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PET scan

Home/Tag:PET scan
18 12, 2015

An amazing emotional roller coaster ride

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I promised to follow up on yesterday's amazing news. Dr. Tricot reassures me that my tests confirm there isn't any active myeloma left. Yet I didn't go into our meeting expecting such good news. Late Wednesday night I was able to take a sneak peek at my PET scan results Tuesday. I’m usually pretty good

20 01, 2015

Radiation therapy? I’m pulling the plug…

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More financial complications.  Wait until you hear this twisted tale. Two weeks ago I wrote a post about how complicated the financial side of my myeloma therapy can be--especially early in the calendar year: Outdated financial rules could hit me hard in 2015   One of the unexpected benefits of taking pomalidomide: pain from new

6 06, 2014

Mayo Clinic Zen

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Today's pivotal, life changing meeting?  Not so fast! I'm so pleased with Dr. Roy.  He's already helped me reconnect with my primary myeloma therapy philosophy: squeeze out every possible day from each drug or drug combination, saving other possibilities for down the road. Dr. Vivek Roy may have been trained in a transplant aggressive style. 

2 06, 2014

When practical trumps theoretical

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Today is myeloma day at the American Society of Clinical Oncology annual meetings in Chicago.  There isn't a lot of myeloma related data being presented this year, but the important stuff is out today.  Normally I'd be there covering the event.  Not this year.  I spent today at Mayo Clinic in Jacksonville, Florida. Just finishing

28 04, 2014

Multiple myeloma is so inconvenient!

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I've written before about how living with multiple myeloma is like having a part time job.  Want proof?  Check out my schedule for the upcoming week: Today I'll drive an hour down to Tampa for a blood draw, and to pick up 350 pages of medical records to take with me to Mayo Clinic on

8 01, 2012

How and why does multiple myeloma damage bones?

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An insert in the Winter 2011 Edition of Cure Magazine offers a simple, yet comprehensive explanation about why multiple myeloma damages your bones. According to medical journalist Laura Beil, “Malignant plasma cells affect the remodeling of bone, causing overproduction of the natural substances that dissolve bone.  When plasmacytomas (the scientific term for myeloma related tumors