I held up surprisingly well on my trip home to see friends and family. My energy level was good, despite taking pomalidomide (POM) daily. But my bone pain has reemerged with a vengeance--and I'm not sure why. As is the case with most myeloma lesions, I’m not in pain when I’m sitting or lying down.
It's an awesome Friday morning! I'm both delighted and relieved. Delighted that our University of Wisconsin basketball team won again last night, advancing to the NCAA Tournament's Elite Eight; the Badgers play Arizona Saturday to see which team will advance to the Final Four. And I'm relieved to report even better news: I learned yesterday
So many emails from concerned readers, responding to yesterday's "What should Pat do?" post. Thanks for caring! But it was a rhetorical question; I'm following a well reasoned, systematic therapy plan, involving far less indecision than may appear. I was a high school football and basketball coach in a former life. As a sports guy,
I hadn't planned to write a follow up post about me today. But I can tell from the flood of emails and comments I've been getting that some readers are concerned I'm sitting back and not doing enough to battle my relapse. And there does seem to be some confusion about my treatment plan moving
Piling on. That's what it feels like these days. Like I've been tackled by an angry NFL linebacker--and now a huge defensive lineman has just jumped on the pile. Yesterday I began to express my frustration in living with so much uncertainty. Would my myeloma continue to be active, sending my M-spike higher? What new
I saw my myeloma specialist, Dr. Melissa Alsina, at Moffitt Cancer Center in Tampa Monday. The news wasn't good. To recap: 16 months ago I relapsed after a short, 10 week remission. At the time I was only on Revlimid maintenance. We added Velcade and dexamethasone to the mix and my M-spike stalled at 0.4.
I met with my medical oncologist, Dr. Vikas Malhotra, for the first time since last month's relapse today. He reviewed my test results, including the MRI of my left hip. It reminded me why working together as a team is so important. I felt that Dr. Malhotra and his physicians assistant, Ann, made some innovative
I feel the same this morning. The routine was the same; feed the dogs and cats, help get Pattie out the door and off to work. Yet everything is very different. Yesterday I learned that my myeloma is active again. It's only a number on paper. But the impact packs a real wallop! Yesterday I