I promised to follow up on yesterday's amazing news. Dr. Tricot reassures me that my tests confirm there isn't any active myeloma left. Yet I didn't go into our meeting expecting such good news. Late Wednesday night I was able to take a sneak peek at my PET scan results Tuesday. I’m usually pretty good
I'm on my way! Iowa City, here I come. I can't say I'm looking forward to undergoing another bone marrow biopsy (BMB) tomorrow morning, but it shouldn't be a big deal after I down a shot or two of their passion pink, mind numbing elixir; if all goes as planned, I should be feeling no
I'm relieved, disappointed, concerned and overwhelmed--all at the same time. The long awaited meeting with Dr. Tricot yielded a mixed-bag of good and bad news. Bad news: apparently my current therapy combination of Cytoxan, carfilzomib (Kyprolis) and dex (CCd) was not as effective as Dr. Tricot had hoped. He told me so at our early
Think I have an advantage knowing a lot of myeloma specialists? How about the invaluable help I get from our readers? Check-out the sage advice a patient and caregiver from Michigan emailed me on Tuesday: Hi Pat, Using the PET scan to gauge disease progression can be tricky. Our myeloma doctor says that they can
What did my test results show, and what does Dr. Tricot propose we do about it? I'll be honest. There's a reason why doctors prefer to go over test results together, in person. Sitting with Dr. Tricot in Iowa City last week, things didn't seem so bad. He reviewed my test results and instantaneously developed
I'm a lot tougher than I used to be. Tests I've always dreaded don't seem so bad anymore. I'd, like to share a few tips that I find helps make things a bit easier to take. Here’s a quick synopsis of my first day in Iowa. It started at 8:00 AM, with last minute paperwork
More financial complications. Wait until you hear this twisted tale. Two weeks ago I wrote a post about how complicated the financial side of my myeloma therapy can be--especially early in the calendar year: Outdated financial rules could hit me hard in 2015 One of the unexpected benefits of taking pomalidomide: pain from new
Today's pivotal, life changing meeting? Not so fast! I'm so pleased with Dr. Roy. He's already helped me reconnect with my primary myeloma therapy philosophy: squeeze out every possible day from each drug or drug combination, saving other possibilities for down the road. Dr. Vivek Roy may have been trained in a transplant aggressive style.
Today is myeloma day at the American Society of Clinical Oncology annual meetings in Chicago. There isn't a lot of myeloma related data being presented this year, but the important stuff is out today. Normally I'd be there covering the event. Not this year. I spent today at Mayo Clinic in Jacksonville, Florida. Just finishing
I've written before about how living with multiple myeloma is like having a part time job. Want proof? Check out my schedule for the upcoming week: Today I'll drive an hour down to Tampa for a blood draw, and to pick up 350 pages of medical records to take with me to Mayo Clinic on
My day started early today. Nothing to eat or drink. Stopped by Florida Cancer Specialists for round two of radiation therapy. Then took a short drive to their diagnostics center to prepare for my PET scan. Insurance has signed off so I’m good to go. The tech has just injected radioactive glucose through an IV.
An insert in the Winter 2011 Edition of Cure Magazine offers a simple, yet comprehensive explanation about why multiple myeloma damages your bones. According to medical journalist Laura Beil, “Malignant plasma cells affect the remodeling of bone, causing overproduction of the natural substances that dissolve bone. When plasmacytomas (the scientific term for myeloma related tumors