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Pat’s Myeloma Beach Party

Home/Tag:Pat's Myeloma Beach Party
30 12, 2015

Hotel options for April Beach Party event

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It's hard to believe that we're only three months away from the 3rd Annual Pat's Myeloma Beach Party. The event is a "party" in name only; there will be 15 myeloma experts on hand to address topics that last year's attendees and readers feel are most important to them. The three day event is scheduled

28 06, 2015

Busy day tomorrow…

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I've got several good friends, and a tech volunteer, working on Pat's Myeloma Beach Party online registration.  We had a  few glitches last year that I wanted to avoid.  Unfortunately, instead of producing and testing things on a practice site, the first draft appeared live.  There are still bugs to be worked out.  But the

7 06, 2015

2016 Myeloma Beach Party date set

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It's official!  Next year's Pat's Myeloma Beach Party will be hosted by the Woman's Club of Fernandina Beach the weekend of April 1st on Amelia Island, Florida. Like last year, the three day event will feature dozens of myeloma experts from across the country.  The Woman's Club is tucked back in an idyllic wooded setting,

10 04, 2015

Next year’s Beach Party planning off to an early start

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One of the amazing things about the final day of this year's Beach Party: no one wanted to leave!  Instead, the 70 or so remaining patients and caregivers stayed, shared suggestions and started to help us plan next year's event.   Volunteers stepped forward, committees were formed.  Michele and Stephanie even started a Pat's Myeloma Beach

24 03, 2015

Send me your Beach Party photos…

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We had patients and caregivers here from 23 different states last weekend--and speakers from as far away as California, Kansas City, Minneapolis and Boston.  I was so busy getting to know my new friends and trying to stay organized this weekend, I didn't get a chance to take enough pictures.  Hopefully some of you can

23 03, 2015

It was an amazing weekend!

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I'm exhausted!  Hosting over a hundred friends for a long three day weekend takes a lot out of a guy.  We laughed, we cried--and everyone learned a lot, listening to 14  different speakers discussing topics ranging from experimental viral therapies to the benefits of medical marijuana. Of course I couldn't have done it without the

16 03, 2015

Beach Party Event Schedule Set

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Pat's Myeloma Beach Party is less than one week away!  We have registrants from 22 States and Canada!  There are still 6 spots left if you'd like to be impulsive and sign-up last minute.  And there's no limit to how many can register for Crowd Care's Beach Walk fundraiser Saturday morning.  Come on down! Here

21 02, 2015

The search is on for underfunded clinical trials that can help us NOW!

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I ran this press release several weeks ago.  There's still time for researchers and myeloma specialists to submit their ideas for funding: New Crowdfunding Myeloma Initiative Begins With Call For Letters Of Intent For High-Risk Multiple Myeloma Solutions SALT LAKE CITY, Jan. 30, 2015 /PRNewswire-USNewswire/ -- The Myeloma Crowd Research Initiative (MCRI) is calling for research