant journey (Part Twenty) Concerned that Tom's inactivity might

18 09, 2013

Patient Snapshot: Chuck’s challenging myeloma journey (Part Three)

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Today we learn what Chuck's doctors decided to do to try and slow down his stubborn and difficult to treat multiple myeloma.   V-DCEP therapy (a combination of Velcade, dexamethasone, cyclophosphamide, etoposide and cisplatin) is a bit unconventional, but is sometimes used to hit relapsed/refractory myeloma hard and knock it back. Let's see what happened

17 09, 2013

Patient Snapshot: Chuck’s challenging myeloma journey (Part Two)

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Yesterday I promised that I would "point-out another inexcusable error, this time made by Chuck’s hematologist.  And you will learn that Chuck’s myeloma road has been far from average or easy."   Here is Part Two of Chuck's myeloma journey: I finally met with my hematologist, and he ordered another serum protein test as well as

6 07, 2013

More well deserved condolences for John Knighten

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I wouldn't continue to post some much about our dear friend, John Knighten.  But this local newscast is touching and well done.  Try not to cry when John shares how his number one concern is for his wife and kids on camera a week before his death: Spokane firefighter John Knighten passes away http://www.youtube.com/watch?v=WtlWC6bmyBI I

17 06, 2013

Broadcast features battling survivor John Knighten and family

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Good news!  Our dear friend and Patient Snapshot favorite, John Knighten, is hanging on.  Last April, John was given only a few weeks to live by his transplant team in Seattle.   But the Spokane, Washington resident and former firefighter continues to fight through severed pain caused by a massive plasmacytoma (tumor) in his sinuses.

24 03, 2013

Patient Snapshot Update: Transplant warriors Mark Parsons, Richard Blustein and Jim Bond

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Great news about three of our recent Patient Snapshot featured friends, Mark Parsons Richard Blustein and Jim Bond.  All are doing well. Mark has been discharged following what is hoped will be a successful auto (using his own cells) stem cell transplant.  He is currently staying at a Hope Lodge in Ohio (see Jim Bond's

1 02, 2013

mSMART, OS update and inspirational friends

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Let's start with a helpful link to Mayo Clinic's Medical Laboratory site: Multiple Myeloma Proper Diagnosis and Risk Stratification to Guide Treatment Here you will find an informative video and helpful charts that help explain how genetic testing works, and why Risk-Adapted Therapy (mSMART ) is an important tool for myeloma specialists. Next, listen to

20 11, 2012

Patient Snapshot Updates: John and Roz

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I have been thinking about John from Spokane, Washington a lot these days.  He's been through so much!  He emails me most every week with updates.  If you recall, the plasmacytoma in his skull returned, requiring radiation therapy and delaying his march toward a tandem auto/allo stem cell transplant in Seattle. Here is a copy