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19 02, 2015

BREAKING NEWS: Revlimid receives expanded FDA approval

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I received some good news from Eliza Schleifstein with Cegene.  She passed along this information for me to share: Celgene Corporation (NASDAQ:CELG) today announced that the U.S. Food and Drug Administration (FDA) has expanded the existing indication for REVLIMID® (lenalidomide) in combination with dexamethasone to include patients newly diagnosed with multiple myeloma. The treatment is

5 06, 2014

Tomorrow’s Mayo Clinic visit is “the combo platter; the whole enchilada”

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No ASCO blockbusters.  Some significant data was presented.  But as I mentioned yesterday, nothing time sensitive.  So today I would like to write briefly about what could be a life changing meeting tomorrow at Mayo Clinic. OK, I'll admit it.  I'm apprehensive about my appointment with my new myeloma specialist, Dr. Roy.  My first impressions

29 05, 2014

Truck loaded and on our way!

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As I mentioned in a post on May 21, we have planned three moving days.  The first was a preliminary move to get needed tools, bedding and that sort of thing over to the new "fixer" on Fernandina Beach.  Today's is "the big one;" three strong guys and a big truck. And the third?  My

28 03, 2014

Great news! RVD is working again!

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It's an awesome Friday morning!  I'm both delighted and relieved.  Delighted that our University of Wisconsin basketball team won again last night, advancing to the NCAA Tournament's Elite Eight; the Badgers play Arizona Saturday to see which team will advance to the Final Four.  And I'm relieved to report even better news: I learned yesterday

31 10, 2013

When it comes to myeloma, two heads are better than one!

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I met with my medical oncologist, Dr. Vikas Malhotra, for the first time since last month's relapse today.  He reviewed my test results, including the MRI of my left hip.  It reminded me why working together as a team is so important. I felt that Dr. Malhotra and his physicians assistant, Ann, made some innovative

12 06, 2013

Myeloma Updates: Revlimid, Social Security Disability assistance and a fond farewell

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This headline on a well known medical website made me laugh: From ASCO – Revlimid May be Effective for Newly Diagnosed Multiple Myeloma Really?  Docs have been prescribing Revlimid to their newly diagnosed patients since late 2006!  But the keystone novel therapy has never been officially approved for use in new patients by the FDA. 

2 06, 2013

Elotuzumab study results “promisingly murky”

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For me, one of the most frustrating part of reading abstracts and following oral presentation myeloma results at meetings like ASCO and ASH is that you are rarely comparing apples to apples.  Are study subjects "heavily pretreated," "refractory," or both.  And what about "relapsed?"  Sometimes some of these terms are used interchangeably.  Sometimes not.  Let

17 04, 2013

What took so long? Pomalidomide time-line raises questions–I have answers (Part Three)

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I stuck with the original heading for the third installment of my three part investigative expose'.  But today's post could have been titled, "Different shades of grey."   Pomalidomide's development was shaped by a convoluted system that does a poor job balancing patient need with investor returns. But I'm getting ahead of myself.  Yesterday I promised

16 04, 2013

What took so long? Pomalidomide time-line raises questions–I have answers (Part Two)

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Before I get started, did you happen to see the MMRF's Kathy Giusti interviewed in the trendy tech magazine, Fast Company?  Interesting approach.  Simply click-on the headline link below to access the interview: Using Data To Treat Cancer And Drive Innovation How a pair of savvy renegades are forcing collaboration in cancer R&D--and saving lives.

11 04, 2013

Stranger than fiction? Cialis an anti-myeloma drug?

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I ended yesterday's post with a flip blip about how Cialis features a precautionary warning specifically naming mutliple myeloma.  Ironic, since our good friend, Holt, followed-up with an even stranger Cialis-related email.  Turns-out that Cialis (tadalafil) is being tested in ongoing human studies as an anti-multiple meyloma drug!  You can't make this stuff up! According

19 03, 2013

Responding to IMiD and proteasome inhibitor may be game changer

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Friday I left everyone hanging when I wrote:  Monday I am going to explain how this seemingly mundane result–a 0.2 M-spike–may have been the most fateful news I have ever received as a soon to be six year multiple myeloma survivor.  I know I said Monday.  But I couldn't resist yesterday's fun and frivolous, self

9 03, 2013

Wall Street Journal features article about new myeloma therapies

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A good friend of mine, long-lived myeloma survivor Paula Van Riper, was recently featured in an excellent Wall Street Journal article about the recent FDA approvals of Kyprolis and Pomalyst.  The IMF's Medical Director, Dr. Brian Durie, is interviewed, along with Dr. David Siegel, chief of the myeloma division at John Theurer Cancer Center in